New results: A bit confused by these. But seeing... - Thyroid UK

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JCMartin profile image
24 Replies

A bit confused by these. But seeing Endo Saturday and i will tell him i had taken small dose of Biotin. Any advice?

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JCMartin profile image
JCMartin
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24 Replies
Jaydee1507 profile image
Jaydee1507Administrator

How long before this test did you take your last dose of levo?

What time of day was the blood test?

FT3 is at 70% which is good but FT4 over range which isn't good.

JCMartin profile image
JCMartin in reply toJaydee1507

I already have Hashimotos diagnosis but trying to get levels right. On 150 Levo. Test at 740am, 24hrs after taking my last Levo.

JCMartin profile image
JCMartin in reply toJCMartin

But i feel like a lot of my symptoms are back and keep getting a really sore throat and temperature. I thought i would need more Levo but maybe not?

Jaydee1507 profile image
Jaydee1507Administrator in reply toJCMartin

You may have slightly overshot your sweetspot.

FT4 over range isn;t great and its accurate as you did allow 24hrs between Levo & test.

Suggest you reduce by 12.5mcgs and retest in 6-8 weeks.

How are you doing with vitamins?

JCMartin profile image
JCMartin in reply toJaydee1507

I havent retested. But taking a lot.

Jaydee1507 profile image
Jaydee1507Administrator in reply toJCMartin

Retest them 3-4 months from when you started them.

JCMartin profile image
JCMartin in reply toJaydee1507

If my symptoms are back, swollen neck, sinus, headache, fatigue etc... i feel lile its not enough meds? I was doing well and then i think i did too much excercise and it all came back again (except my breathing is mainly ok)

Jaydee1507 profile image
Jaydee1507Administrator in reply toJCMartin

The body takes time to heal and there is no way of rushing that.

Have you tried a strictly gluten free diet, possibly also dairy free too yet?

JCMartin profile image
JCMartin in reply toJaydee1507

Yes trying to stick to Gluton free and have stayed off milk.

Jaydee1507 profile image
Jaydee1507Administrator in reply toJCMartin

Thats great. Hang in there and let your body do what it needs to do.

JCMartin profile image
JCMartin in reply toJaydee1507

Thank you.

FancyPants54 profile image
FancyPants54 in reply toJCMartin

If my FT4 goes over range I feel as terrible as I do on too little meds. The symptoms are the same for me, because (I think) if I go over it triggers the D3 enzyme to convert my thyroid hormones to T2 and excrete it. D3 enzyme is the bodies emergency brake if it detects what it thinks is too much hormone in the blood. To stop this happening I have to split dose (I use NDT and a bit of Levo) and keep each individual dose under control. If I increase dose and start to feel as you do, I drop back.

SlowDragon profile image
SlowDragonAdministrator

You only started on 50mcg 2 and half months ago

Bloods should have been retested 6-8 weeks after starting on 50mcg

Then should have only increased to 75mcg and be retesting 6-8 weeks later

So have Increased far too quickly

Suggest you Reduce dose by 25mcg daily and retest in 6-8 weeks

JCMartin profile image
JCMartin in reply toSlowDragon

Thanks i will see what the Endo thinks.

FancyPants54 profile image
FancyPants54 in reply toJCMartin

He will probably get into a flap over your low TSH. That's not what he should worry about, but he will. Don't let him drop your dose too low in one go. Never change a dose by more than 25mcg a day either up or down. It doesn't matter what they say, we are the people who have been damaged by their actions and who have worked out better ways ourselves.

You really need to keep out of the gym until you are stable and feeling well for a period of time. Rushing back to exercise will just keep you sick.

FallingInReverse profile image
FallingInReverse in reply toFancyPants54

Fancy, that exercise content stuck out for me too! Completely agree.

FancyPants54 profile image
FancyPants54 in reply toFallingInReverse

We see it over and over in here. People are in shock when they first get diagnosed and just want to get better and forget it. So the moment they feel a little better they go on a diet and/or exercise and put themselves right back where they started.

Exercise and calorie restriction are hard on a body and should only be carried out when optimised.

Buddy195 profile image
Buddy195Administrator

I would start with a small reduction over time, as I wouldn’t want FT4 over range for long. I’ve had similar adverse symptoms with being over and under medicated. It’s best to make changes ‘low and slow’ so you don’t miss your ‘sweet spot’ where you feel most well.

csj113 profile image
csj113

I agree with all the advice to increase gradually but also wanted to add that I too am getting consistently high T4 results from Medichecks - similar to yours and over range - but when my NHS GP tests me I am getting T4 of just below the top of the range (I'm a poor converter and need this for my T3 to be ok). I assume your endo will do their own tests to be sure.

JCMartin profile image
JCMartin in reply tocsj113

No they dont do there own. But i do believe the NHS ranges are too liberal. I was still in the NHS range when i was really ill.

csj113 profile image
csj113 in reply toJCMartin

To be clear, my local NHS lab range and the Medichecks range were the same but my actual T4 result with Medichecks was significantly higher.

JCMartin profile image
JCMartin in reply tocsj113

Oh, thats very odd. Were the tests done the same time of day and with fasting etc...

csj113 profile image
csj113 in reply toJCMartin

yep, a day apart at 9am fasted

JCMartin profile image
JCMartin

Are we saying Medichecks are inacurrate?

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