So if you read my recent post it was referring to my New Horizon blood results.You guys were fantastic and gave me lots of advice which is appreciated.
However for the second time in 2 months I've just been turned down for the second time with my request based on how I'm feeling for an increase in Levothyroxine (currently on 100mg)
Previously my TSH was 1.4 (see posted blood results) and everyone here said the sweets spot was on or just under 1.
She has taken bloods again today and said she'd let me know but I'd they were inside their normal parameters then I definitely would not be getting an increase.
She then went on to say that if that was the case they'd look at depression etc as a reason for why I feel so bad.
I'm at the end of my tether with this.
I also asked for a referral to a consultant endo and that's a maybe "we will see"
I'm not sure what else I can do. I tried talking about the chap who created the formula they use in GP practices (someone here gave me the link) and that maybe it wasn't being used properly.. Needless to say that didn't go down well.
She then went on to tell me to stay away from forums, Google and the Internet as GPs know best.
Kind regards
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Totoro25
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Hello, I think like many of us you've reached the limits of working with your GP on thyroid care. Most if them think if your TSH is in range then you're all good!You can try changing to another GP at your surgery or you can try going privately to see a specialist GP or Endocrinologist. You'll find a recommended list on the Thyroid UK website
Your GP has fallen back on the old depression trope. Its just my opinion but dont everbe fobbed off with a depression diagnosis, and that's exactly what it is, until you've been comprehensively tested for everything physical. Its lazy, piss poor medicine.
Its their woeful lack of knowledge and lack of willingness to educate themselves and keep upto date with the latest guidelines that is the issue, plus a lackmof humikity and a lot of arrogance. Not a recipe for success or happy patients.
Thyroid UK is where the NHS tells thyroid patients to go,maybe point that out. I'd also be tempted to say that forums like this wouldnt be necessary if doctors did a better job of treating thyroid disorders.
She sounds dreadfully patronising. I know I often sound anti GP and tbf there are some good ones out there, but time and again we hear of really bad ones, who are more interested in telling you you have anxiety, depression, which incidentally they treat via symptoms, not diagnostic tests.
So they can accept symptoms when it suits them. Or they try and tell you you have Fibro, menopause or CFS ( not men obviously 😁). It just makes me very angry. Sounds to me like she feels threatened by a well informed patient, which is never a good sign.
If you go and look at the link referring to "Patient forums" they just link to a few patient groups on Facebook - and none of them are about hypothyroidism.
She has taken bloods again today and said she'd let me know but I'd they were inside their normal parameters then I definitely would not be getting an increase.
Was test early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
GP unlikely to test more than TSH
If that’s so
as your last test via Blue Horizon was now 3 months ago …..time to retest
See how vitamin D has improved
And where Ft4 and Ft3 levels are
Once you have new results……assuming Ft4 and Ft3 not optimal
book a consultation with thyroid specialist
Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists
Ideally choose an endocrinologist to see privately initially and who also does NHS consultations
You could try the shoe analogy on her if your results are within her ranges - if she wears size 5 shoes (the average) would she be comfortable in size 2, or would that be unconfortable? Would it make her life harder?
I was diagnosed with PTSD following a medical accident which ended up with me on life support. I knew this was not the case and only when I had a massive goutre and a TSH above 20 was I diagnosed. I was never on the right dose of Levo but did not know enough to fight them. Then I came across this forum, now on NDT and feel OK for an old bat.
I told my GP if he did not up my dose, I would buy it off the internet. That worried him and he upped the dose (not enough) so that may be worth trying - it shows how desperate you are to feel well. Good luck!
This is the big problem with some, not all gps who think they know best🙄 mine did the same for years saying all my symptoms were menopausal related, they were actually hyperthyroid related [ graves disease], because of my gps inability to diagnose me I went on to loose my thyroid 😡
Did he apologise...did he flip totally arrogant gp
But weirdly enough I was watching a crime programme about a gentleman who started to feel very unwell [ in America not England] he did have a very stressful job but had been managing it relatively well for several years, he was a family man 2 twin boys both himself and his wife managed there real estate business in florida.
He had all the symptoms of an underactive thyroid, he'd put on a lot of weight was very fatigue his lost his hair especially under his arms, and that's usually very noticeable for a man, both he and his wife attend a doctors clinic in there area the doctor took bloods then told him he was borderline hypothyroid but not enough to require any thyroid hormone treatment. 🤦♀️
He did however say you are very stressed after this gentleman told the doctor his symptoms and he pescribed him antidepressants 🤦♀️
He took these which made no difference and went back to the clinic the doctor never brought up hypothyroidism again , but dully went on to pescribe another anti depressant.
Upshot [ excuse the pun] the hypothyroidism just got worse and the antidepressants he was talking had a detrimental effect on his mental health I'm sorry to say this poor man went on to shoot his wife and twin boys to death😔 after his arrest he was taken to hospital because he was in what the arresting officer said was a stuper, the officer actually thought he was very drunk...no he was not , but his thyroid Pannal was awful TSH was off the charts as were his Ts.
Just one lesson I feel doctors and specialist should learn , if a thyroid condition is ignored it truly can have serious outcomes for some people, but it seems doctors and specialist don't really take thyroid conditions seriously enough 😡putting patients at very real risk.
My gp tried the old antidepressants on me..I told him what he was doing by not actually finding out why I felt so ill was depressing me , and it just required the correct diagnosis, as I say he never diagnosed me.. another gp did but how many horror stories do we see on here of people who clearly need help and see there gp / specialist but get turned away because they haven't reached the nhs golden TSH level truly awful treatment 😡😡😡
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At the end of my tether :-(
Update on my frustrations with my Doctor 
Supressed TSH and end of tether
My wee girl update
