T3 trial

[Pastelart]

I’ve been fortunate to have been given a trial of T3 on the NHS 😊👏🏼 The pharmacy weren’t able to supply immediately, as they had to order it in.

What can I expect, health wise in the next few weeks? Does it have a dramatic effect, or does it take months for any noticeable changes ?

I understand that everyone is different, but wanted some feedback from this wonderful community.

[Jaydee1507 Administrator]

Well done!

You will possibly notice a difference in the first few days. My brain worked better almost immediately. Full benefits will build up gradually over a few weeks to months.

What has your Endo prescribed - dose? How much Levo have you been asked to drop?

Its recommended to only start with 5mcgs for a few weeks until you know you feel OK with that and then add a further 5 mcgs as a second dose later in the day - late afternoon.

Starting on too much right away can cause intolerance and some nasty symptoms.

I see you had some low vitamin levels some months ago. Are you now supplementing these to optimal?

What supplements are you taking?

[Pastelart in reply to Jaydee1507]

Hello Jaydee1507

I’m on 112.5 levothyroxine at the moment, but to be reduced to 75mcg when I start the T3 dose which is 5mcg twice daily.

I’m taking iron tablets, have recently stopped taking vitamin d.

I’ve had every blood test available to rule out other causes of my symptoms and all, apart from low vitamin d, are normal.

I can’t wait to start my trial, hopefully tomorrow 🤞

[TiggerMe in reply to Pastelart]

That's a big drop in T4!! Are you very high in range for fT4?

Stick with the rule 'only change one thing at a time' I wouldn't drop your T4 dose until after your first blood test after adding T3 as it can drop your fT4 quite significantly

I'll pm you 😉

[tattybogle]

experiences of some who have just started : healthunlocked.com/thyroidu...

[Pastelart in reply to tattybogle]

Thank you tattybogle 😊

[SovietSong]

I agree with the others,start off slow with T3 maybe 5mcg first thing with your levo.Its much more potent than levo and the symptoms of too much T3 are not good.I also wouldn't drop levo too much to begin with.A daily drop of 37.5 is quite a chunk.I felt a big difference within minutes of adding T3.The brain fog I had suffered more or less for two years lifted almost immediately.I started on 6.25mcg daily and have stayed at that dose.My T3 went from 50% to over 80%. Best of luck,hope it does the trick for you.

[Pastelart in reply to SovietSong]

Very encouraging, thank you SovietSong 😊

[Georgie2386]

Hi

Can I please ask which NHS Authority has prescribed T3? Hope it helps you.

[TiggerMe in reply to Georgie2386]

Gloucestershire

[Pastelart in reply to Georgie2386]

Me too Georgie 2386 and I see that Trigger Me has answered your question, but you’re welcome to pm me for further information 😊

[Lily905]

Congratulations 🎉

Everyone is different with their T3 absorption. I take my full dose of T3 first thing in the morning with two coffees & no food. About 20 minutes after I've taken my T3 I feel my brain ping because my T3 is in my system & working.

[Pastelart in reply to Lily905]

Oh wow, I’m so hoping that it will happen for me. Thank you Lily905

[Lily905 in reply to Pastelart]

I hope so too

[Jgoodwin977]

can i join the trial? Is it based on the area you live in? I’m in south London and my doctor said he can’t get to, so would be great to get your incite on what you did. Many thanks

[TiggerMe in reply to Jgoodwin977]

You'd need an Endo referral as GP's can't prescribe T3 but you need to request the referral... thyroiduk.org/contact-us/ge...

[Jgoodwin977 in reply to TiggerMe]

yes, that’s what I’m in the process of doing, but just incase the endoc doesn’t know about it, I was wondering how I went about it? The link sent is for a List of Private GPs and Practitioners, but I have a consultant at St George’s hospital in tooting. Many thanks

[TiggerMe in reply to Jgoodwin977]

You'd hope a Consultant would be up to speed but some are totally anti T3 😕

Just looking at your most recent results and you are certainly under replaced at the moment, how much T4 are you on?

[Jgoodwin977 in reply to TiggerMe]

my tsh had gone up to 5.6 with my t3/4 on the lower end. I’m not on any medication currently, but my conversion from t4 to t3 is low, so if things continue to get worse then I thought it would be better to just get a direct source. I’m not keen on just taking t4 on its own

[TiggerMe in reply to Jgoodwin977]

Sorry, we are confusing Pastelart by hijacking her thread

T4 is always the best place to start

[Pastelart in reply to TiggerMe]

112.5mcg 😖

[Pastelart in reply to Pastelart]

Sorry, question wasn’t for me!

[Pastelart in reply to Jgoodwin977]

You could always go private if you’re able.