Best levo for allergy/histamine issues please?

[GreenTealSeal_]

Hello,

I’m still struggling on, unable to tolerate any levo or levo/lio combo…been getting on for nearly 2 years and I’m fed up to say the least…

I saw an endo this week who doesn’t think I should take thyroid medication at all, altho did say excipients are often the issue. I said I’d already tried liquid levo and then she seemed stumped. And said ‘watch and wait’ and see if TSH gets over 10 then we can reassess.

What is the most ‘gentle’ levo brand out there please?

I have already tried: accord, teva, wokhardt, accord liquid and Cytomel and thybon Henning for t3….and very sadly they are all the same.

Interestingly endo said my estrogen is quite poor/low for someone of my age so she has suggested we trial HRT to see if this helps. I’m hopeful it will seeing as I can’t get off of the combined contraceptive pill without awful symptoms and feeling as though I completely lose my sense of self….and the never having had any periods but that’s a whole other long story!

I’ve also been trialing a low histamine diet but if I’m honest I’m finding this v difficult (losing lots of weight) and not noticing much of a difference symptom wise. The reaction to levo is the same even with this adjustment 😭

thanks for any thoughts or input!

GTS 🦭

[helvella Administrator]

Trouble is, gentleness is very subjective! Witness that some love Teva levothyroxine while others feel dreadful on it.

It looks as if Aristo Vencamil is often one of the best UK-licensed levothyroxine tablets. I do not know much about liothyronine because I have never tried any.

helvella's medicines documents (UK) can be found here:

helvella - Thyroid Hormone Medicines

helvella has created, and tries to maintain, documents containing details of all thyroid hormone medicines licensed in the UK and, in less detail, many others around the world. There is now a specific world desiccated thyroid document.

I highly recommend viewing on a computer screen, or a decent sized tablet, rather than a phone. Even I find it less than satisfactory trying to view them on my phone.

helvella - Thyroid Hormone Medicines - UK

The UK document contains up-to-date versions of the Summary Matrixes for levothyroxine tablets, oral solutions and liothyronine available in the UK. Includes injectables and descriptions of tablet markings which allow identification. Latest updates include all declared ingredients for all UK-licensed products and links to Patient Information Leaflets, Dictionary of Medicines and Devices (dm+d), British National Formulary, NHS Drug Tariff, etc. PLUS how to write prescriptions in Appendix F.

Also includes links for anti-thyroid medicines (but not product details).

📄 dropbox.com/s/bo2jzxucgp9hl...

helvella - Excipients

Details of excipients are in my Excipients document. This includes all excipients identified in UK-licensed thyroid hormone medicines.

📄 dropbox.com/scl/fi/tud6r8f5...

helvella.blogspot.com/p/hel...

If the last updated date of a copy your have downloaded isn’t very recent, please download a new copy!

Last updated 17/10/2024

[GreenTealSeal_ in reply to helvella]

Thank you for replying! From a histamine/allergy point of view I’d hoped someone had some experience but appreciate its pretty niche topic!

I’ll check out the links and do some research. I’ve heard good things about Vencimil too was struggling to find it’s ingredients list on Thyroid UK so will check out these links.

Thanks again!

[helvella Administrator in reply to GreenTealSeal_]

All the ingredients of all UK thyroid hormone products are listed in my document!

[GreenTealSeal_ in reply to helvella]

Ace! Thanks again!