Black Seed Oil ….yes or no?

[Bollieforme]

hi I would like to enquire if any one has tried Black Seed Oil to help improve their symptoms and if you could pass on any feed back please. I’ve just seen a video by Dr Weston Child’s who highly recommends it.

[Jaydee1507 Administrator]

I'm not sure what symptoms he is saying it will help with?

Its not an essential vitamin as far as I am aware, but one that is essential and often low in people that might help is omega 3.

thyroidpharmacist.com/artic...

[greygoose]

This is often mentioned on here. The search facility on here is rubbish, but you might find something of interest here:

healthunlocked.com/search/p...

I've never tried the oil myself, but I have tried the seeds added to my food. And, I have to say, I did find them slightly invigorating. But, I usually forget to add them! lol Wouldn't say I found any other positive effects, though.

[Hopeful129]

I am in my second bottle. Its expensive and it is revolting! Wont be buying again.

[Charlie-Farley in reply to Hopeful129]

Hi Hopeful

I was pondering 🤔 so thank you for sharing this. Honestly there are so many supplementary products beyond the essential vitamins and minerals we get bombarded with. I think we could be slushing around, or rattling like a maraca depending on which form we were frightened into buying. I have to really notice and acknowledge the anxiety I sometimes feel when yet another must have comes to the fore.

I too have worked through various supplements only to decide it really isn’t worth it, no discernible benefit just the expense.

[Hidden]

I started using Black Seed Oil capsules, 1000mg about a year ago, right after I ended up with thyroiditis (from a virus I think). I take it primarily to bring down the antibodies (TPO). I started off at 184 kiu/l a year ago and as of last month I am down to 105 kiu/l, which is still much higher than the under 35 the lab report recommends, but it is coming down. I also take Vitamin D, zinc and a thyroid supplement called Thyrosmart. I was taking Levothyroxine but am now off that completely, but my latest labs show my TSH climbing again (from 9.86 miu/l to 11.45 miu/l to 5.78 miu/l and now back to 7.77 miu/l, Reference Range (Units):0.20-6.50 (mIU/L)). So I may have to restart the meds but at a low dose. I'll see what my doc says. I seem to react badly to Synthroid so I am trying hard not to need it at all. I found another doctor site that provides some more info on black seed oil you might find interesting. Anyway, best of luck with your thyroid journey and I hope you find some supplements that work for you. thyroidpharmacist.com/artic...

[greygoose in reply to Hidden]

dfjo, you do know that getting rid of the antibodies won't get rid of the Hashi's, don't you? The antibodies are the result of the disease, not the cause of it. With Hashi's your immune system slowly destroys your thyroid, mistakiing it for the enemy. The antibodies just come along after the attack to clean up the blood.

Thyrosmart contains iodine, which really isn't recommended for Hashi's, can make it worse. It's really just a glorified mult-vit, which is always a bad idea for many reasons, and will absolutely not maintain your thyroid health, nor any other of the claims they make, when you have Hashi's. And probably not even if you didn't.

[Bollieforme in reply to greygoose]

I don’t have a functioning thyroid so I think the black seed oil would probably not do me any good? Hashis worked is magic and killed it off

[greygoose in reply to Bollieforme]

Same here. Thyroid killed off years ago. But I don't think it has anything to do with the thyroid. Because if you're on thyroid hormone replacement, your thyroid won't be doing anything anyway, it will be asleep.

[Hidden in reply to greygoose]

Well, thanks for the smack down and 'educating' me, although I think I'll stick with my doctors advice instead. This lady asked for peoples experience with black seed oil, so I gave her mine for what it's worth. What I know is the synthroid reacts badly on me and if I can slow or manage the progression of the disease using natural supplements instead, I am going to do that. My doc has been excellent helping me on this journey from hyper to hypo back to hyper and now we seem to be swinging hypo again. I also know that the antibodies have progressively come down with every test. That's a good thing as far as I am concerned. Helping my body to heal itself is my primary goal. In the end, if I still need meds to help support the thyroid, that's okay too, but a holistic approach works best for me. So, I'll keep doing me, you do you and this lady can do what she thinks is best for her. I wish her well in her journey to better health.

[Hidden in reply to Hidden]

Well, I suggest you do that and come back in a year or so to tell us how it worked out.

[Hidden in reply to Hidden]

Antibodies will fluctuate all the time when you have Hashi´s. Over the years, mine have been both very high and well in range, but it did nothing to stop the progression of the disease. As greygoose points out, the antibodies are the result of the disease, although many doctors (incl. some self-proclaimed thyroid doctors) wrongly claim that antibodies attack and destroy your thyroid.

Over the years, various doctors told me that I was "cured" because my antibodies were suddenly in range. The next time, they would be high. If I had listened to them, I would have gone on and off meds a hundred times by now.

[Hidden in reply to Hidden]

Oh my goodness, I guess both my doctor and everything I have researched about thyroid disease is completely wrong. I'm really being 'educated' . I really should come on here more often to find out why making every effort to slow or reverse the progression of this disease is a bad idea and then just take higher and higher doses of prescription meds to control it instead. No thanks, I'll stick with the trajectory I am on (edited by admin)

[Hidden in reply to Hidden]

I have a question for you: have you heard of someone with diabetes 1 trying to go off insulin to try his or her condition with holistic/natural methods? Would you say that would be advisable?

[Hidden in reply to Hidden]

Type 1 diabetes is a mostly genetic disorder with no cure, my thyroid disease was caused by a virus. Don't conflate the two, that's disingenuous and misleading. I've heard of Type 2 diabetes patients going off insulin once they started on a full or modified keto diet, in fact my previous doctor had several patients that he got off insulin with lifestyle changes and nutritional supplements. I'd say it's advisable to use your own judgement and that of your doctor in managing your own health.

[greygoose in reply to Hidden]

Amazing how many people have no idea how their disease actually functions, and blame us when we try to explain it to them! And, obviously ignorant doctros aren't helping. So sad.

[Hidden in reply to greygoose]

Completely OT, but his "discussion" made me think of a conflict management course I attended a few years ago. The trainer described the following scenario (this was during the pandemic when most things took place online): you are having an online conference with some colleagues scattered all over Europe. Your first post: "So happy the sun is shining today". Most of your colleagues will reply: "Lucky you, wish I was there, it´s raining here". But someone will react differently, and say things like: "What do you mean the sun is shining? Just because the sun is shining where you live does not mean it´s shining everywhere". The discussion that followed focused on how to deal with such a reaction. Various strategies were suggested. Thank God we don´t have to worry about them because 1. we don´t work with the OP and 2. s/he left the forum.

At least we did what we could🙂.

[greygoose in reply to Hidden]

Yup, we did. But, as I always say, it's not just for the person that is posting the 'false information', but for other desperate people that might read it and get the wrong impression.

Your conflict management course sounds interesting. Probably something I should have done years ago, because I do seem to attract conflict! lol

[Hidden in reply to greygoose]

Did you notice that the OP said: "my thyroid disease was caused by a virus"? This is the first time I´ve read that Hashimoto´s is caused by a virus. I wonder if his/her doctor said that?!

Every time I see the name Westin Childs, an alarm bell goes off in my head. I used to subscribe to his newsletter. He claims to be a thyroid expert. But he has said things like: "Hypothyrodism will not cause much weight gain, no more than 5-10 pounds". Which I think is 2-4.5 kilograms. I have found that to be completely wrong. I am not at all sure he knows that much about thyroid disease and treatment.

[greygoose in reply to Hidden]

Oh, you're not the only one that feels that way about Westin Childs. He is seriously weird! A friend of mine wrote to me only yesterday about his latest obsession with T2. Trouble is, he is consitantly contradicting himself without ever admitting that he might have been wrong before.

An endo once told me that you only put on 4 kilos with hypo, the rest is down to pure greed! Aparently, he'd never heard of water retention.

I'm not sure about the virus. I have heard that before, but I'm pretty sure that whenever anyone talks about 'the cause of Hashi's', it's just speculation and not fact. I think, in reality there are many possible causes, how to know which one caused yours? Then again, did she really have a virus, or did she just have virus-like symptoms caused by the beginnings of hypothyroidism? So many questions and practically no answers. Just theories...

[Hidden in reply to greygoose]

Yes, I see what you mean...I was diagnosed with mononucleosis (Epstein-Barr) about five years before I was diagnosed with Hashimoto´s. Mononucleosis is a viral infection and a common trigger of Hashi´s according to some thyroid patient advocates. But, even if that triggered Hashi´s, I am not sure Hashi´s is in itself caused by a virus. At least, I don´t think there is a test for it!

[greygoose in reply to Hidden]

No, I don't think there is. But, who knows. People get these theories and cling to them despite all evidence to the contrary. But I think storming out of the forum in a huff is a bit exaggerated. lol

[Danielj1]

Spent a load of time effort and money trying various expensive brands in different strengths

Sorry to say but a total con and very little to no impact on thyroid

[Regenallotment]

I used it as recommended by Isabella Wentz for leaky gut and root cause protocol.

Tastes like burned car tyres!

1 tsp a day until I finished the bottle.

Felt great, alongside all the other AI protocol changes my digestion improved well. Apparently good for improving blood glucose control too.

I got mine from Amazon, organic, about £20 for 150ml I think.

[HealthStarDust in reply to Regenallotment]

Link please? I’m curious about this one.

[Regenallotment in reply to HealthStarDust]

Looked a lot like this one… order history doesn’t go back far enough amzn.eu/d/c1wcSjt

[Buddy195 Administrator]

I took it to try & alleviate dry eye from thyroid eye disease but it did nothing to improve these symptoms, nor did I find it had any noticeable benefits. When trying a new supplement I’ve found it’s worth trialling just one at once for a couple of months, so you can closely monitor the effects.