Question about Leothyronine

[MissWilliams]

I haven't posted for a while as it has taken over six years to get a diagnosis of endometriosis for my daughter and I have been absorbed by her condition rather than my own !!!Whats going on with the health services I ask myself

However I need to try and sort myself out now. So the last post revealed a low T3 score so it would therefore be beneficial to source a private endocrinologist as the GP will not deal with the results that I had stating that the levels are in the normal range for T4. So I found a local chemist who stocks leothyronine so how can I get a prescription?

Any advice gladly appreciated. I became gluten free and avoided dairy and saw some benefits but no weight loss and so so tired. How can i increase my energy???But itching skin stopped which was great.The other thing I noticed is I have no joy!I really don't care and I have walked out of several situations stating : "I simply don't have time for this nonsense"P😬eople are amazed at my new expressions of disdain but it is not normal for me. I just simply cannot be bothered anymore. Does this strike a chord with anyone out there?

Thanks in advance

[GlowCoach Administrator]

Firstly its recommended to make sure that all key vitamins are at optimal levels.

What are your most recent vitamin results and what are you supplementing with?

Its not called levothyronine, its Liothyronine.

You could email [e-mail] for a list of T3 friendly Endo's or contact Roseway pharmacy for an appointment with their prescriber.

[MissWilliams in reply to GlowCoach]

Ah I realise now I misspelt it! Thank you for that. I will try to get some tests done for the key vitamins too.

[helvella in reply to MissWilliams]

helvella - Editing HealthUnlocked Posts/Replies

Having read a post or reply you have made, I wonder if you realise that you can edit (or delete) any posts or responses you have made here. That means the title, the text or images.

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There is no need to reply to this! If it was helpful, ticking the "Like" button lets me know.

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[MissWilliams in reply to helvella]

I want to edit it but not sure how

[helvella in reply to MissWilliams]

Did you follow the link in blue?

[MissWilliams in reply to helvella]

Just did it thankyou

[redhead41 in reply to GlowCoach]

Or ask the pharmacist (who can supply the t3), which doctors are actually prescribing t3 .

[MissWilliams in reply to redhead41]

I need a prescription?

[redhead41 in reply to MissWilliams]

Yes - UK laws/ rules are specific but there are lots of questions / answers on this site.

[Jazzw]

Looking at your results from 4m ago, you have Hashi’s, your FT4 looks ok but you don’t convert to T3 very well.

What are your iron/ferritin levels? I see you know about the need for selenium but iron is also critical for conversion.

Next, I assume it’s your daughter who is 18, not you? Just zeroing in on the “no joy” comment—could you be perimenopausal?

For T3, you’ll most likely need an endocrinologist but finding one that understands the need for higher FT3 levels, well, let’s just say they’re as rare as hen’s teeth.

[MissWilliams in reply to Jazzw]

Hi. My 78 year old neighbour is sorting out my garden. That makes me feel like a fool! I have to sit down every half hour for rests.

I am post menopausal but I feel just hopeless

[CheekyCrow in reply to MissWilliams]

Hi MissWilliams,Re the lost joy: probably not remotely helpful, but just wanted to send you a big old hug, really.

You've been battling away to sort out your daughter's health (which would zap anyone's joy, given the state of our poor NHS) while feeling rubbish yourself. It must have made it doubly hard.

So here’s to you having a quicker, easier path to feeling much, much better (and I'm sure all the brill peeps on this forum will help). Xx

[MissWilliams in reply to CheekyCrow]

yes definitely thanks for that

This is a brilliant forum x

[CoeliacMum1 in reply to MissWilliams]

It truly is exhausting with the NHS in certain areas… I have been battling for over a decade with pelvic low back pain, I’m now 58 but excluded numerous things thrown at me from GPs… I pointed out 6yrs ago, perimenopause and then being late menopause more recently and gynaecological things but ignored and at that was late menopause with abnormal bleeding …I didn’t tick their boxes of symptoms just a pelvic ultrasound offered then 2WW cancer pathway which was more 6wks so went private …I also have low FT3, and in past nutritional deficiencies (occasionally) and recently diagnosed Adenomyosis and Endometriosis too… I’m already diagnosed with coeliac disease, pernicious anemia and Hashimoto’s disease.

I have tried Liothyronine for a year my FT3 shifted a tiny bit in first instance and fell back to same as before and same as on increased Levothyroxine so now stuck there, as couldn’t get more FT3 prescribed as my TSH went too low, but feel I was better overall on it and after sorted other health things I may go down this route again..

Have you tried HRT at all it was a miracle for me with pain at my worst although it plateaued over year so maybe dose change was required but abnormal bleeding put stop to everything …due to treatment I have had to come off it for 6 months and outcome looks to be hysterectomy and ovaries removed later this year… oestrogen mostly to blame for me… either overexposure or most likely not enough progesterone.

Take a look at Dr Louise Newsons Balance website see if you think it may help as many older post menopause women go on hrt, I’ve had 2 post menopause friends one it helped her anxiety she couldn’t go anywhere even to supermarket…the other was very down with chronic fatigue possibly depression after years of strain battling for and with her son who had epilepsy …,I remember Liz Earle s mum going on it over 80 and helping her… many women have experienced hopelessness due to change in hormones and hrt has helped or you may understandably be totally exhausted after the trauma of having battled with your daughters situation, and totally overwhelmed and you now need time to get back on track, but hrt might give that boost of enthusiasm.

Hope all works out for you ☺️

[Jazzw in reply to MissWilliams]

I thought I was post menopausal too—my periods stopped about a year after my husband died when I was 47. But hormonal changes appear to be having a last laugh (I’m now 54). A couple of things have happened in the last 6m that have changed my view of “being menopausal”. Being a woman really sucks sometimes!

Sending a big hug x

[MissWilliams]

Thanks so much I appreciate your response and will certainly look into this