Hypo symptoms but now Hyperthroid? Afraid to st... - Thyroid UK

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Hypo symptoms but now Hyperthroid? Afraid to start carbinozole as am already struggling with energy and weight?

Trying2saveThyroid24 profile image

Hi everyone, just wondering has anyone started carbinozole and gained weight quickly? I have always fit more if a hypothyroid profile but palpatations to the point of thinking okay Im having a heart attack lead me to gp telling me now you have sudden hyperthyroidism? Very strange? Nodules x3 measure 6mm, too small to biopsy? Anyway I had been taking sensilab thyrolux to lose weight and I think ive messed myself up am just anxious if i start carbinozole will go really hypo?

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PurpleNails profile image
PurpleNailsAdministrator

Welcome to forum

It can be that hypo symptoms seems a more likely fit but levels are high. There can be an overlap with symptoms.

How low are white blood cells? Carbimazole is used with caution when white cell known to be low.

Which beta blockers have you been prescribed? Propranolol ? Often given alongside carbimazole. What level of doses of carbimazole & propranolol has been suggested?

Profile says high T4 - low TSH. Has FT3 been tested? If you can add results with lab ranges?

Were nodules detected on ultrasound or other type of scan? Nodules are very common and rarely are an issue. Were they showing as over functioning?

Antibodies should really be tested.

sensilab thyrolux is sold as thyroid support supplement & hormone free. The excess iodine can occasionally cause unpredictable affect on thyroid it contains 150 μg of iodine. Did you stop the supplement?

SlowDragon profile image
SlowDragonAdministrator

Welcome to the forum

strongly recommend you stop that supplement. It contains excess iodine and taking iodine can badly affect thyroid levels

What are your thyroid results

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Hashimoto’s frequently starts with transient hyperthyroid results and symptoms before becoming increasingly hypothyroid

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

DippyDame profile image
DippyDame

Have you had thyroid antibodies TPO and TG tested for thyroid autoimune disease / Hashimoto's.

It is almost technically impossible to become hyperthyroid if clinically you are hypothyroid.

However if Hashi's is diagnosed it is possible that transient surges of antibodies can raise thyroid hormone levels produced by the thyroid gland into a hyperthyroid state

Have you eliminated this possibility?

paulrobinsonthyroid.com/man...

and...

thyroiduk.org/if-you-are-hy...

Or...

Sensilab thyrolux contains iodine and is very possibly a contributing factor due to overmedication

verywellhealth.com/iodine-a...

In addition, large amounts of iodine block the thyroid's ability to make thyroid hormones. A 2014 study in the journal Endocrinology and Metabolism found that more-than-adequate or excessive iodine levels are unsafe and may lead to hypothyroidism and autoimmune thyroiditis (Hashimoto's thyroiditis, chronic lymphocytic thyroiditis), especially for people with recurring thyroid disease.12

I'd suggest you start with a full thyroid test to include...

TSH, FT4, FT3, vit D, vit B12, folate, ferritin and thyroid antibodies TPO and TG

Your weight gain and low energy are possibly caused by undermedication, particularly T3.

Trying2saveThyroid24 profile image
Trying2saveThyroid24 in reply toDippyDame

Thanks so much yep just waiting on blood results now definitely got off that supplement i took it fir three months up to Christmas to try get some energy!Felt great on it but then doc gave me ozemeprazole for an ulcer an i tbought okay thats going to knock out my magnesium so was explaining away the palpatations, weight loss, thirst, blurry vision and leg cramps to that xx

Trying2saveThyroid24 profile image
Trying2saveThyroid24 in reply toDippyDame

Really appreciate the info xxx

Trying2saveThyroid24 profile image
Trying2saveThyroid24 in reply toDippyDame

Thanks so much xx

Buddy195 profile image
Buddy195Administrator

As others have said please make sure that the correct Antibody tests are completed. I was misdiagnosed as Graves (largely on ‘hyper like’ symptoms) but after following forum advice to double check, I found I’m actually hypothyroid with Hashimotos.

 Graves Disease (hyperthyroidism) needs to be confirmed via positive TRab or TSI:

TRab

TSH receptor antibodies

TSI

Thyroid-Stimulating Immunoglobulin

TPO & TG antibodies may be Graves or Hashimotos.

 TPOab

Thyroid Peroxidase antibodies

TGab

Thyroglobulin antibodies

Trying2saveThyroid24 profile image
Trying2saveThyroid24 in reply toBuddy195

Thanks a million yep just waiting on blood test results now i have had elevated calcium for over a year now (doc never mentioned) so I asked for Parathyroid check too xx

Trying2saveThyroid24 profile image
Trying2saveThyroid24 in reply toBuddy195

Definitely I reckon antibodies for sure xx

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