We are over the 10000 signatures. I’ve posted a thank you to all the warriors on other sites who signed for us. Such good news, maybe we need to contact our MPs next to make sure they realise the importance of turning up to discuss our case - and vote in the right direction
In the meantime a very happy Christmas and hopefully a very healthy New Year to all 🎄🎄🎄
And keep on getting signatures.
It’s wonderful isn’t it. For me it’s a perfect start to Christmas Eve. ⭐️
I just saw this on another post (@Helvella?) and was in the middle of writing a reply and lost it. I was wondering now, after all the worry about reaching the 10,000 signatures, What’s next? I think you are correct, we must all drop a letter to our MPs highlighting this and asking them to make sure they turn up for discussion.
That’s one of the reasons I love this forum. It’s great when someone else is compus mentis enough to do the necessary thinking! Thanks Fruitandnutcase.
I hope we will get to 100,000.
But, however positive I try to be, I doubt we'll manage inside the time window.
I was thinking that too, we can but hope 😉
I know. It’s been hard work, a bit like pulling teeth. I am very pleased we have reached the 10,000. In fact other thyroid petitions have not made even the 10,000 so this is a rare one. Whilst we have well over 100,000 members and might have expected this to be easy, it’s still been tough. The nature of our illness makes just day to day existence a trial and getting our head round any extras clearly difficult. We all just want to feel better. That’s our focus. Nothing wrong with that. I certainly wish my brain worked ‘efficiently’ enough to push for more. Onwards and upwards - slowly.
Thankyou for all your support Fruitandnutcase. Happy Christmas to you too! 🎄🦋🎄
great news!
Well done everyone, great news!
Let's hope "they" now agree to debate the proposal and then come to a sensible decision.
Research is key to overcoming the existing belief structure that is causing so many thyroid patients so many health problems.
Happy Christmas!
Well done! 👍😄
happy Christmas to u all x
well done
Well done, Fruitandnut. I wouldn't know where to start. Definitely contact MPs but have a break until the new year. Enjoy the holiday.😊
Well done and happy Christmas! 🎄
that’s wonderful we’ll that’s wonderful news
Happy to share with my local MP Jake Berry if you draft a letter we can all send out.
If I may explain why I did NOT post my email to my MP:
MPs have a keen nose for organised lobbying where form letters are sent to all of them. And you are lucky to get an acknowledgement from them. Whilst it is frustrating, I have some sympathy.
Something like, if a constituent can't be bothered to write their own letters, why should I [ the MP ] bother to act or reply?
At the same time, not everyone is in a position to write their own letters.
On balance, I have decided to add my letter (marginally changed and anonymised).
I urge anyone who wishes to make use of it to work through and revise, add bits, remove bits, move things around. Just treat this as a suggestion of some things that you might wish to include. Certainly, don't just lift it all and paste into an email! And I have previously emailed on the subject so you might wish to add more explanation.
Good afternoon [ MP name ],
The issue of the grotesque over-charging has been going on for about ten years now. At last, the CMA has endorsed the huge fine.
£84 million fine for one medicine – that itself is only prescribed to a fairly small number of patients – should be seen as emphasising how appallingly the companies involved behaved.
However, the majority of that money just goes into the treasury. Whereas those patients affect feel that some degree of restitution is justified. Obviously, at an individual level, that simply won’t happen.
As a patient group – thyroid sufferers – it seems not unreasonable to suggest that a slightly generous allocation of funds to thyroid research might be seen as recognition.
I am writing to ask you to support this petition, and support or speak on the issue in any debate that occurs.
Am trying to limit the length of this letter but if you wish to ask anything, I’d be happy to explain further.
Give more funding for thyroid research and patients after price hike
A fine of £84 million has been levied for the price hike in liothyronine (T3), which had a significant impact on patients. We request that an amount equivalent to a proportion of the fine (1-5%) is made available for thyroid research and support for patients with hypothyroidism.
More details
Hypothyroidism is one of the commonest conditions in the UK. However 10-15% of patients despite levothyroxine treatment have persistent ill health, although some find their symptoms improve dramatically with liothyronine (another thyroid hormone). Despite being a common problem hypothyroidism has not attracted research funding and there have been no new treatments in decades. More funding for research and patient support might revolutionise the treatment and lives of many patients.
petition.parliament.uk/peti...
Regards
TSH levels too low and as meds are lowered TSH has lowered as well
Feel like giving up...constipation has come back :(
Please vote for our project!
Shall we try and get our money back from Greece?
Maybe it is our problems
