Help with results please : Every GP and... - Thyroid UK

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Help with results please

Ad78 profile image
Ad78
13 Replies

Every GP and Endocrinologist say my thyroid levels are fine. My first set of labs posted here was very likely in 2016/7 when I started suffering extreme fatigue and hairloss. I still suffer from the fatigue. Hairline is receding which is so sad and a hit to confidence. I am female. I shaved it all off once because I couldn't bear to watch it fall out. I was referred to Rhematologist who said he couldn't find anything wrong with me and thinks I have CFS. I gave up but I want to try again.

Labs were taken fasted before 10am. Any thoughts, advice and experience appreciated. Thank you. My Hb1Ac started to rise with the inactivity from the extreme fatigue.

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Ad78 profile image
Ad78
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13 Replies
SlowDragon profile image
SlowDragonAdministrator

What vitamin supplements are you taking

previous post

healthunlocked.com/thyroidu...

showed low cortisol and ultrasound suggests Hashimoto’s despite negative thyroid antibodies

Suggest you consider saliva cortisol test

regeneruslabs.com/products/...

portal-app.inspira-regeneru...

Ad78 profile image
Ad78 in reply to SlowDragon

Hi.

I did a saliva cortisol test with Geneva. I take Vit D and B three to four weeks on and three to four weeks off. I take Zinc, Iron and Vit C as well and silica.

Screenshot with phone
SlowDragon profile image
SlowDragonAdministrator in reply to Ad78

I take Vit D and B three to four weeks on and three to four weeks off

That’s a very odd regime

Suggest you take daily

Retest 6-8 weeks later

DippyDame profile image
DippyDame

I always look at FT3 and FT4 levels first because...

T3 plays the most vital roles in the body. For example, metabolic rate, heart and digestive functions, muscle control, brain development and function, and the maintenance of bones.

Your FT3 is too low at 43.24% through the reference range

T4 is the storage hormone which is converted in various tissues of the body to T3

So.....we need a good level of T4 to convert and produce T3

Your FT4 is only 39% through the reference range....so very inadequate

We aim to have both Frees roughly approaching 75% through their respective ranges.....higher than your levels!

So what do we make of this....

Your FT4 is too low

However, your T4 to T3 conversion is fortunately good....but that low FT4 cannot produce adequate T3 for the body's needs...

So your FT3 is also too low

For good health every cell in the body must be flooded with T3 by way of an adequate and constant supply....

this isn't happening for you and as a result you are experiencing symptoms of hypothyroidism which need to be treated

So to raise your FT3 and therefore your wellbeing you need to to add replacement thyroid hormone in the form of Levothyroxine/T4 which is a bio-identical synthetic hormone.

Starting dose is 50mcg, test again after 6/8 weeks and based on those results increase by 25mcg levo....repeat the test/ increase protocol until symptoms improve.

Your medics are likely looking at ...

TSH which is proven to be an unreliable marker

and the Frees which are within ref ranges so they conclude are satisfactory. NOT!!

Because ....those Frees need not only sit within the range but MUST sit at the EXACT POINT within the range where symptoms are resolved.....your results are too low in the range for your needs

thyroidpatients.ca/2021/07/...

Medics are generally poorly clued up on thyroid disease leaving patients suffering.....over time hundreds, like you and I, arrive here as a result!

Bottom line....you are hypothyroid and need replacement hormone.....the problem is to get ignorant medics to understand this.

The whole system is in a shocking state and results are being wrongly interpreted by medics who are flying by the seat of their pants.

bmcendocrdisord.biomedcentr...

Time for a reassessment of the treatment of hypothyroidism

John E. M. Midgley, Anthony D. Toft, Rolf Larisch, Johannes W. Dietrich & Rudolf Hoermann

Remember there is no such thing as a general "normal"... ie fine for everyone.

We are all different and what works for us as individals may be very different to what works for others....we have to establish our own personal normal. We cannot all be calibrated to a set point like kettles of a production line!

I was diagnosed with fibromyalgia, chronic fatigue, IBSand the like until, barely able to function, it dawned on me that I needed a thyroid test ....turns out I have a complicated thyroid problem which I had to research and find myself. So my faith in medics thyroid knowledge has been destroyed.....we need to learn and self advocate!

Rant over!!!

Time to go into battle again!

We're all here to help....just ask!

Ad78 profile image
Ad78 in reply to DippyDame

I am not sure that I have ever felt so validated on this issue. Thank you so much. May I ask how you got help in the end? What helped you educate your doctor?

Ad78 profile image
Ad78

I am trying to send you a private message. Is this okay please? I promise not to inundate you. I am not going to ask for advice either. Just a bit more on the route I am ready and willing to take. I am tired of feeling this way as I am sure a lot of us are too

tattybogle profile image
tattybogle in reply to Ad78

Not sure if this message is meant for DippyDame or SlowDragon , but they will not have been notified as you didn't use the reply box directly underneath their reply. however they will hopefully see it now as i have tagged them for you .

To send someone a pm. click on the members picture/ name .. this will take you to their profile page .. look for a blue 'CHAT' box ( probably at the top). and click there .

Ad78 profile image
Ad78 in reply to tattybogle

Thank you! Yes, it was meant for DippyDame. Thanks

DippyDame profile image
DippyDame in reply to tattybogle

Thanks tatty!

DippyDame profile image
DippyDame in reply to Ad78

I'm not sure that I can add much to my earlier reply.

The help I received came from some knowledgeable and experienced members here. Like many of us I decided I had to learn and take control of my health because medics couldn't help.

I don't think your case is complicated....you just need to present your case for having levothyroxine prescribed...

and persuade a GP to listen.

You could try asking politely if a GP will give you a trial on levothyroxine, based on the low hormone test results and on your symptoms. Tick those on the following lists and give then to the GP

thyroiduk.org/signs-and-sym...

I wish I had an easy answer but I'm really sorry I don't.

Post any questions you have and we'll try to help.

Ad78 profile image
Ad78 in reply to DippyDame

That is okay. That helps. I am planning to go speak with my GP to let me try. Thank you so much

DippyDame profile image
DippyDame in reply to Ad78

Wise decision....don't accept any nonsense!

Good luck.

Ad78 profile image
Ad78

Thank you. Appreciate your help

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