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feeling helpless. 😣

Gimssyyy222 profile image
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Hello everyone

I am in a desperate need of advice.

I am 29 years old female with hypothyroidism under medication since 2014. This year i was taking 75mcg of levothyroxine every day. I got pregnant on October and immediately consulted with my GP who asked me to do a thyroid function test. My GP informed me that the reports were normal no need to change medication . I found out later on my TSH was 4.8 . I was getting increasingly sleepy and tired at this point I wasn’t sure if it’s because of my hypothyroidism or due to my pregnancy.After ten days I consulted with my endocrinologist from my home country and I informed him about my Tsh level. He told me that my dose needs to be increased he told me i should take 87.5 . I took 87.5 afterwords after his consultation. After two weeks my midwife did a TSh test again which showed my tsh :1.4 and t4 :23.2

Unfortunately i had a missed miscarriage. This is my second time ....having a miscarriage. This breaks my heart !

I spoke with my GP few days back only she asked me to continue same dose 87.5 and have a blood test done at the end of December.

My heart rate is running high nowadays. 125/min and 130 / min most of the times . At this point, i want to consult with a good endocrinologist. However my gp is not referring me to an endocrinologist. I don’t want to concieve again without maintaining my dose . The recurrent miscarriages is impacting my mental health tremendously.

Please could anyone advice me how can i consult with an endocrinologist without referral. I am fed up at this point !!

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Gimssyyy222
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SlowDragon profile image
SlowDragonAdministrator

Very sorry for your loss

Are you based in U.K.

BEFORE booking consultation get FULL thyroid and vitamin testing

Extremely important to maintain OPTIMAL vitamin levels, especially before TTC

Is your hypothyroidism autoimmune?

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

See detailed reply by SeasideSusie

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Here’s link for how to request Thyroid U.K.list of private Doctors but also list of recommended thyroid specialist endocrinologists

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

thyroiduk.org/contact-us/ge...

SlowDragon profile image
SlowDragonAdministrator

pregnancy and being hypothyroid

Before TTC thyroid levels need to be stable

verywellhealth.com/infertil...

.

Pregnancy guidelines

thyroiduk.org/having-a-baby-2/

NICE guidelines that if hypothyroid or subclinical you should see endocrinologist BEFORE TTC

cks.nice.org.uk/topics/hypo...

gp-update.co.uk/files/docs/...

IMPORTANT See pages 7&8

btf-thyroid.org/Handlers/Do...

Also here - dose increase in levothyroxine as soon as pregnancy test confirms conception

cuh.nhs.uk/patient-informat...

thyroidpharmacist.com/artic...

Low ferritin, low thyroid levels and miscarriage

preventmiscarriage.com/iron...

Low iron and hypothyroid

endocrineweb.com/news/thyro...

Folate and B12 and Neural tube defects and autism

healthunlocked.com/thyroidu...

Gingernut44 profile image
Gingernut44

Where in the country are you. This will help any members to suggest a suitable Endo.

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