So pleased - have Hashimotos: Hi, had a private... - Thyroid UK

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So pleased - have Hashimotos

JCMartin profile image
10 Replies

Hi, had a private Endo appt today. Given a diagnosis of Hashimotos and a perscription for levothyroxine starting on 25 for 2 weeks and then 50. Then more bloods and an appointment in 2 months to check levels. Also had a head MRI appt through. Keeping all my other appt just in case and not telling the NHS at the moment until i kmow its working. Fingers crossed. So ppease to have some treatment. He said it was kicking off my heart Brachacardia (which i already had) and was making my oxygen drop. All makes sense - but NHS would never have got there. They offered me a blood test in a years time due to my non fasting test at A and E. Best £250 i have spent. Shouldnt be this hard though!!

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JCMartin
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10 Replies
J972 profile image
J972

So pleased for you!

JCMartin profile image
JCMartin in reply to J972

Thank you. This group have been a great help.

SlowDragon profile image
SlowDragonAdministrator

Brilliant news

Keep us posted on your progress

JCMartin profile image
JCMartin in reply to SlowDragon

I will. Thanks for all your advice. Just good to have something positive

TiggerMe profile image
TiggerMe

👏👏👏 welcome to the new roller coaster ride 🤗

DippyDame profile image
DippyDame

A better informed endo....this is great news and a good start

Not many associate low oxygen saturation with hypo.... more specifically low T3! Thyroid hormones promote oxygen delivery to the tissues

A gluten free diet helps Hashi patients.

Be patient it may take some time to resolve and be aware that with Hashi's, thyroid levels can fluctuate/rise as the thyroid is attacked.. this is transient and gradually leads to the death of the thyroid's hormone-producing cells. Hence hypothyroidism.

Please keep us posted

Take care.

PS

JCMartin

Just looked at your labs posted 26 days ago...

Your FT3 is miserably low and could absolutely cause a number of symptoms including Brachacardia!

They fail "to join up the dots"

JCMartin profile image
JCMartin in reply to DippyDame

Thanks for all the help. So pleased i am getting somewhere. Cant afford private but it has taught me to put my health as a priority.

Buddy195 profile image
Buddy195Administrator

Wonderful news JCMartin! 🦋👍

Hedgeree profile image
Hedgeree

That's great JCMartin,

It's always a strange feeling of relief to be told there is something not right when you've been continually dismissed.

JCMartin profile image
JCMartin in reply to Hedgeree

For sure and i could see this having a huge effect on peoples mental health. I was depressed, anxious and starting to question my own sanity. If i hadnt had this recognition (even if its a long path) i think i could have lost the plot. I was already crying in toilets. This group really helped as they understand. I am quite usually brave with pain and medical problems but its the fear of the unknown. Not getting better and having no timeline when you will get answers. If i hadnt had a random out of range TSH in hospital i would have never explored this route and the NHS clearly would not have. This group also made me decide to pay for the right consultant.

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