Synthetic Thyroid Meds just not suiting me

[IndigoPixie12]

Hello all,

I used to take Thiroyd NDT from Thailand. I went to their headquarters in Bangkok in late 2019 and was told that due to an outbreak of swine flu in the region, they had to stop manufacturing Thiroyd NDT. I grabbed 600 pills of Thiroyd from the 50th pharmacy in Bangkok so that lasted me a few months and I ran out. I then tried Thyroid-S but that did not suit me.

My T3 is always on the lower end of the range when on T4 only. I travel to Turkey a lot, so I was able to source T3 from there. I just don't feel that great on synthetic hormones and I am 2 years in on them (was off T3 altogether for pregnancy and that was really difficult to deal with).

Has anyone tried private prescription NDT in the UK? What are the ballpark costs for consultation, script and meds?

Thanks in advance!

[RedApple Administrator]

IndigoPixie12, Your question may attract PMs from unscrupulous members telling you where you can buy NDT without prescription. Please read our post about this here, so that you are aware of how you can deal with this should it happen healthunlocked.com/thyroidu...

[Sunflower64]

I cannot answer your question, but find it interesting that the manufacturer said they stopped production due to swine fever. I have read that both Thiroyd and TR were stopped because Thai authotities required NDT to be licensed (which is apparently costly). If it was due to swine fever, production could hopefully resume some day…

[DippyDame]

It sounds as if your T4 to T3 conversion is poor and you need to add some T3.Perhaps it's not that synthetic hormones don't suit you but that you weren't on the correct replacement hormones/ dose.

You haven't posted any lab results that give us an idea of what is going on....but the biggest clue in your post is "My T3 is always on the lower end of the range"

For good health every cell in the body needs to be flooded with T3 by way of an adequate and constant supply. This doesn't appear to be happening in your case.

Are you prescribed T4 on the NHS...if so an appointment with an endo to discuss poor T4 to T3 conversion may lead to a T3 prescription.

Also vital that you optimise vit D, vit B12, folate and ferritin to support thyroid function...these are very possibly low

Have they been tested recently?

Others may advise on private prescriptions but first, in your shoes, I'd want to explore T4/T3 combo treatment.

NDT provides 9mcg T3 and 38mcg T4 per grain. How many grains were you taking?

It may not be synthetic hormone that's wrong for you.... but the dose that is wrong.

Maybe not the info you hoped for but hopefully something might resonate.

[HealthStarDust]

Try Roseway Labs for NDT.

[Sunfish22]

Just read a comment up there that it might be considered not well to post where you can get prescription free NDT. It is my first reply here so if I have made a mistake let me know. I do check my hormone levels regularly with an endocrinologist. They are most of the times ok. T3 a bit higher than with T4 alone in the upper third of normal range, sometimes TSH suppressed. I do not support synthetic T4 at all. Get panic attacks and else. Was a torture for 9 years. Tried all kinds of doses and different T4 meds. NDT is not perfect either, but works better for me.

[RedApple Administrator in reply to Sunfish22]

Sunfish22 'if I have made a mistake let me know'

Yes, I have deleted that comment as it's not permitted to post sources of prescription free medication on the public forum. You can share this information via the personal messaging (chat) system.

[Sunfish22 in reply to RedApple]

Hello, thank you for the information that I am not allowed to share a web address for prescription free hormones. I am buying them for me in Europe for years. To my experience the company is trustworthy and the product high quality. [edited by admin]

I have never written pm in my life before. Will give it a try if someone wishes to know my source. But might take some time as I am not often here. Bye for now.

[Sunfish22]

Also tried a synthetic combination of T4/T3 . Better but still panic attacks which I never had with NDT whether I was hypo or sometimes hyper… I have found a possible explanation for this. In NDT the hormones seem to be bound to proteins. In synthetic products hormones are delivered directly. Maybe for my system this is too much.

[arTistapple in reply to Sunfish22]

Interesting observation about the protein binding. I ‘over react’ to both T4 and T3. I have avoided thinking about NDT because of sourcing issues. I will give this a bit of thought. Thank you for that info.

[metamorphica]

I used to get on well with Thiroid but not Thyroid S as well.

and yeah im now on synthetic T4/T3 combo from my endo, but do not do as well on it. Wish i could afford private or hell, even self sourced NDT again (but options now available are limited. )

I wish you luck if you go the private prescription route.

I know one example of private costs given (and this was their personal experience)

Armour NDT -£150 a month, Levo £8 a month

appointments 2-3 times a year at £70 a time

Prescription cost each time -£40, each prescription is about 3-6 months worth, so 2-3 prescriptions a year.

Then adding in private medical blood tests depending on company.

[PHappy]

You could try Metavive III bovine from the natural choice. They legally produce and sell desiccated thyroid capsules in the EU UK thanks to a loophole; not mentioning the possible ammount of active hormone in the capsules. So one has to go by the feel. Their products are high quality. I used to rely on them but I, contrary to you, feel better on synthetic hormons T3 only. My source has dried up so I ask you; how recently did you buy from Turkey? Is it still possible? I have 1 month's supply of T3 left.