FT4 & Cystatin C high: I’ve been trying to get to... - Thyroid UK

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FT4 & Cystatin C high

Slinkyxx profile image
10 Replies

I’ve been trying to get to the bottom of some horrible symptoms (dizziness, weakness, fatigue, feeling jittery, brain fog) and have resorted to a private blood test as not getting anywhere with GP.

test shows high FT4 under thyroid section and high cystatin C under kidney section (which I believe is linked to high FT4).

I do take a number of dietary supplements- multivitamin, B12, iron, ginkgo biloba and lavender. Anyone know if these might be causing the high FT4, just so I’m armed with info when I speak with my GP.

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Slinkyxx
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Jaydee1507 profile image
Jaydee1507Administrator

Welcome to the group. If you could complete your profile it helps members understand your thyroid journey so far and be able to advise you better. Click on your image icon to start. Fill out the free text box at the top.

Can you share all of the thyroid results - TSH, FT4 & FT3, also include the reference range, numbers in brackets after your result.

Did you also hve thyroid antibodies tested - TPO & Tg?

Exactly what were the vitamin results?

Slinkyxx profile image
Slinkyxx in reply toJaydee1507

FT4 is 22.6 (>21.6 deemed high)

FT3 is normal

Thyroid results
Slinkyxx profile image
Slinkyxx in reply toSlinkyxx

TPO & Tg also normal

Jaydee1507 profile image
Jaydee1507Administrator in reply toSlinkyxx

Thats a strange result and on this test your antibodies were negative. They may change so worth retesting in 3-4 months.

What time of day was the test taken? TSH varies throughout the day and is highest at 9am or earlier when its recommeded to test.

Did you also get the vitamins tested?

Have you been proven to need an iron supplement in the past?

How much and what type of B12 do you take?

Slinkyxx profile image
Slinkyxx

Cystatin C 1.15 (>1.05 deemed high)

Kidney test result
Slinkyxx profile image
Slinkyxx in reply toSlinkyxx

page 2

Blood count
Slinkyxx profile image
Slinkyxx in reply toSlinkyxx

iron count

Iron level
Slinkyxx profile image
Slinkyxx

thank you. 50mg cyanocobalamin for B12 and 210mg ferrous fumarate for iron.

Test was done at 2:30pm in the afternoon.

Vitamins weren’t tested, but I’ll upload the blood and iron levels too.

I’ve had countless tests with low hemoglobin, but GP says fine. It’s just such a battle to get to the bottom of my symptoms.

I started HRT patch earlier this year too.

Slinkyxx profile image
Slinkyxx

page 1

Blood count
Jaydee1507 profile image
Jaydee1507Administrator

Did you get your B12, folate & vit D tested too?

Are you vegan or vegetarian?

50mg B12 is a low dose & cyanocobalmin is the inactive form. Better to take methylcobalmin which is ready for your body to use more easily.

I'd suggest a good methyl B complex which would include folate as well.

B complex suggestions: Slightly cheaper options with inactive B6:

amazon.co.uk/Liposomal-Soft...

Contains B6 as P5P an active form:

bigvits.co.uk/thorne-resear...

healf.com/products/basic-b-...

Explanation about the different forms of B6:

helvella.blogspot.com/p/hel...

B complex comparison spreadsheet:

healthunlocked.com/thyroidu...

Ref your thyroid results, firstly your TSH would have been higher had you tested earlier in the day, so next time you test do so at 9am or before, fasting & stop B complex 4-7 days max before as it can affect results.

You cant be hyperthyroid as TSH is within range although higher than I would expect to see in an average person. Retest in 3-4 months as described.

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