Help determining blood results : My daughter is... - Thyroid UK

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Help determining blood results

Briggsi profile image
67 Replies

My daughter is 17 and is currently undiagnosed. I wrote on here a few days ago about how our NHS GP isn't taking her symptoms seriously and just wants to monitor but it is making her quite poorly.

Here are her blood results over a period of time and the ranges are in brackets. Just wondered if someone could kindly assess them for us.

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Briggsi profile image
Briggsi
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67 Replies
Jaydee1507 profile image
Jaydee1507Administrator

Unfortunately, to get a diagnosis and begin treatment in this country she will need to have 2x TSH results (tested by NHS)above range 3 months apart or one test above 10. That is just the way its determined that anyone needs treatment. They like to be sure as it is a medication for life.

Of course there is a lot of suffering that happens whilst awaiting the magic numbers in blood tests but in the mean time you can be working on low vitamin levels caused by being hypo and the low stomach acid it brings.

Some GP's believe that you have no symptoms until your numbers stray out of range which of course is not correct.

NICE state that a ferritin of 30 or less is deficient. Do point that out to your GP who should be prescribing an iron supplement.

Is she supplementing anything yet? Her B12 appears to have risen.

She should be supplementing ferritin, folate, B12 & D3 which will contribute to feeling a little better. Her low ferritin alone will be causing many symptoms.

Low ferritin symptoms
Briggsi profile image
Briggsi in reply toJaydee1507

She is on multivitamins because they won't prescribe. They have refused to give any advice on how to manage symptoms

Jaydee1507 profile image
Jaydee1507Administrator in reply toBriggsi

Doctors dont get training in nutrition or understand how hypothyroidism, even in the early stages affect our absorption of vitamins.

This group doesn't recommend the use of multivitamins for many reasons. They often contain iodine which shouldnt be taken with Hashi's, they have low amounts of frequently inactive vitamin types.

Better to test key vitamin levels and supplement with high dose quality active type vitamins.

SlowDragon profile image
SlowDragonAdministrator

Serum Ferritin 20ug/L range 15.0 -150.0

Her ferritin is extremely deficient

Is she vegetarian or vegan

Heavy periods?

She needs full iron panel test for anaemia immediately

Quite likely iron infusion

And definitely a coeliac blood test too

aiming to improve ferritin to at least over 70

cks.nice.org.uk/topics/anae...

Serum ferritin level is the biochemical test, which most reliably correlates with relative total body iron stores. In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency.

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing. It’s possible to have low ferritin but high iron

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

Medichecks iron panel test

medichecks.com/products/iro...

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

healthunlocked.com/thyroidu...

Posts discussing Three Arrows as very effective supplement

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Iron patches

healthunlocked.com/thyroidu...

Thyroid disease is as much about optimising vitamins as thyroid hormones

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin

healthunlocked.com/thyroidu...

Iron and thyroid link

healthunlocked.com/thyroidu...

Posts discussing why important to do full iron panel test

healthunlocked.com/thyroidu...

Good iron but low ferritin

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Chicken livers if iron is good, but ferritin low

healthunlocked.com/thyroidu...

Shellfish and Mussels are excellent source of iron

healthline.com/nutrition/he...

Iron deficiency without anaemia

healthunlocked.com/thyroidu...

Ferritin over 100 to alleviate symptoms

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Great research article discussing similar…..ferritin over 100 often necessary

ncbi.nlm.nih.gov/pmc/articl...

Low Iron implicated in hypothyroidism

healthunlocked.com/thyroidu...

Ferritin range on Medichecks

healthunlocked.com/thyroidu...

Inflammation affecting ferritin

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

We have received further information the lab about ferritin reference ranges. They confirm that they are sex dependent up to the age of 60, then beyond the age of 60 the reference range is the same for both sexes: 

Males 16-60: 30-400 ug/L

Female's: 16-60: 30-150

Both >60: 30-650 

The lower limit of 30 ug/L is in accordance with the updated NICE guidance and the upper limits are in accordance with guidance from the Association of Clinical Biochemists. ‘

Briggsi profile image
Briggsi in reply toSlowDragon

Been tested for coeliac just told normal. Used to have very heavy periods before put on mini pill.

Emaych61 profile image
Emaych61 in reply toBriggsi

How much gluten was she consuming before she had the blood test? I only ask because I’m currently awaiting a blood test for coeliac disease, but I’ve got another four and a half weeks (minimum) to go before I can have it. Why? Because I was away on holiday for a week and fed up with the way my bowel was behaving (and suspecting gluten as a possible cause) I decided to come off gluten to see if it helped. I had three days which were almost certainly gluten free and three when gluten may have got into my diet in very small amounts (soy sauce, marmite). Actually things did calm down but when I got back I discovered that for coeliac testing you need to have at least one portion of gluten (as in slice of bread, pasta or bowl of cereal) a day for at least six weeks prior to the test or you risk a false negative result even if you are coeliac. I did actually check with CoeliacUK about this (worth doing incidentally) and they did confirm it. I currently have around two portions of gluten a day.

Briggsi profile image
Briggsi in reply toEmaych61

We eat normally so she has lots of gluten either via bread etc. She has had test for coeliac and was negative. She isn't keen on trying gluten free because she likes bread, wraps and pasta. People have also told her gluten free stuff is horrible so no idea but it means a massive change for both of us if we did.

Emaych61 profile image
Emaych61 in reply toBriggsi

I was only on gluten free for a few days so I can’t comment too much on that and I’m also used to not being able to have things I like due to other digestive issues. That said I do have a friend who is coeliac and she doesn’t find it too bad (bread is the one thing that still isn’t great apparently). I will say that some years ago I had to go gluten free for a month as part of a FODMAP diet and we were so impressed with a type of ginger biscuit we found that we routinely have those now because they are so much better than any other ginger biscuit we’ve tried. Everyone else who has tried them has said the same thing, they are really, really good! So it’s not all awful and things are improving all the time.

Cherwin profile image
Cherwin in reply toEmaych61

Warburtons GF Tiger bread is quite palatable, and scores ‘good’ on the Yukka food app.

Bearo profile image
Bearo in reply toEmaych61

Ooh…what make is this, please?

I love ginger biscuits….generally try to avoid as they are definitely ultra processed food…..but if we do have them we’ve found M&S to be more gingery than others. I’m not gluten free so, of course, have never tried gluten free ginger biscuits.

Emaych61 profile image
Emaych61 in reply toBearo

Kent&Fraser. They’re not always easy to find (we came across them in a farm shop) so we order them online. We’ve had one or two packets where they either changed the mix or we had a faulty batch, but we’ve been getting them for six plus years now and still love them.

You really wouldn’t know they were gluten free.

greygoose profile image
greygoose

Pity the blood draws weren't all done at the same time of day, because you really cannot compare the TSH levels unless the are. Makes less difference with the FT4 and FT3 but even so, it's best if the blood is always taken at the same time. And best done early morning - before 9 am.

Briggsi profile image
Briggsi in reply togreygoose

I know that now but NHS don't see a relevance for time of day unfortunately

greygoose profile image
greygoose in reply toBriggsi

No, they don't. Incredible, isn't it!

Emaych61 profile image
Emaych61 in reply togreygoose

The other thing that’s incredible is the way they view the “normal range” as being absolute. No thought that actually being really rather low (or high) in the “normal range” may warn of a developing problem.

Briggsi profile image
Briggsi in reply toEmaych61

I agree. It's baffling

greygoose profile image
greygoose in reply toEmaych61

All in all, they don't understand very much about treating hypo at all. There are so many things they get wrong, it's a wonder any of us survive!

Emaych61 profile image
Emaych61 in reply togreygoose

It’s not just hypo - sadly. I had to have faecal samples sent in to rule out possible other causes of the very loose stool problem I’ve been having for a few months now. One of the things they were looking for was calprotectin (a marker of inflammation of the bowel). This was done after I had been off gluten/or on minimal amounts of gluten for a week, so things had improved. The normal range was (I think) 0 - 50ug/g. I came in at 48. That counts as “normal range” of course, so no action has been taken, despite obvious symptoms plus family history ( mother died as a result of colorectal cancer; son came back with a borderline - he was right on the line - positive for coeliac six years ago: he was in the US at the time and has never retested). As it happens I’ve been told to inform my gastro of the possibility of coeliac which I’ve done via secretary (though given I’ve not seen her since January of this year I’m not hopeful that I’ll get to see her any time soon) and of the change in bowel habit. Those tests also checked for H pylori, but came back negative. But you’d think with all that history, plus what else has been happening in recent months (raised TSH) they might think “hmmm - is something going on here?

greygoose profile image
greygoose in reply toEmaych61

Total lack of imagination! A machine could do the same job. Sigh.

Emaych61 profile image
Emaych61 in reply togreygoose

As someone said on another site on HealthUnlocked, they need to be careful. AI!

Polo22 profile image
Polo22 in reply togreygoose

slightly off topic but yeah they don't understand, yesterday GP was insisting I was over replaced because of TSH, suppressed at 0.01, I said no to reduction and it was suppressed as I was self medicating with T3, she was horrified, wanted to know exactly from where and whom I was sourcing T3. I was horrified as it became glaringly apparent she had no idea what T3 was, I valiantly attempted to educate her, it was a fools errand,

greygoose profile image
greygoose in reply toPolo22

Very, very few of them actually know what T3 is, most of them have never heard of it. Just goes to show what a terrible education they're getting. And, what's worse, they don't have the interest or curiosity to improve their knowledge of one of the most common disease that they have to deal with constantly. They are content to let people suffer and blithely tell them 'it's all in their heads'! They really should be ashamed of themselves.

SlowDragon profile image
SlowDragonAdministrator

If your daughter eats a goose balanced diet with plenty of red meat, yet still has low ferritin GP should be doing coeliac blood test

Coeliac test should also be done because high TPO antibodies confirms autoimmune hypothyroid disease

nice.org.uk/guidance/ng20/c...

1 Recognition of coeliac disease

1.1.1 Offer serological testing for coeliac disease to:

people with any of the following:

persistent unexplained abdominal or gastrointestinal symptoms

faltering growth

prolonged fatigue

unexpected weight loss

severe or persistent mouth ulcers

unexplained iron, vitamin B12 or folate deficiency

type 1 diabetes, at diagnosis

autoimmune thyroid disease, at diagnosis

irritable bowel syndrome (in adults)

first‑degree relatives of people with coeliac disease.

She has been anaemic since at least 2021

What was treatment after ferritin result of 4 ( 16-93) in 2021?

Briggsi profile image
Briggsi in reply toSlowDragon

I think it was iron tablets. Quite high dose

SlowDragon profile image
SlowDragonAdministrator in reply toBriggsi

And ongoing

Needs to continue to get iron and ferritin levels up higher

greygoose profile image
greygoose in reply toSlowDragon

If your daughter eats a goose balanced diet

'Ere! No goose-eating on here, please! 🤣🤣🤣

SlowDragon profile image
SlowDragonAdministrator

Vitamin D

In 2021 her vitamin D was deficient

What was she prescribed

Should have been given loading dose of 300,000iu over 6-8 weeks and retested at end of prescription

Also advised that she will need ongoing daily vitamin D and retest ideally twice yearly

What is her most recent vitamin D result

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via NHS private testing service when supplementing

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Vitamin D may prevent Autoimmune disease

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Interesting article by Dr Malcolm Kendrick on magnesium

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

Briggsi profile image
Briggsi in reply toSlowDragon

I don't remember exactly what she was prescribed but it was over 16 weeks and then tested again and it went back up to 35 ug/L for Ferritin

SlowDragon profile image
SlowDragonAdministrator in reply toBriggsi

Which is still inadequate

But all NHS will do as is “within range “

SlowDragon profile image
SlowDragonAdministrator

B12 and folate are inadequate

But not low enough for GP/NHS to treat

She will need to self supplement to maintain GOOD levels

Low B12 symptoms

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement and a week later add a separate vitamin B Complex 

Then once your daughter’s serum B12 is over 500 (or Active B12 level has reached 70), she may be able to reduce then stop the B12 and just carry on with the B Complex.

If Vegetarian or vegan likely to need ongoing separate B12 few times a week

B12 drops

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)

Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

Other options

healthunlocked.com/thyroidu....

Igennus B complex popular option too. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when she stops vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12 until over 500

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

helvella.blogspot.com/p/hel...

Briggsi profile image
Briggsi in reply toSlowDragon

She isn't vegetarian or vegan

Cherwin profile image
Cherwin in reply toSlowDragon

I’m amazed at your knowledge and references, I have an autoimmune condition and all the information is so helpful. Thankyou .

SlowDragon profile image
SlowDragonAdministrator in reply toCherwin

You can read my profile

I wasted 20 years with terrible ill health and zero help or knowledge from NHS

Only regained full health with knowledge on here (and private testing)

SlowDragon profile image
SlowDragonAdministrator

Lastly diet

Hashimoto’s and Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances.

Most common by far is gluten.

Dairy is second most common.

A trial of strictly gluten free diet is always worth doing

Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential

A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet 

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially) 

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

pubmed.ncbi.nlm.nih.gov/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial

Hashimoto’s and leaky gut often occur together

Post discussing gluten

healthunlocked.com/thyroidu...

Briggsi profile image
Briggsi in reply toSlowDragon

Lovely thank you

SlowDragon profile image
SlowDragonAdministrator

Strongly recommend getting FULL thyroid and vitamin testing in 2-3 months privately after working on improving low vitamin levels

Start on separate B12 and add vitamin B complex in week or so

Meanwhile get vitamin D tested

Get GP to do full iron panel test for anaemia

Or test via Medichecks

And in a month or so start strictly gluten free diet

Retest 6-8 weeks later

ALWAYS test early morning, ideally before 9am and only water to drink between waking and test

Essential to test Ft4 and Ft3

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon will test under 18’s

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

See detailed reply by SeasideSusie

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Come back with new post once you get results

Briggsi profile image
Briggsi

GP has said they won't look at private blood tests but refused to do anymore blood tests until 6 months is up.I will do what I can.

SlowDragon profile image
SlowDragonAdministrator in reply toBriggsi

But you need to know wether making progress by testing privately

Essential to maintain GOOD vitamin levels

This will also reduce symptoms

Briggsi profile image
Briggsi in reply toSlowDragon

I am considering a private blood test. As a single parent I have to ensure my money is being used appropriately. If they are purely for my benefit we don't get anything from them because it doesn't seem like anyone else will listen. I am fed up of being asked if I want counselling because I get upset over it. Last night made me mad because doctor put on my daughters notes that I had refused counselling for myself. That was a hard conversation with my daughter.

SlowDragon profile image
SlowDragonAdministrator in reply toBriggsi

25 years ago GP refused to refer me to endocrinologist.

He said I had “chosen “ to become bedbound/in wheelchair (with two toddlers at home)

I accepted the referral to psychologist. 6 x 1 hour sessions. Psychologist wrote a glowing report that I was coping with great resilience in face of severe physical illness and that she was dumbfounded I had not been seen yet by endocrinologist

On strength of this report I got my request for referral to endocrinologist of my choice (adrenal/pituitary/thyroid specialist) ….even back then it took another 6-8 months wait to be seen

Briggsi profile image
Briggsi in reply toSlowDragon

Oh no sounds awful. At least you got seen but I doubt a counsellor will do that for me to be honest. Other things might come out that I need to keep at bay or I may not cope

MissMonty profile image
MissMonty

Hi Briggsi. I would highly recomend getting a copy if Rachel Hill's book: Be your own thyroid advocate. She is an award winning thyroid patient advocate, who struggled as a teenager/ young adult to get a thyroid diagnosis and effective treatment. She has some great resources on her website also. I hope this provides some usefull information and a positive story for your daughter x

Hi Briggsi, Maybe test her for allergies as something is disrupting her endocrine system. Does she dye her hair or use other medications?

Briggsi profile image
Briggsi in reply to

She is on lansoprazole and pizotifen. She does dye her hair but only since August and her symptoms have been going in a year now.

SlowDragon profile image
SlowDragonAdministrator in reply toBriggsi

Why is she on Lansoprazole

This is a PPI for high stomach acid

Most thyroid patients have LOW stomach acid

All PPI will lower nutrient levels

Thousands of posts on here about low stomach acid

healthunlocked.com/search/p...

Web links re low stomach acid and reflux and hypothyroidism

nutritionjersey.com/high-or...

stopthethyroidmadness.com/s...

thyroidpharmacist.com/artic...

How to test your stomach acid levels

healthygut.com/articles/3-t...

meraki-nutrition.co.uk/indi...

huffingtonpost.co.uk/laura-...

lispine.com/blog/10-telling...

Useful post and recipe book

healthunlocked.com/thyroidu...

Ppi will lower vitamin levels even further

gov.uk/drug-safety-update/p...

webmd.com/heartburn-gerd/ne...

pharmacytimes.com/publicati...

PPI and increased risk T2 diabetes

gut.bmj.com/content/early/2...

Iron Deficiency and PPI

medpagetoday.com/resource-c...

futurity.org/anemia-proton-...

pizotifen

Presumably for headaches or migraines?

Both are HYPOTHYROID symptoms

Emaych61 profile image
Emaych61 in reply toSlowDragon

In my experience PPIs are the first thing doctors reach for for digestive issues such as reflux, heartburn etc, if milder forms of medication (eg. Gaviscon Advance) aren’t sufficient to control symptoms. The fact that the cause might be low stomach acid rather than high never seems to occur to them, and to be fair the symptoms for the two are very similar and the only way to tell for sure is 24hr pH monitoring and manometry, both of which will almost certainly require referral to a consultant gastro.

Litatamon profile image
Litatamon in reply toSlowDragon

Just want to make sure you took in what SlowDragon posted above. Simply reiterating. PPIs are notorious for interrupting the absorption of nutrients.

They are a known detriment to b12 absorption.

Briggsi profile image
Briggsi in reply toLitatamon

Yes I have read it but not sure what I can do about that.

Litatamon profile image
Litatamon in reply toBriggsi

If it is low stomach acid & not high causing the issues, there are ways of helping with that without taking medication (Obviously no one knows 100% that it could be low stomach acid)

I am on the PAS forum here on HealthUnlocked (Pernicious Anemia Society/b12 deficiency). Over the years members have mentioned being successful with things like taking a shot of lime juice before meals; ACV; Betaine HCl plus pepsin.

I am not telling you to switch over to any of these choices, but you might want to come over to that section and discuss dealing with these issues.

Simply because PPIs are a known culprit of causing low absorption of nutrients.

in reply toBriggsi

I would ask them to test for H pylori to rule that out.

Briggsi profile image
Briggsi in reply to

What is that?

Emaych61 profile image
Emaych61 in reply toBriggsi

It’s a bacterial infection that can cause digestive issues, ulcers, inflammation of the bowel.

Litatamon profile image
Litatamon in reply toBriggsi

It is also a known culprit of low b12 levels.

Buddy195 profile image
Buddy195Administrator

Keep posting to let us know how your daughter is getting on. Always remember that when GP s say ‘within range’ or ‘normal’ it is likely not the same as ‘optimal’.

Sending you very best wishes; you’ve got a lot of information in your two posts so far to look into- it takes time to digest & process new information (& it can be confusing!)

Do keep posting if you need further advice/ clarification. Members are here to help & support each other. 🦋

Briggsi profile image
Briggsi in reply toBuddy195

Thank you it has been helpful. I will keep plugging away at it but I need GP to listen.

Shazzy2 profile image
Shazzy2

Sorry to hear this my daughter has just been diagnosed thou I know she has Been not been diagnosed for years as I have hashimotos myself also she has low iron I actually took her Nhs gp results to my private endo he said she’s not on enough thyroxine and has low iron also the gp has not told her this and not put her on a supplement she has had depression on and off and terrible periods ect for years I’m very upset u should not have to go private to get help for any condition I’m on t3 as thyroxine never worked for me and iv had a big battle over the years to get to where I am now I really feel for your daughter and I hope she gets better soon

Briggsi profile image
Briggsi in reply toShazzy2

Thank you 😊

Hisue profile image
Hisue

My daughter (a good student & athlete) was severely fatigued, had trouble functioning & was sleeping 12 hrs or more, when in HS.

The pediatrician sent us to gp/rheumatologist, who did more blood tests - couldn't diagnose & said she was suffering from depression

I asked the pediatrician for a second opinion & she sent us to a pediatric disease specialist. He did more specific blood tests & determined she had severe mycoplasma pneumonia. (She did not have depression,)

It took several months of bed rest & home-tutoring for her to recover.

Briggsi profile image
Briggsi in reply toHisue

Sorry to hear this. I am hoping its just her thyroid right now. I hope your daughter is feeling better.

Hisue profile image
Hisue in reply toBriggsi

Yes. If learned that if the dr doesn't order the right blood tests - they frequently like to diagnose "depression". I have seen this happen repeatedly (in USA).

Emaych61 profile image
Emaych61 in reply toHisue

Over here the two favourites for anything the doctors can’t otherwise explain are “stress” and “anxiety”. Unless there’s a temperature involved of course, then it’s “probably a virus”.

Hisue profile image
Hisue in reply toEmaych61

Interesting. In the US, docs like to use the MDD diagnosis, instead a just saying, "I don't know- let's call in a consult. My daughter repeatedly told him that she was not depressed. He wanted to send her to a psychiatrist and load her up on antidepressants! Frightening.

FallingInReverse profile image
FallingInReverse in reply toHisue

The worst. I can still hear my doctors voice all dismissive and skeptical when I showed him my symptom tracker and telling him I would have to involuntarily take naps a few times a week.

“Stop all this tracking…” he said as he waved his hand dismissively. “Get more exercise,” he says. “These should be the best years of your life” he says. Then in my report along the write up he writes “Denies depression.” As if saying it he was saying I had it but deny it.

I am always clear about what feels like “situational depression” - like when you sit and stare at the ceiling for hours too tired to get up or do anything and too much brain fog to think clearly. Who wouldn’t feel sad abiut being so limited. To heck with the knee jerk reaction to prescribe anti-depressants! My t4/t3 was all I needed, imagine that.

Hisue profile image
Hisue in reply toFallingInReverse

So glad you followed your instincts about your thyroid.

With the USA having private-pay medical, affirmative action drs & the now optional Hippocratic oath -our drs make "big bucks", even if "the operation was a success, but the patient died."

Unnecessarily loading patients up on antidepressants & other psychotropics is just criminal.

And yes, (me,too); "Dr. Wrong Diagnosis "wrote on my daughter's chart: "overprotective, difficult parent". 😳

FallingInReverse profile image
FallingInReverse in reply toHisue

Oh that burns me up just to hear it.

Hisue profile image
Hisue in reply toFallingInReverse

I'd like a refund for the cost of the visit.🤔

Mixteca profile image
Mixteca

To reiterate what SlowDragon said - do a full iron panel before taking any supplements. Mine ferritin was 30 when I had an iron infusion, so you need to see the complete picture first. Vitamin screening good too.

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