I sent these results to surgery via AskMyGP requesting a review. Surgery rang me to say doctor doesn’t think a a review is necessary …….
Medichecks Results : I sent these results to... - Thyroid UK
Medichecks Results
Was test done early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
What were B12, ferritin and vitamin D results
what vitamin supplements do you take
Is your hypothyroidism autoimmune?
Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists who will prescribe T3
Ideally choose an endocrinologist to see privately initially and who also does NHS consultations
thyroiduk.org/contact-us/ge...
Thankyou so much for the information and advice in your reply and I attach a screenshot of the full results. I took the blood just after I woke up so no food/drink. I take daily Vits B12 and D via BetterYou spray plus Selenium. I am not aware if it’s autoimmune hypothyroidism - how does one diagnose that?
I have removed image as it contains your name and DOB
Were TPO and TG antibodies test results both low
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis
healthunlocked.com/thyroidu...
Paul Robson on atrophied thyroid - especially if no TPO antibodies
paulrobinsonthyroid.com/cou...
ever had ultrasound scan?
Thankyou I didn’t notice that as I was too focussed on getting the results across. Thankyou also for info and although I have had an ultrasound scan it was part of several scans taken during a day’s testing on behalf of the UK Biobank which I’ve been a participant of since they set it up, They will only feedback to your GP if it’s really serious.
Thankyou so much for the information and advice in your reply and I attach a screenshot of the full results. I took the blood just after I woke up so no food/drink.
So how long before test was your last dose levothyroxine?
I take my Levothyroxine last thing at night when I go to bed.
Now we are getting to the cause of the problem
if you took Levothyroxine night before test that gives false high Ft4 result as it’s at best only 8-10 hours before test
So if you had left 24 hours between last dose and test Ft4 would perhaps have been 16-17
If you normally take levothyroxine at bedtime/in night ...you should adjust timings as follows prior to blood test
If testing Monday morning,
delay Saturday evening dose levothyroxine until Sunday morning.
Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
How much levothyroxine are you taking?
Either retest correctly now
or
get 25mcg dose increase in Levo and retest in 6-8 weeks time
I take daily Vits B12 and D via BetterYou spray plus Selenium.
Can you add actual results for B12 and vitamin D
Folate test failed I think?
Rather than just taking B12, now Active B12 is over 70 just take a daily vitamin B complex
This will keep all B vitamins in balance and maintain good folate level
B vitamins best taken after breakfast
Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose
Post discussing different B complex
healthunlocked.com/thyroidu...
Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne can be difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay
Difference between folate and folic acid
healthline.com/nutrition/fo...
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
endo.confex.com/endo/2016en...
endocrinenews.endocrine.org...
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg)
Post discussing how biotin can affect test results
healthunlocked.com/thyroidu...
helvella.blogspot.com/p/hel...
Consider testing selenium level. Rather than just ongoing supplementing. You may only need Selenium once or twice week.
Really appreciate this advice on vits etc. and I will certainly make some change. Thankyou !
Vitamins
Folate - Serum ! Sample error
Vitamin B12 - Active
Vitamin D
• 1.060 mg/L (Range: < 3)
• 264.00 ug/L (Range: 30 - 650)
• 106.0 pmol/L
Please note change of reference rai
(Range: 37.5 - 188)
• 113.0 nmol/L
Total 25(0H) vitamin D < 25 nmol/L
Total 25(OH)D of 25-50 nmol/L may k
Total 25 (OH)D > 50 nmol/L is suffi
Total Vitamin D level >250 nmol/L !
Please note change of reference rar
(Range: 50 - 250)
So vitamin D is 113nmol
Presumably you supplement?
How much
Do you also take magnesium supplement in afternoon or evening
Yes I use BetterYou Vit D 3000 spray daily. Plus 1,200 B12 I don’t take magnesium. I take 1 200mg Selenium tab daily
Yes I use BetterYou Vit D 3000 spray daily.
Is that the green one - one spray = 3000iu
Or
The red one with K2 - one spray = 1000iu
Web links about taking important cofactors - magnesium and Vit K2-MK7
Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine
betterbones.com/bone-nutrit...
medicalnewstoday.com/articl...
livescience.com/61866-magne...
sciencedaily.com/releases/2...
Interesting article by Dr Malcolm Kendrick on magnesium
drmalcolmkendrick.org/categ...
Vitamin K2 mk7
betterbones.com/bone-nutrit...
healthline.com/nutrition/vi...
Thanks for great info! Yes BetterYou green 3000iu
264.00 ug/L (Range: 30 - 650)
This is presumably ferritin result
How old are you
healthunlocked.com/thyroidu...
Thank you for your incredible patience while you have been awaiting the outcome of our ferritin reference range review. We conducted this with Inuvi lab, which has now changed the reference ranges to the following:
Females 18 ≤ age < 40. 30 to 180
Females 40 ≤ age < 50. 30 to 207
Females 50 ≤ age < 60. 30 to 264
Females Age ≥ 60. 30 to 332
Males 18 ≤ age < 40 30 to 442
Males Age ≥ 40 30 to 518
The lower limits of 30 are by the NICE threshold of <30 for iron deficiency. Our review of Medichecks data has determined the upper limits. This retrospective study used a large dataset of blood test results from 25,425 healthy participants aged 18 to 97 over seven years. This is the most extensive study on ferritin reference ranges, and we hope to achieve journal publication so that these ranges can be applied more widely.
Vitamin B12 - Active • 106.0 pmol/L
Are you just taking B12 or vitamin B complex
It B12. I think this thread is confusing me as I keep sending info re vits etc plus age etc but it seems you haven’t received it. 🤔
Hey there again :
We generally feel best when our T4 is up in the top quadrant of the range with our T3 tracking slightly behind at around 60 / 70 % through the range.
Currently your T4 is at around 91% with your T3 below the range and at minus :
how doesn't this need medical attention ?
Can you see a different doctor - and also ask for a referral to an endocrinologist.
No thyroid hormone replacement works well untll ferritin, folate, B12 and vitamin D are up and maintained at optimal - did you get these run and care to share the results as we can advise as some NHS ranges are too wide to even be sensible. ?
I requested an appointment to discuss meds but was told that the doctor didn’t think it was necessary. Go figure ….
Yes - I know - and what prompted me to write this to you !!
Hi, Thankyou for your response and yes I had those run and I’ve attached the full test results to Slowdragon’s reply. I didn’t even get past reception to see a doctor. Instead I had a receptionist ring who told me the doctor had reviewed the readings and an appointment or adjustment was not necessary. This is the reality of the rural East Midlands - I think good doctors are like hens teeth!
Reading this forum - I don't think it just rural East Midlands but country wide :
I now self medicate as I got ' bumped ' back in 2017/18 when my TSH was then deemed too low and had to be in range - even at the obvious, by then, expense of my health - I'm Graves post RAI thyroid ablation back in 2005 :
I was refused a T3/T4 blood test - and did this myself, then seeing the glaring disparity between my T3 and T4 managed a referral to endocrinology who refused me both T3 and NDT and promptly told me my TSH was too low and I was over medicated - and that was that - maybe I looked too well !!
It's criminal but like so much of what is going on - beyond my understanding.
P.S. I can't see this screen shot clearly and on zoom it becomes distorted - no worries :
Sorry not having success capturing the report in its entirety.
Oh my goodness! You have to wonder if some of these doctors are actually qualified! If we can educate ourselves on the Thyroid surely they can before they see a patient 😤
Words fail me! More and more I sense a level of misogyny operating in the obvious disinterest and downright ignorance shown by so many doctors which is evidenced by the common experiences here. Am I right in thinking that I don’t see as many male posters complaining of their doctor’s indifference and ignorance as there are females. It would make an interesting survey!
There’s nothing on your profile re
how old you are
Are you male or female
Approx weight
How much levothyroxine are you taking
Which brand of levothyroxine
Do you always get same brand levothyroxine at each prescription
Approx how old were you when hypothyroidism originally diagnosed?
Age 77, female, 64kg, Accord Levo 100mgm (usual brand) diagnosed age 40
So your weight suggests 100mcg is about correct dose (1.6mcg per kilo per day)
Update! My memory sometimes lets me down! My niece reminds me that I didn’t take my normal Levothyroxine the night before . She saw it in the previous day’s pill holder as she was visiting on the morning I used the test. Over the years I’ve done a few tests, in the same way as recommended in this Forum, and had obviously omitted the Levo automatically. When I said I usually take it the night before I set a hare running and am sorry for the confusion.
So if you skipped the dose Levo night before (and didn’t change timings as recommended) then last dose levothyroxine was 36 hours before test
This would give false LOW ft4 result. As your result has Ft4 right at top of range, if you had only left 24 hours, Ft4 would have been higher, definitely over range
This suggests your conversion rate is even worse than it currently appears
Start taking a daily vitamin B complex
Then retest thyroid and vitamin levels again in 6-8 weeks
Remember to stop taking B complex 3-5 days before test - taking daily folate and B12 instead that week
Adjust timing of dose levothyroxine so last dose is 24 hours before test
So
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
Come back with new post once you get results
so very grateful for your support and I will print off your instructions so that I get it right. Thankyou!
Age 77, female, 64kg, Accord Levo 100mgm (usual brand) diagnosed age 40