Happy to be Here again!: I'm so happy to be back... - Thyroid UK

Thyroid UK

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Happy to be Here again!

Madamii1 profile image
7 Replies

I'm so happy to be back. Still on hyperthyroidism medications since 2020. My doc said we can't just stop it all like that with series of TSH tests and reviews monthly, hopefully all medications will stop one day😊

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Madamii1 profile image
Madamii1
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7 Replies
Buddy195 profile image
Buddy195Administrator

Welcome back! I think it’s been 4 years since you last posted, so do let us know any ongoing symptoms and share your recent thyroid blood tests with us, so we can offer further advice.

Madamii1 profile image
Madamii1 in reply toBuddy195

No serious symptoms really. Do take my med as prescribed (carbimazole 5mg 3tabs). Can't really wait to stop, if possible

PurpleNails profile image
PurpleNailsAdministrator

How much carbimazole do you take? And do you take other medications?

I agree with you doctor, dose should be steadily reduced & levels monitored.

Do you have recent results (TSH, FT4 & FT3)

You would be suprised how often we hear doctor decided to stop all treatment & see if I stay in remission, because it’s been 18 months….. or Doctor leave someone on 5mg long term because that’s common maintenance dose, but they have become hypothyroid.

Madamii1 profile image
Madamii1 in reply toPurpleNails

All tests better than previous but will have another in few days.

pennyannie profile image
pennyannie

Hello again :

Did you ever get confirmation and a diagnosis of anything - we were thinking Graves disease last time you posted ?

Did you get the antibody test for Graves -

a TSH - Thyroid Receptor antibody - or maybe a TSI - a Thyroid Stimulating antibody _

Where are your Free T3 and Free T4 results sitting now - compared to when you were here 4 years ago ?

We do now have some research that maybe of help :-

pubmed.ncbi.nlm.nih.gov/338...

ncbi.nlm.nih.gov/pubmed/306...

Do you live in the UK - as there is nothing on your profile page ?

Madamii1 profile image
Madamii1 in reply topennyannie

Not in UK Africa Nigeria. Only hyperthyroidism no graves

pennyannie profile image
pennyannie in reply toMadamii1

So not Graves - then do you have Hashimoto's ?

Have you any antibody readings - TPO -TgAB - with ranges ?

This is another thyroid auto immune disease which causes transient ' hyper ' symptoms. ?

You might like to read around on Dr Izabella Wentz 's website - thyroidpharmacist.com

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