Recommendations for private consultant and thou... - Thyroid UK

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Recommendations for private consultant and thoughts on Hashimotos & pregnancy / miscarriages

Purple1456 profile image
7 Replies

hi all,

recently seen an endocrinologist privately who had diagnosed Hashimotos (high TPO and inflammation on thyroid on ultrasound). Minimal symptoms apart from 2 miscarriages

I’ve tried levothyroxine which made me feel very unwell for about 2 months and her only suggestion was to try a different brand.

have read a lot around gluten & dairy free diet which I am already doing.

Considering getting a second opinion privately so would appreciate any suggestions of good consultants to see please (private message pls as per my understanding of the rules of the group). Equally to ask if anyone has seen Dr Conway at the Thyroid Clinic?

Finally any thoughts of Hashimotos during pregnancy and the need to take levo would be very much appreciated

thank you ☺️

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7 Replies
SlowDragon profile image
SlowDragonAdministrator

welcome to the forum

I’ve tried levothyroxine which made me feel very unwell for about 2 months and her only suggestion was to try a different brand.

How much and which brand

Are you currently taking any Levo

What are your most recent thyroid and vitamin results

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

Low iron/ferritin can cause miscarriages

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

HealthStarDust profile image
HealthStarDust

You may be better off with a fertility clinic. But, equally, if you do have a suggestion for an endocrinologist who also specialises in pregnancy please do message me as I’d be interested too.

Sorry about your losses.

A bit like Levothyroxine, I think when it comes to endocrinologists or any consultant for that matter, it’s all a bit trial and error.

By the way, lots of people consider LDN to reduce antibodies preconception as there is some theory that reducing the TPOs may help.

helvella profile image
helvellaAdministratorThyroid UK in reply to HealthStarDust

Reply has been edited to make it conform to guideline 30.

Forum Posting Guidelines

healthunlocked.com/thyroidu...

30. Do not post information about specific endocrinologists or doctors on the main board without their permission as this may result in unwanted attention from certain areas of the medical profession. If you wish to discuss a particular endocrinologist or doctor, you may mention his/her name and location, providing that you ask for comments by private message only.

HealthStarDust profile image
HealthStarDust

Slowlaura199 perhaps can help you with this.

klr31 profile image
klr31

You will need to address your thyroid levels in order to have a successful pregnancy, I believe. Trying a different brand is a sensible first step.

helvella profile image
helvellaAdministratorThyroid UK

It is usual for posts asking for information about doctors to be closed so that prevents naming and opinions of specific doctors.

It is OK to ask about a specific doctor - as you have done. But replies about that doctor need to be by Private Message.

However, as your post asks much more, I'll leave it open. But if anyone mentions other doctors or provides opinions on the named named, the reply will be edited or deleted.

helvella profile image
helvellaAdministratorThyroid UK

We have had too many members who have related their stories regarding fertility clinics.

Often thyroid testing is about the last thing they do. And they tend to simply use TSH being below 2.5 (or something like that). Very unimpressed.

If you intend to contact a fertility clinic, please make sure right at the start what is their attitude towards thyroid.

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