Mornings are torture. Racing heart first thing ... - Thyroid UK

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Mornings are torture. Racing heart first thing every single morning & exhausted (Hypo)?

FoxyTed profile image
17 Replies

Hi and thanks for any help!

I am so unsure and worried what is going on. Can these be symptoms of hypo? It’s just I read these are more related to Hyper? but my bloods def are not showing hyper. I wasn’t too bad after I began 50mcg T4, then I increased to 62.5 as 75 felt too big a jump and I’m on 62.5 now 4 weeks. I have to take a proprananol 40mg to help and sometimes a diazepam to settle body. Heart rate calms as day goes on but it’s never low. I am not anxious but this, pulsatile tinnitus and headaches everyday is so hard to cope with and I’m so sensitive to any hormone change. Please tell me this can get better, it’s been 3 years now though thyroid treatment began this year privately.

April results (on 50mcg T4)

TSH 1.89 (0.27-4.2

FT3 3.7 (3.1-6.8

FT4 16 (12-22

TGA 15.6 (0-115

TPA 17.7 (0-34

Most evenings are better and I can feel normal.

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FoxyTed profile image
FoxyTed
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17 Replies
greygoose profile image
greygoose

Sounds like you have low early morning cortisol. I expect your adrenals are fatigued. It wouldn't be surprising with that low FT3! Your conversion is poor, but that's probably down to the proprananol, which is known to negatively affect conversion. Can you not get a different Beta Blocker prescribed?

And it's probably time you went up to 75 mcg levo, anyway. There's such a thing as increasing too slowly, which doesn't do you any favours, either.

And how are your nutrients: vit D, vit B12, folate and ferritin? They all need to be optimal for all this to come together. :)

FoxyTed profile image
FoxyTed in reply to greygoose

Thanks GG, these were my cortisol results June. They appear ok? What do you think please?

Yes I think it’s low T3 but I couldn’t tolerate it and on here advice was it was added too early on.

Could upping my T4 help and can one feel worse before better?

I tried adrenal cortex and felt worse!

CORTISOL - WAKING

< 20.3 R

18.4

nmol/L

CORTISOL - 12:00

1.6 - 5.6 R

8.25

nmol/L

CORTISOL - 16:00

< 6.94 R

2.79

nmol/L

CORTISOL - BEFORE BED

< 7.56 R

<1.5

nmol/L

Many thanks

greygoose profile image
greygoose in reply to FoxyTed

Well, I didn't suggest you add T3, I suggested you change your Beta Blocker to one that doesn't affect conversion. Your conversion would probably improve.

Your cortisol levels do seem fine but that was in June. I don't know how quickly they can drop, but living with that low FT3 is not going to do them any good.

How about your nutrients?

FoxyTed profile image
FoxyTed in reply to greygoose

GG iv not been on proprananol that long and my T3 was low whilst I wasn’t on it. I can try and manage without it. Things seem to get worse when I increase T4 - anxiety up, that’s why I went to 62.5. I’m feeling trapped by it all, I’m afraid. Would things eventually settle down if I increase to 75 do you think?

I had that cortisol test done as my functional doctor advised A cortex but it only increased anxiety.

Would it help any if I took the 25mcg T4 before bedtime?

Tks

greygoose profile image
greygoose in reply to FoxyTed

Would things eventually settle down if I increase to 75 do you think?

Possible. But no-one can know in advance. You'll have to try it and see.

Would things eventually settle down if I increase to 75 do you think?

Well, it would, with those cortisol levels. Be very wary of what functional doctors 'advise'.

Would it help any if I took the 25mcg T4 before bedtime?

It might. But, once again, you'd have to try it to find out. We can't guess these things, we have to find our way by trial and error.

Nutrient levels?

FoxyTed profile image
FoxyTed in reply to greygoose

Thanks GG yes I get that I will only know by trying.

Nutrient levels will be carried out soon. They were all good but that test was Jan.

arTistapple profile image
arTistapple

FoxyTed I have seen you acknowledge quite a few of my posts and I can see why. HR etc. greygoose gives you a really good starting point. I do have lower than optimum cortisol but found recommended adrenal support made things a bit worse for me (too edgy) BUT it’s a necessary step to check if this is your situation.

That’s the first thing I would study applying it to yourself. I found Vit A,Cand E more helpful than ‘adrenal support’ so try that, perhaps even before adrenal support in case that confounds things further.

FallingInReverse profile image
FallingInReverse in reply to arTistapple

How much A, C, and E do you take - and do you test for them too to check levels ?

arTistapple profile image
arTistapple in reply to FallingInReverse

Thanks FallingInReverse. Vit A (beta-carotene 1500ug from 9mg). Vit C 150 mg (Dr Myhill recommends to bowel tolerance and it took me a while to recognise that it was upsetting my bowel at over 200mg) so reduced it to 150. Might try to increase it later. Vit E 430IU. Have not particularly pinpointed improvement as such but reducing the Vit C definitely helped.

Really too many other issues to attend to but as this is NOT upsetting anything I am sticking with it.

arTistapple profile image
arTistapple in reply to FallingInReverse

Oops forgot to say. The amount of supplementation is pretty standard and the fact that I don’t think I am getting any bad effects, I have not checked levels.

Always get my D checked but from what I can see it’s not all that easy to overdo it but obviously checking is a good idea.

My problem definitely Low T3. Lots of ‘preparation’ still ongoing.

FoxyTed profile image
FoxyTed in reply to arTistapple

Hi Tist, I tried adrenal cortex and felt worse. If you see my cortisol results they look ok so I’m lost, it must be the T3. How does A, C and E help please?

arTistapple profile image
arTistapple

Agree on the adrenal cortex. These vitamins are recommended by Dr Myhill. Not everything of hers agrees with me. Constant (but enough space to check) attempts at finding my triggers for fast HR. At the moment my big suspect is hypoglycaemic issues. It’s my ‘belief’ that my brief foray with T3 re-sensitised my body to its issues with sugar. My T2D diagnosis was ‘rescinded’ but my body is definitely still reacting - which it was NOT when my diagnosis for T2D was actually in place. Perhaps a case of the blood tests again lagging behind the actual happenings in the body - just like it can be with our thyroid levels - TSH in particular.

Remember hyper symptoms can equally be hypo symptoms. So as greygoose suggests you might still benefit from a further increase of Levo. You can only try.

At 75 mcg Levo my pulsatile tinnitus kicked in. My theory is that, for me, that’s exactly where I should have gone for T3 instead of more Levo but I may never know.

FoxyTed profile image
FoxyTed in reply to arTistapple

So Tis remind me of what you are on now re thyroid hormones?

SlowDragon profile image
SlowDragonAdministrator

Free T4 (fT4) 16 pmol/L (12 - 22) 

Ft4 only 40.0% through range

Free T3 (fT3) 3.7 pmol/L (3.1 - 6.8)

Ft3 only 16.2% through range

Shows your body is desperate for next increase in levothyroxine

Up to 75mcg

Retest in another 2-3 months

Looking to eventually be on high enough dose to get Ft4 and Ft3 at least 60% through range minimum

Which brand levothyroxine are you taking

Propranolol will significantly reduce uptake and conversion of levothyroxine

You can not suddenly stop propranolol. Must be reduced very slowly ….max 5mg …..wait 4 weeks. Drop further 5mg etc etc.

I was stuck on propranolol at 40mg 20 years. More on my profile as to why/how eventually got off it

Getting dose levo increased essential

What are most recent vitamin D, folate, ferritin and B12 levels

All four vitamins tested and at GOOD levels

What vitamin supplements are you taking

Propranolol lowers magnesium

Gluten free diet may help improve absorption too

FoxyTed profile image
FoxyTed in reply to SlowDragon

Thanks Slow, I am taking Eltroxine Mercury. I have 50s and 25s - Do you think I could try taking the extra 25 T4 before bed? I so want to increase it to 75 but can it be rocky for a while? Im not that long on the proprananol and yes I can decrease slowly to be honest it doesn’t seem to help much anyway.

I haven’t had recent vitamin bloods done since Jan all was good , I do have another kit but was waiting to get it done when on the 75 T4 a while as the test includes thyroid.

I am taking seeking health MF b complex, zinc, Vit d, Vit c, magnesium glycinate and good quality fish oil. Almost GF except an odd pudding. My diet is healthy.

Can this happen when one increases T4 that anxiety levels increase? This is my main issue mostly mornings.

Thank you as always

tattybogle profile image
tattybogle

but those results were from april when taking 50mcg .......since then you have had some failed T3 adventures, and are now taking 62.5mcg but only for 4 wks , so i think you need to wait a couple more weeks and test after you have been on 62.5mcg levo only for at least 6 wks , to see where you are now.

also , do bear in mind that it takes at least 6 wks to know how any dose will feel once things have settled. 4/5wks is too soon to tell what 62.5mcg will feel like.

FoxyTed profile image
FoxyTed in reply to tattybogle

Tks Tatty, it’s so hard as we all find and it’s a journey of trial and error. I’m pleased to read you say it’s too early to tell what the 62.5 will feel like as I keep worrying is it only me!! having these wobbles adjusting stuff☹️

I need to come on here to get some help to get me through.

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