Rest when you need to

[AllAtSea60]

Hi, I was diagnosed about a year ago. Totally disillusioned by NHS, seems to be. Pop a pill and you'll be okay. I suffered terribly from bloating. I've gone gluten free, it's a real pain when going out, but I feel it has helped me. I still get suffer from chronic fatigue. Now and again, it's usually after over doing it, thinking I can still do everything, or being stressed. Normal activities for everyone else, preparing for Christmas or the stress of getting ready to go on Holiday. It will floor me, and I'll need a couple of days in bed sleeping. Don't feel guilty you can't keep up with everyone else. Just take the rest and then carry on when you are rested. Aqua aerobics helps me with muscle pain, do what you can, when you can, and like I say, don't beat yourself up about needing to rest.

[rosco1]

Hi AllAtSea60, WOW I can't believe what you have wrote on your post. Everything you have said is exactly how I feel and are being told.

My health depresses me so much and I'm told take this, take that and you will be fine. The fatigue I have is unreal, ive never felt so unwell but I just get on with life as best as I can.

Best Wishes

[TiggerMe in reply to rosco1]

Welcome aboard AllAtSea60,

I'd recommend both of you get a full thyroid panel and blood tests to see where your folate, ferritin, B12 And Vit D levels are, sounds like you are both lacking in something

[AllAtSea60 in reply to TiggerMe]

Thanks for the tip. Just got to get an appointment with the doctor now, ha ha. That a whole new ball game.

[TiggerMe in reply to AllAtSea60]

If you can afford a private test you will get full results rather than just TSH which the GP fobs us off with and tells us little .... Monitor My Health with TUK10 code giving 10%off is one of the cheapest around £30 🤗

[MindfulMoments in reply to rosco1]

It is so reassuring to hear that we are not the only one dealing with fatigue, and the utter desire to have that get up and conquer the world feeling again but don't quite manage it. It can be rather depressing, especially when the NHS thinks we're hypochondriacs because we should be fine now our bloods are in range. I really do battle with my desire and need for more energy, and the intermittent fatigue and mugginess whatever medication, dose, supplementation I am on. Coming to terms with this is quite a challenge when there's so much to do and achieve. Contentment in our situation is a key part of therapy, but achieving that is quite a journey. Take care and thank you! 😊

[mrskiki]

I’m the same, next day after something like a longer walk, I crash out, I sort of plan to expect it now so I can work round it, also weekends I have extra sleep to get through the following week. I don’t have evenings out any longer and lunch is too early for me to be sociable especially with work to fit in, so I have time for some at home yoga for flexibility and strength, and healthier cooking. I’m hoping to get a bit more back to normal eventually as my Fitness Watch keeps sending me congratulations but it’s always on my long sleeping time!

[buddy99]

Have you heard about the Spoon Theory? The theory suggests that people living with chronic illness, chronic pain, or disability have a limited amount of energy (represented by spoons) to spend on completing tasks on any given day. healthline.com/health/spoon...

I don't know whether there is anybody here who has fully gone back to their full-of-energy- all-the-time state even though they are on a perfect dose of thyroid hormones (if there is such a thing). I know I am on an energy budget. So I very much appreciate your post. Being reminded that limited energy does not mean "weak character" is needed every now and then. And being kind to oneself (and others) I always find to be a good approach. Thanks for your uplifting post.