Graves - Carbimazole - Joint Pain

[nooneimportant]

Hopefully just a quick one - I have always had a lot of joint pain since taking Carbimazole but recently it's got a lot worse and my end and GP don't really care about medication side effects, they're all about number, if I'm being honest.

I take 5mg every other day as I gave up cutting up those tiny b!tch ass pink pills 😂 the trouble I'm having, is not just the long list of horrendous side effects from this medication (I appear to have experience every damn one of them at some point 🤬), but the joint pain has gotten worse - I.e. the pain I experience in my right elbow is nearly bringing me to tears in a morning (probably just being mardy but damn it hurts) I can't take Ibuprofen etc as that has always upset my stomach (really do avoid it at all costs and have done for many many years) paracetamol doesn't appear to do a lot and I'm not one for taking pain relief anyway, weight bearing exercise makes it worse ☹️ .... any suggestions apart from beating the inventors of this medication with my good arm??

[humanbean]

Is your Vitamin D optimal? Low levels can cause joint pain.

And there are lots of articles offering other suggestions.

1) healthline.com/health/joint...

2) goodhousekeeping.com/health...

3) verywellhealth.com/vitamins...

It would be worthwhile to compare the joint lists with the ones for good thyroid health :

4) thyroiduk.org/role-of-vitam...

For example, Vitamin A appears in lists 3 and 4. If having thyroid disease increases your risk of being low in vitamin A, and it is recommended for joints as well, it is probably a good one to try a bottle of. Beta carotene is often sold as vitamin A, but in reality it is a provitamin i.e. it is a raw ingredient for vitamin A but isn't real vitamin A. Try to avoid things that need converting from one form to another. People with thyroid disease often aren't very good with conversion.

"Real" Vitamin A is called retinol or retinyl. Beware of overdoing it and ending up with Vitamin A toxicity.

en.wikipedia.org/wiki/Vitam...

en.wikipedia.org/wiki/Hyper...

[nooneimportant in reply to humanbean]

Good Morning - Vit D defo optimal as I need to take that anyway as I have PolyMorphic Light Eruption and have to avoid the sun .... all vit tests come back pretty good and I've only had the joint pain since taking Carbimazole so I "think" I'm pretty sure it' that, that is causing it .... I'll hunt around the articles for suggestions

[HealthStarDust in reply to nooneimportant]

If you are sure it’s the carbimaze, it may be worth trailing a different brand.

I don’t think you are alone in experiencing this effect.

[nooneimportant in reply to HealthStarDust]

I didn't even know there were different brands - just comes in a brown bottle - nothing with it anymore - sometimes small pink pills sometimes larger white ones :/

[HealthStarDust]

CBD.

[nooneimportant in reply to HealthStarDust]

Thank you - I think I am meant to take that as a Graves patients? but I might be wrong ... I do avoid it because I think I read somewhere that it's not good for us Graves people ie it messes with something ...

[HealthStarDust in reply to nooneimportant]

Everyone’s experience is different.

[AKatieD]

Not sure if this is relevant for you but HRT was the thing that fixed my osteoarthritis

[nooneimportant in reply to AKatieD]

That’s amazing stuff I believe - I’m so glad it’s helped you 🙂

Unfortunately though even if I were menopausal I can’t have it - I have insanely high breast cancer risk and as it’s hormonal responsive HRT is most defo off the menu 😞

[AKatieD]

Sorry to hear that

[Sunshrine]

Hi nooneimportant,

All I can suggest is you look into thebigfatchallenge.com for a start and a carnivore diet which helps many many autoimune issues. Hopefully you may find a usefull aproach to your problems.

Also look into using Iodine. As per usual there is a lot of info out there to plough through for anyones specific problems, but we are all deficient in iodine and it can help remove many toxins form the body including bromine and cadmium (to name the worst) which both cause us to be very unwell. This is possibly your only choice like me if you want to avoid the GP's Big Pharma pills and potions. You have to get to grips with trials and errors with these things on your own. Cos most people no nothing about health apart from what the "Experts" tell us (Who generally work for BP) and they only have intrest in their pockets and their presteige.

Endo's, GP,s etc; do not give you all the advice for your problems that is available. They will steer you towards BP drugs. So start looking elsewhere.

[nooneimportant in reply to Sunshrine]

Hello Sunshine

I try not to engage in the latest fad diets to be honest and just keep to clean organic eating where possible.

I would also always have my bloods checked prior to administering supplementation - especially as those of us with Graves Disease as we have a tendency to suck up iodine quite well, and therefore are advised to avoid too much of it.

I personally believe there is a place for both alternative and conventional medicine and they can run productively along side each other - in the UK I find that Drs have had a tendency to become arrogant and not listen to patients experiences, thus simply relying on what is deemed as "normal" results and conducting data analysis rather than using the "reference" range to help steer them as guidance towards the best outcome for the patient.

Thank you for your comment though and I hope you gain the outcome you're looking for within your own health journey