Advice before telephone appointment please

[Simplyred57]

I recently had some bloods done after further reducing my thyroxine, previously I had reduced my thyroxine to 5 days at 100mcg & 2 days at 75mcg - T3 10mcg the results were as below

TSH 0.05

T4 -21. (81.82%)

T3 - 6 ( 78.38%)

I then reduced a further 2 days at 75mcg with T3 the same 10mcg ( so 3 days at 100mcg & 4 days 75mcg ) and have just had these results after 12 weeks see above , both tests done as per protocol Im shocked that my T3 has dropped from 78% to 55% and T4 has hardly moved .

I have telephone appointment with my consultant on 26th and not sure where to go with this as my T3 has dropped so much , can any of you lovely people please advice, Im feeling ok ish colder and not as much energy, but really wanted to get both levels to about 70% 😊

[SlowDragon Administrator]

So you may now need to increase T3 by 5mcg to 15mcg per day

Do you always get same brand Levo at each prescription

When were vitamin D, folate, B12 and ferritin levels last tested

[Simplyred57 in reply to SlowDragon]

Thank you SlowDragon yes always same brand Mercury Pharma , vitamin D just tested and is 89.4 but it doesn’t give the range ( I am supplementing with D3 with K2) not had my folate B12 and ferritin tested for a while but I’m seeing my GP on Monday so will ask him , or maybe do medichecks anyway.

Do you think I need to further reduce my thyroxine? I obviously don’t want to change both so maybe suggest upping my t3 and then retest and maybe reduce my thyroxine to 75mcg a day then see if that balances out or go back to my previous 2 days at 75mcg and 5 at 100mcg and stay at 10mcg T3?

I only reduced thyroxine as both levels where a little bit high , I felt well on that dose but lots of aches and pains so thought it was worth a try, but now I’m tired , cold and definitely not feeling great- it’s so hard all this adjusting 😞

[SlowDragon Administrator in reply to Simplyred57]

Do you think I need to further reduce my thyroxine? I obviously don’t want to change both so maybe suggest upping my t3 and then retest

I would agree with this suggestion

it’s so hard all this adjusting

Agreed!

And it can take 2-3 months to settle after any dose change

[Simplyred57 in reply to SlowDragon]

I definitely feel better with a higher T3 level .

Do you think it’s better getting a bit of T3 from the thyroxine I take and adding T3 ( I clearly from my results do convert as when I reduce thyroxine my T 3 plummets ) or just keeping thyroxine low and take a higher dose of T3 ?

[SlowDragon Administrator in reply to Simplyred57]

Many of us seem to need BOTH Ft4 and Ft3 at least 60-70% through range

Taking almost any dose of T3 will significantly reduce or suppress TSH …..in effect completely turning off your own thyroid output

A few people seem do better on higher Ft3 and lower Ft4 …..but it seems to be the minority ….land it doesn’t necessarily remain a constant need …..can change over time

Only about 10% of those who start T3 and Levo together…seem to do best/end up on T3 only

Personally I tried increasing T3 and reducing Levo …..it definitely didn’t suit me

[Simplyred57 in reply to SlowDragon]

Yes I was trying to just bring my levels down slightly to 70% but it didn’t work and now T3 just too low for me , they were definitely more balanced on my previous dose, I really don’t want to be taking too much T3 if I can covert some from the thyroxine, but not sure which is best ? 🤷🏼‍♀️

[SlowDragon Administrator in reply to Simplyred57]

Trial and error