Contacting UK thyroid 😬: A lovely member... - Thyroid UK

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Contacting UK thyroid 😬

birkie profile image
11 Replies

A lovely member mentioned the UK thyroid site to me, about looking for a endocrinologist who as knowledge of intolorences to thyroid medication, or who is just more knowledgeable than the ones I've seen these last 4 years .I know it's a list, can anyone direct me as to how I access it.

Thank you ❤️

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birkie profile image
birkie
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11 Replies
RedApple profile image
RedAppleAdministrator

Could this be what you're looking for thyroiduk.org/contact-us/ge...

birkie profile image
birkie in reply to RedApple

Thank you, I've downloaded the contents but there are only 2 that are within travel for me, the other ones are.. London, Birmingham, Dublin and Edinburgh, Kent and so on.The 2 i could travel to are Preston and Liverpool.

There are none for Cumbria or Newcastle, Hexham ect😔

Anyone seen a good endocrinologist 🤷‍♀️ (private message me) ❤️

Jaydee1507 profile image
Jaydee1507Administrator

You can email info@thyroiduk.org for the list.

Suggest you pick a couple then post asking for feedback by personal message. That post will be locked to prevent information being posted in the group.

birkie profile image
birkie in reply to Jaydee1507

Thank you, there's non within my area (Cumbria) 2 I could travel to Liverpool, Preston, the other are London, Kent, Oxford way down the country, Birmingham, Dublin, Edinburgh, then Yorkshire, I wouldn't mind travelling, but in a day from Cumbria to London ect that's going some, I lived in London it was hell 😬

Jaydee1507 profile image
Jaydee1507Administrator in reply to birkie

Read the list carefully and check out if someone you might be interested offers virtual consultations. That should open up a lot more possibilities.

birkie profile image
birkie in reply to Jaydee1507

👍 Good thinking☎️ thank you👏

SlowDragon profile image
SlowDragonAdministrator

several do consultations online

So you don’t need to travel

birkie profile image
birkie in reply to SlowDragon

Yeah, never thought about that, I only hope they can understand my concerns, obviously I'd like them to see what I'm actually passing (photos) , and the rash I get on my arms when taking the thyroid medication 👍Been on the T4 since Sunday, last night my lips swelled up, look like I'd gotten lip fillers, some women would have killed for them🤭.. They've since gone down slightly today, but I've got big splits in the corners there really sore now🤦‍♀️

SlowDragon profile image
SlowDragonAdministrator in reply to birkie

but I've got big splits in the corners there really sore now

That’s typical of low B12

What vitamin supplements are you taking

Obviously take digital photos of everything

birkie profile image
birkie in reply to SlowDragon

Yeah got digital photos of the 💩 am passing, and the blebs on my arms.. I've been trying to stomach vit D along with the thyroid medication but as you know I pass it through (diarrhoea) my B12 as not been tested since 2020 when it was 316 I think) I know it was low because the top end was 700.Tried the better you spray B12 but again couldn't stomach it.

One gp suggested B12 injections but that was put on the back burner, I enquire again late last year but no gp would help. 🤦‍♀️

SlowDragon profile image
SlowDragonAdministrator in reply to birkie

make an appointment or email GP with list of low B12 symptoms

Low B12 symptoms

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

Request they test B12 and folate now

Highly effective B12 drops

Have you tried these?

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)

Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

Igennus B complex popular option too. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

Post discussing different B complex

healthunlocked.com/thyroidu...

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

helvella.blogspot.com/p/hel...

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