cortisol blood test very high

[Masjntt]

Hi

I have a history on endocrine conditions

Under active thyroid, PCOS, diabetes type 2

I have a moon face and asked GP for a private cortisol test which they refused

I paid for a private one and my results are way above range - gp is now liaising with hospital endocrinology team for advice and next steps

Can anyone give me any indication as to what to expect test / result wise from here please ?

Lab reference was 166-507

My result was 1719

thanks x

[greygoose]

Was this a blood test or saliva? What time of day was it done?

I imagine they will test you for Cushing's but I'm not sure how that's done.

[Masjntt in reply to greygoose]

Thank you. - sorry it was a blood test done at 9am xx The private blood testing company recommends that gp tests further for Cushings I just wasn’t sure what other tests there were etc

[greygoose in reply to Masjntt]

Well, there's also a 24 hour cortisol saliva test, but you won't get that on the NHS. If you can, it might be an idea to do that, along with a DHEA test, just to make sure the blood test is correct, because that result is very high. But, your doctor should organise the test for Cushing's.

[Rollercoaster44 in reply to Masjntt]

when they were testing me years ago due to adrenal issues I had further blood tests (some of which had to be done at the hospital as they were time and temperature sensitive) I also had to do several 24hr urine collection samples plus for me they did also did some scans. Hope you get sorted soon.

[Masjntt]

thank you both - repeat blood cortisol came back as normal at 481. Still awaiting 24 urine results. Get impression GP is happy to rule out Cushings as this result was in normal range 😔