test result gluten: coeliac test came back fine... - Thyroid UK

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Prosecco1997 profile image
9 Replies

coeliac test came back fine , so can I still have gluten with hashimotos?

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Prosecco1997
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RedApple profile image
RedAppleAdministrator

Prosecco1997, Having Hashimotos does not automatically mean you must eat gluten free. Some people do find this beneficial, even if they have a negative coeliac test. But many people can eat gluten with out a problem. So if you've not felt any improvement by being gluten free, go ahead and enjoy 'proper' bread and cakes 😀

SlowDragon profile image
SlowDragonAdministrator

presumably you haven’t yet cut gluten out if only just been tested for coeliac

Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential

A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

pubmed.ncbi.nlm.nih.gov/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial

With loads of vegan dairy alternatives these days it’s not as difficult as in the past

Post discussing gluten

healthunlocked.com/thyroidu...

RedApple profile image
RedAppleAdministrator in reply to SlowDragon

SlowDragon , where does the 81% come from? It concerns me that many people get the wrong idea and think that as they have autoimmune thyroid disease they *have to be* gluten free. Even if it helps for a while, it's not necessarily a life long commitment.

SlowDragon profile image
SlowDragonAdministrator in reply to RedApple

Lots of research papers show these sort of percentages

Obviously not necessary for everyone to be gluten free but many people with Hashimoto’s (or Graves) are surprised when they trial gluten free that gluten does seem to be an issue for them

As you say….might not need to give it up permanently

RedApple profile image
RedAppleAdministrator in reply to SlowDragon

It would be helpful to know exactly what symptoms are relieved for these patients (which by default are a select group anyway). Simply 'feeling better' can be psychological!

Even today, gluten free foods can be more expensive, so by continually promoting this, we may be unintentionally helping to boost the profits of businesses who specialise in these products.

Sparklingsunshine profile image
Sparklingsunshine in reply to RedApple

If I remember rightly you used to be able to get gluten free foods on NHS, which always seemed a bit mad. Plenty of people have food intolerances and allergies but dont get substitutes via NHS. I think it was stopped a few years ago.

I have IBS and although not coeliac I found giving up bread, pasta and other carb heavy foods helped my IBS a lot. Its not a requirement to eat bread and pasta, gluten free or otherwise. It might be nice but there are plenty of alternatives that are a lot cheaper and healthier.

Just my two penneth. I recently found a really good gluten free recipe site for my son's partner who cant eat much gluten.

RedApple profile image
RedAppleAdministrator in reply to Sparklingsunshine

Free GF foods haven't been available on prescription for many years now. If I recall correctly, it was started decades ago, when coeliac disease was a relatively new (and at the time, rare) diagnosis, and GF foods were extremely rare. These days, as you say, there are plenty of alternatives available.

RedApple profile image
RedAppleAdministrator in reply to Sparklingsunshine

Sparklingsunshine ' Its not a requirement to eat bread and pasta, gluten free or otherwise.'

Very true. However, it's worth noting that a diet that's too low in carbs can be a cause of insomnia, so may not be beneficial to drastically cut down carbs in general. Just be cautious about how you get your carbs :)

[Edit] I probably should also clarify that too many carbs in the daytime can cause daytime drowsiness and lethargy too! It's a case of finding your own personal balance. As we say so frequently here, what works for one won't necessarily work for another.

Sparklingsunshine profile image
Sparklingsunshine in reply to RedApple

I used to eat low carb, no bread, rice, pasta, biscuits, potatoes etc. Mainly getting carbs from fruit and veg or a small bowl of porridge before going to the gym. But I'm more relaxed about carbs these days. It was mainly to help with weight loss and to calm IBS.

I still avoid pasta and stodgy carbs as these affect my digestion, but I dont turn my nose up at the odd piece of bread or some egg fried rice on occasion 😄. I also know low carb can affect conversion in hypo patients.

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