Again does anyone have info ….Help please befor... - Thyroid UK

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Again does anyone have info ….Help please before Tomorrows Appointment….Tsh and Hashimoto’s

Jemjet profile image
4 Replies

Hi all, can you point me to info where it states that Tsh results are not significant in Hashimotos and why this is so .

I am going to my GP tomoz to discuss this 😦 😨.

I have had my follow-up appointment with NHS endocrinologist which was terrible and she said “Tpo Is 1 Blip out of all test and is not Hashimotos” ( amongst other things she said ) and again received letter today she has sent to my Gp quoting her opinions of Levi not needed.

I have had my private appointment and sh has started me on Levo quoting exact opposite of Nhs endocrinologist. 😂

my Gp is aware I was having both appointments and he’s very good and supportive . He said once I have had both appointments he will if needed refer me to another endo .

I live in Merseyside so any good advice of NHS endos in this area would be appreciated also .

I want to be able to tell him or show him research that ths results of tsh has no baring with Hashimoto's ,tsh in range or out of range.

I have lots of research and info to give him but would like him to understand why Tpo and Tg are are important

My Nhs endo is good at at writing letters and twisting what she as said but never writes what I have said and believe so makes me out to be a depressed hypochondriac idiot that’s imaging all my symptoms . Because of her wording in letters really makes me feel like an idiot and as I am quite emotionally sensitive at moment I need to get through to him without emotion just facts lol🤔.

Hope this makes sense 🤗

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Jemjet
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katyy94x profile image
katyy94x

Hello, I'm really sorry you're dealing with this. When the NHS uploaded my medical history to the app, i was quite shocked to see how previous doctors had spoken about me in letters to other doctors! Nothing explicitly bad, but very passive aggressive and as you said, made out to be a hypochondriac. TBH with you though, of course we will all have health anxieties! We have conditions that need addressing, but our only option to treat them is through doctors who don't want to hear it...leaving us feeling very helpful and anxious!

I don't have any info about the antibodies, but i would really consider raising the issue of how your Endo writes about you. You're definitely within your rights to request she includes the information you share with her and to highlight any corrections needed. I have done this 4 times now (for a different issue) and whilst it's draining, it has helped me feel less delusional knowing what's in writing is accurate.

Good luck! I am in Cheshire, if you have had a good experience with the private Endo i'd really appreciate if you could message me their details as i'm going down that route now :)

serenfach profile image
serenfach

Medical documents are legal documents. Remind them of this...

serenfach profile image
serenfach

Probably too late, but here might be useful:-

thyroidpatients.ca/2021/07/...

thyroidpatients.ca/2019/03/...

Jemjet profile image
Jemjet

thank you 🤗

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