URGENT Help Please

[Jefner]

UPDATE..... I finally managed to source some but looks like I am going to have to split my script between two pharmacies which is going to be an absolute pain.

Am experiencing awful time in pharmacies not being able to obtain my Morningside T3. I am sensitive to Mercury Pharma, TEVA, and also anything with Mannitol/Acacia in.

Can one of the mods or anyone suggest a different brand please. I have been without since the weekend and am struggling

thank you

[helvella Administrator Thyroid UK]

I can't recommend anything but the information about what can be available and ingredients is in my medicines documents.

helvella's medicines documents (UK and Rest of the World) can be found here:

helvella - Thyroid Hormone Medicines

helvella has created, and tries to maintain, documents containing details of all thyroid hormone medicines in the UK and, in less detail, many others around the world.

This link takes you to a page which has direct links to the documents from Dropbox and QR codes to make it easy to access from phones.

The UK document contains up-to-date versions of the Summary Matrix for tablets, oral solutions and liothyronine available in the UK.

helvella.blogspot.com/p/hel...

[Jefner in reply to helvella]

now my usual pharmacy who has been taken over has informed me they can't give me my Accord Levo 100mcg, they will only provide Aristo which I tried but after a couple of weeks I felt my hypo symptoms coming back. I don't know what to do I am panicking here. Might be that I have to split my script between two pharmacies

Any suggestions, I am so right on the edge right now as my anxiety has worsened

[helvella Administrator Thyroid UK in reply to Jefner]

Do you have any other pharmacies you can get to?

Or try the ones listed on Thyroid UK's list of pharmacies - some only handle private prescriptions, but some will accept NHS prescriptions.

thyroiduk.org/get-support/t...

[crimple in reply to Jefner]

Jefner, I changed from Accord after over 10 years on 100 mcgm. My T4 was in my boots. I now take 112.5 mcgm on Vencamil and feeling more normal.

[Jefner in reply to crimple]

I tried Aristo but noticed I started going downhill after a couple of weeks

[Wua13262348 in reply to Jefner]

Accord levo is identical to Almus levo. You will only get Almus levo at a Boots pharmacy. Boots rebrand the Accord levo tablets by putting them in an Almus box.

[Jefner in reply to helvella]

extremely valuable information thank you so much

[Jefner in reply to helvella]

I wonder whether you would kindly accept a private message from me. I would like your personal opinion on some professional advice I was given some time back by a private Endo I saw

[Jefner in reply to helvella]

I have been back on my T3 for a week and a half now but instead of taking 2 split doses, I started back on 3 because I am so sensitive but things arn't levelling out yet with my anxiety. It's usually bad on waking, part of the day and then dissipates in the evenings where I generally feel well. I am currently dosing at 8am, 3.30pm and 7.30pm. Before it was around 1.30pm and 5pm. Wanted to keep first dose away from my severe waking anxiety and my cortisol.

I am wondering whether that last dose at 7.30pm is still impacting my anxiety as T3 is a stimulant. T3 levels are said to peak around 3 to 4 hours after ingesting and I am still feeling the eeby jeebies,palps late at night. Plus since changing the timings, I feel a little sleepy in the day, my legs feel weak and stiff, I am fatigued (probably due to lack of exercise and also anxiety) and other hypo symptoms which also mimic anxiety symptoms. I think I need to go back to my 2 doses and see what happens?

On Monday I will have been back on my T3 for two weeks so I am going to test but wondering whether changing my timings will impact my results? In theory it shouldn't as I am still having the same dose every day but the night before my test I will need to take my 2nd dose around 12hrs before testing? I never used to do that, it was always a full 24hrs for both Levo and T3 until I read otherwise on here a few months ago.

Because of the recent stress dealing with the pharmacies, it's so difficult to tell whether the additional anxiety I am feeling is down to that or missing those 3 days of no T3, or maybe it's all combined. I just really don't know what to do at this point, it seems everything I try doesn't work. I feel like I want to come off T3 completely and go back to the 150mg Levo that I was on for many years and seemed fine on but then again that was before menopause hit and finding out I had Hashi's (which from seeing no thyroid left on an ultrasound back in 2016) I know I have had the disease a lot longer

[TiggerMe]

Have you tried Roma capsules?

[Jefner in reply to TiggerMe]

never heard of it

[TiggerMe in reply to Jefner]

It's the NHS preferred option (cheapest) lactose free comes in 5,10 & 20mcgs

I've been using the 5mcgs for the last year without issues

[Jefner in reply to TiggerMe]

any mannitol or acacia in?

[helvella Administrator Thyroid UK in reply to Jefner]

Jefner,

Ingredients of ALL UK thyroid hormone medicines are in my UK medicines document.

As well as links to the Patient Information Leaflet and details that might help a pharmacy who wish to order them.

Excipients for Roma capsules

[TiggerMe in reply to Jefner]

Thankfully neither 🙂

[sparkly]

Just tagged you in a post of mine that might help

[crimple]

Jefner I also take T3 and my scrip I specifically for Sigma Pharma, it is pricey but I cannot tolerate Teva at all and became very ill when on Teva T4

[helvella Administrator Thyroid UK in reply to crimple]

Sigmapharm/Viatris contains mannitol which was explicitly mentioned in the original post as an excipient to be avoided.

[crimple in reply to helvella]

Sorry, I missed that.😱