My daughter (now 22) has b12 deficiency and SI about twice a week (she gets the 12 weekly one from the gp). She had an Ifab test a few years ago but this came back negative.
Her journey started when she was 11 had developed a virus which triggered vestibular migraine disorder and fatigue. I think it may have been caused by black mould.
About 4 years later we found out she had b12 deficiency (I was questioning whether she’d be able to lead a normal life at this point as was constantly exhausted and needed a wheelchair for any days out).
Since starting SI she is now holding down a full time job and going to the gym but she still isn’t great. Symptoms include fatigue, peeling finger tips, constant bouts of thrush, brain fog, menstrual problems including endometriosis and adometreosis. She recently did a hair sample which identified a possible thyroid problem as her calcium content was 700 (max range was 100) her magnesium and copper readings were also very high.
looking back at old blood tests from 2022 her last TSH was 0.56 (range started at 0.5) and T4 was 11.5 (top range was 12).
I’ve been googling and this all points to hashimotoes disease.
She has asked the Gp for a blood test to check her thyroid, calcium and copper levels.
Has anyone else developed thyroid problems or can suggest next steps. I’m worried nothing will happen again if she’s still just in range on her blood tests.
Written by
Vicky2822
To view profiles and participate in discussions please or .
She is hopefully having the blood test Thursday at 9.20am. She asked for a full thyroid test so we will see what they do plus calcium, magnesium and copper.
The old blood test didn’t give a range for the free T4 just says 11.5pmol/L
She has b12 inj 2 x week and takes a folate tablet when she does these. And also takes d3, k2, fish oil, vit c and various herbal things that are meant to help stop candidate’s overgrowth. We also make our own kefir and she drinks that every day.
The old blood test didn’t give a range for the free T4 just says 11.5pmol/L
She is legally entitled to printed copies of her blood test results and ranges.
The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results
UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.
This currently only applies in England, not across the whole of the UK. Nether Scotland nor N.Ireland have released an NHS app for patients. (Scotland supposedly due in December '24.) Wales has an app, but only for booking appointments, repeat prescriptions and amending personal details
Calcium is tightly controlled in the body, but it's done by the Parathyroid, not the Thyroid. Although it's essentially part of the Thyroid, I don't believe the parafollicular cells are attacked by the immune system with Hashimotos.
High copper is a common finding in people with thyroid disease. And anyone with high copper is likely to have low zinc, because zinc and copper compete for absorption. So, it would be a good idea to get zinc tested as well, if possible.
If your daughter does have low zinc then treating it with zinc supplements should also reduce copper.
Magnesium testing is rather pointless because the results are not reliable. Only about 1% of the body's magnesium is found in the blood. The rest is found in soft tissue, muscle, and bone. Although only a small amount of magnesium is found in the blood it is important, and if it runs low it will be stolen from the soft tissue, muscle, and bone. So it is very rare for magnesium in the blood to be low but it could easily be low in other places where it is never measured.
If someone eats a diet with plenty of magnesium or supplements it, the body will excrete any excess via the kidneys, as long as the kidneys are functional. So as long as the kidneys are healthy enough to deal with excess magnesium it is suggested that most people should supplement magnesium.
To see where the body's magnesium can be found, see Table 2 in this link :
Anyone with thyroid problems needs to test their iron and ferritin (iron stores). Low levels of iron/ferritin are extremely common amongst women, and anyone with thyroid disease.
Ideally iron should be tested with an iron panel. If ferritin is tested alone it may look fine but, behind the scenes, serum iron could be anywhere from low to "normal" to high. People with low ferritin and high iron have sometimes found that supplementing iron just increases their serum iron even further, and that is not desirable because excess iron can be deposited in the internal organs.
Your daughter's doctor may do an iron panel when asked, if you are lucky. To do an iron panel privately there is this one :
she is on the contraceptive pill. I’m. It sure which one though. I know one wasn’t great I think that was the progesterone only one and really increased her blood pressure.
She finally seems a bit better in this area after starting a new pill 6 mth ago. Had an mri recently which showed nothing worrying . She had been bleeding for 20 days out of 30 and suffering lots of pain _ hence mri but this had all settled.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Could these test results explain multiple miscarriages?
Help, feeling so despondent.
Seeking advice for my mother. Is there any link among Hashimoto thyroid, B12 deficiency and mutation of the gene JAK2?
Hi, concerned my daughter may have underactive thyroid, even if mild!
B12 deficiency normal level after b12 supplements from gp but symptoms still persist
