T3 and Afib : My tsh only test hospital took is... - Thyroid UK

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T3 and Afib

Lilylui profile image
11 Replies

My tsh only test hospital took is 1.98 in range. Range on blood test is 0.04-4

I saw cardiologist should have seen the EP but it said one of his team, he said an ablation was not really necessary as I manage my symptoms. And until my thyroid sorted I would just go back in.

he did a tsh as all he could order for thyroid. But said the endroconologist might do a full panel.

The endro told me that the T3 could be causing my Afib, I am on 40 micrograms split into 2 doses.

I had a bad reaction to levothyroxine after the first and only vaxx ! And can’t take it anymore.

any ideas? I want out of this AF.

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Lilylui profile image
Lilylui
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11 Replies
SlowDragon profile image
SlowDragonAdministrator

you need FULL thyroid and vitamin tests

You may need dose increase

is your hypothyroidism autoimmune

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

On T3 - day before test split T3 as 2 or 3 smaller doses spread through the day with last dose 8-12 hours before test

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

See detailed reply by SeasideSusie

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Lilylui profile image
Lilylui in reply to SlowDragon

I wanted a private one but can’t get a draw, nearest one was over 2 hours away and gp surgery said no last year when I asked.

The private nurse made everything out of my price range sadly

SlowDragon profile image
SlowDragonAdministrator in reply to Lilylui

More clinics and some Superdrug now offering blood draw

Also other private testing options becoming available

Lilylui profile image
Lilylui in reply to SlowDragon

thank you I have tried I am really rural and nearest one is Cardiff that’s over 2 hours away

I don’t have a super drug round here only big shop is Tesco 40 Mike round trip

I asked at chemist but they don’t have anyone either to do it 🤦‍♀️I might try finger draw but I didn’t get enough last time for them to test

Have looked for other places but not having much luck

arTistapple profile image
arTistapple in reply to Lilylui

If doing the finger prick is a problem.

Ask for extra lances from your private testing company. Also, believe it or not some fingers are better than others for getting blood out of. Learn which ones are yours. So plenty of lances help you relax and this really helps with getting enough blood for finger prick tests. Ask every time you buy a blood test and you might be able to keep some in reserve. As well as exercising beforehand, get a basin of hot water for your hands prior to taking test. It’s worked for me and I am literally ‘like getting blood out of a stone’ when I must do it. Saves a fortune on nurse blood draws.

LAHs profile image
LAHs in reply to Lilylui

Lilylui, do the drive.

I know it is inconvenient but it is a small price to pay to get good treatment. I am in that position. I drive 200 miles to the doc that prescribes me the only medication that keeps me normal. It is three hours there and three hours back and I do it three times a year to pick up my prescription or get an occasional blood test. It is what I do instead of putting up with the frustration of trying to get local doctors (and Endos) to prescribe the correct dosage for me or order the right number of tests (which they won't or have no clue as to what I am talking about - T3! Oooooh can't measure or prescribe that!).

Do the drive, it's the lesser of a number of evils.

Bearo profile image
Bearo

I was really surprised when I googled ‘private phlebotomy’ to find a tiny private clinic just five minutes from my home. I don’t live in rural Wales, but my search did show there’s been a proliferation of private testing places. I contacted this new one round the corner and they’ve said they’ll have to see the tube before confirming if they can do it. And they’ll charge £20 which I think is a bit steep.

I got the nurse at the GPs to do it a couple of times by just springing it on her without asking, but I think they might be hiring a phlebotomist now, who can only do what’s been ordered by the GP.

Have you tried requesting private draw at your local hospital?

Lilylui profile image
Lilylui in reply to Bearo

Yes and at GP surgery but they just said test I am having is fine and I don’t need the full one 🤦‍♀️

Bearo profile image
Bearo

The last time I did a finger prick test I made sure I was really well hydrated - drinking water the day before as well as the hour before. It made a big difference to the blood flow.

Bearo profile image
Bearo

These are a few notes I saved from previous posts on hypothyroidism and Atrial Fibrillation:

May or may not be linked to having thyroid disease

As far as hypothyroidism in general is concerned a body of research on people would really need to be put together that Hypothyroidism specifically causes Afib, though it is agreed not receiving treatment long termly causes multiple health problems including heart disease. My limited understanding is that this is due to the high cholesterol levels that it causes which does affect the heart functioning leading eventually to a heart attack if not addressed.

There is evidence that over treatment, especially of T3 is linked to Afib if Ft 4 & Ft3 are not kept in range... this from two highly regarded thyroid doctors. .

I acknowledge that Hypothyroidism is well known for the diversity of how it can present so can't say it would not result in Afib but it isn't a main symptom

——

LAHs profile image
LAHs in reply to Bearo

Yes, I agree. From my own personal experience when I was fiddling around with my T4/T3 doses I found simply that if I took too much T3 then I would get Afib. The answer was to immediately drop the dose to the previous dose and then creep up on it again in smaller increments. The other thing is to watch your blood pressure. Do the same thing. If your Blood pressure rises too much, cut back on the T3.

These effects are probably the reason why doctors are reluctant to prescribe T3. If the dose s/he suggests is too far over your limit you may not survive to the next appointment. You have to react immediately if your dose affects your heart (well, the next day when you take your next dose of T3). Therein lies the problem.

It's a good idea to buy a blood pressure machine from the chemist, these days they will also detect Afib. Take measurements frequently throughout the day when you are changing T3 doses.

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