Hello : Hi there This is my first post so... - Thyroid UK

Thyroid UK

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Hello

dawno20 profile image
3 Replies

Hi there

This is my first post so wanted to say hi and introduce myself.

I was first diagnosed with Hashimoto’s 6 years ago, and struggled with accepting there was an issue and then with the wealth of conflicting opinions. I couldn’t get why if it is such a common thing why it’s not taken more seriously by the NHS.

I have managed my symptoms the best I can going Gluten Free, but the symptoms combined with going through the menopause is becoming unbearable.

I am probably at least 3 stones heavier, am tired all of the time, counting the hours down to when I can go back to bed….i have a incredibly stressful job which really does not help either. The muscle aches and joint pain is as unbearable now as the symptoms.

So I thought I’d get an updated hormone blood profile done to see where my thyroid and female hormones are. I was shocked that they came back with significantly raised prolactin levels, where did that come from ? My hashi antibodies are still, raised at >500 TSH 4.9 Free T3 4.6 and free thyroxine 12.5 . The Free thyroxine is .5 away from normal but GP happy with those results.

Help I need my life back…..I’m on 56 and feel like I’m 86 where do I go next ?

Any help and advise gratefully received

Thanks in advance

D 😃

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dawno20
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TiggerMe profile image
TiggerMe

Hello, welcome aboard

Do you have the ranges that go with these results as they vary with each lab

Also did you do the test before 9am fasted, water only?

Have you looked into HRT?

SlowDragon profile image
SlowDragonAdministrator

Was test done early morning, ideally before 9am, only drinking water between waking and test.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Whalen were these last tested

What vitamin supplements are you taking

humanbean profile image
humanbean

struggled with accepting there was an issue and then with the wealth of conflicting opinions. I couldn’t get why if it is such a common thing why it’s not taken more seriously by the NHS.

This is just my opinion, but I think any disease with a patient population which is majority female is not taken as seriously as other conditions. We are often assumed to be hysterical, attention-seeking, wastes of space.

I was first told my thyroid was "borderline underactive but didn't require treatment" in 1990(ish) but didn't get my first prescription for Levo until 23 years later. It was discovered in 2013(ish) that I have a dodgy pituitary that doesn't produce enough TSH for my needs.

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