Tweaking T3: Hello, Sorry to post yet again. I've... - Thyroid UK

Thyroid UK

141,244 members166,493 posts

Tweaking T3

Soloslim profile image
11 Replies

Hello,

Sorry to post yet again. I've gotten so much advice already and I will most probably have a go at the single dosing of T3 in the fall, but for now I have to make due with my split doses.

I was feeling a bit off lately: increasing pain (back, leg, muscle, knee) in my right leg. Something that was very bad when I was on the experiment with the added levo.

Also more tired than usual, sleepy, bit groggy, teary, feeling cold, dizzy.

So this morning I added 1/4 tablet of Tiromel to my usual dose of 3/4 tablet, so 25 mcg instead of 18.75 mcg thinking that maybe I'm a bit hypo lately. I'd hoped a breeze of fresh air would come wooshing in and the lights would go on but no: my symptoms are much worse today. I'm shuffling again instead of walking, shorter of breath, have to really force myself to stay focused and the pain is excruciating. Depression is worse. Exactly the same symptoms I had with the added levo

And I don't know if anyone recognizes this: pulling faces, sticking out tongue, clenching teeth. It is something I can control but I really have to do it consciously. When I'm alone my face is like a pinball machine. I used to think this is low cortisol but now I'm not so sure anymore.

So if anybody has the same I would really like to hear it.

I know it's early days and I should stay on this dose for what, a couple of weeks? But if I'm feeling like this on day 1, how big are the chances things will improve on this dose? Knowing myself the chances are very slim.

Should I not simply go back to my previous dose for a couple of days and then try to maybe decrease a little bit?

Thanks in advance!

Written by
Soloslim profile image
Soloslim
To view profiles and participate in discussions please or .
Read more about...
11 Replies
Jaydee1507 profile image
Jaydee1507Administrator

Have you checked your vitamin levels recently?

I see you are taking some supplements and getting B12 injections. How often are the injections?

Its good to take a B complex for both thyroid and also best use of B12 injections.

How is your ferritin level?

We need OPTIMAL levels of key vitamins for our thyroid hormone to work well.

Soloslim profile image
Soloslim in reply toJaydee1507

No not very recently.

Injections are twice a week.

I am unable to toleratie B complex unfortunately.

Ferritin was OK last time was checked.

Thanks!

Jaydee1507 profile image
Jaydee1507Administrator in reply toSoloslim

Which types of B complex have you tried? There are ones that contain non methyl type vitamins that might suit you better. Folate is also important which would be in a B complex.

Suggest you get all your levels run.

Soloslim profile image
Soloslim in reply toJaydee1507

Oh boy, I've tried all sorts in the past 40 yrs. No, I can't have anything with methyl in the name you are right about that. Folate is also a big no. I can hardly tolerate anything.

Jaydee1507 profile image
Jaydee1507Administrator in reply toSoloslim

So which form of B12 is in your injections?

There are different forms of folate, some suit some people betetr than others, see article: seekinghealth.com/blogs/edu...

This B complex is methyl free: supplementhub.co.uk/product...

Soloslim profile image
Soloslim

So which form of B12 is in your injections?

Hydroxocobalaminacetatµ

Thanks!

vroooom5 profile image
vroooom5

I dont have the answer to your question, but can sympathise. I started T3 a week ago and feeling more hypo since then :(. From the research I have done, this can happen if adrenals are not working well and cortisol is low. As newly added T3 will require more cortisol from body, cortisol levels will deplete further, leading to fatigue and mood issues etc :(. I am not sure what I should be doing at this stage. Stop the T3 trial? persist a lttle longer? or try some HC?

Soloslim profile image
Soloslim in reply tovroooom5

Ah, I have adrenal insufficiency myself and cannot take HC. So that's a dead end.

Years ago I heard T3 only can be hard on the adrenals but someone here told me that wasn't true, so I don't know what to believe anymore honestly.

I can't help you, I'm sorry. Maybe you could post your question as a seperate topic and see if anyone replies?

vroooom5 profile image
vroooom5 in reply toSoloslim

thanks for replying, and the suggestions. I have posted a separate topic, but not got much luck. I am also at the stage where I don't know what to believe. I guess patience is the currency but I dont have it at he moment.

Soloslim profile image
Soloslim in reply tovroooom5

It's a bit easier to be patient if you know you are going in the right direction. 😉

arTistapple profile image
arTistapple

I recognise your pain but one day is going to give you no useful information at all. You could have made the absolute correct decision but you will never know, shying away from it away so quickly.

This thyroid dosage ‘game’ is not something you would wish on anyone else, it’s awful.

Lots of situations are highlighted on the Forum and it’s awful when expecting ‘magic bullets’ and yet they don’t appear to work for you.

I too am in the middle of a similar dilemma.

I have found that even decreasing Levo can be sensed within a very few days. However it’s not until weeks have passed that you really can decide whether the outcome is any good and whether there is a need to re-strategise.

T3 is quicker and often much more powerful. It’s much more difficult (for me) to make up my mind what to do, especially in the face of difficult symptoms. It feels like decisions must be made more quickly when it’s aT3 thing - a pressure no doubt related to the power of the T3 itself!

Not what you're looking for?

You may also like...

Feeling rubbish on T3

I went to see a private endo and he suggested adding T3 to my T4. I've been taking it for a week...
abbymeg profile image

Tweaking T3

Hi, I wonder if anyone could give me advice on tweaking my dose of T3. I'm taking 40mcg T3 / 50mcg...
Jasma profile image

T4/T3 Ratio

Hi Guys, Currently just on T4 treatment only, just had a blood test that as usual shows I am on...
JillOliver profile image

Increasing Levo in a combo with Armour - irritation, anger, tiredness

Hi All, I have been on a decreased dose of Armour + levo about 7 weeks, my results were: Ft4 = 44%...

Trying T3 only ,

Hello again, So I've had to stop the liquid thyroxine as it didn't seem any improvement over the...
Panda_26 profile image

Moderation team

See all
PurpleNails profile image
PurpleNailsAdministrator
RedApple profile image
RedAppleAdministrator
Buddy195 profile image
Buddy195Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.