I just came across this page on the BTF website which relates to a webinar/debate entitled "T3 or not T3".
btf-thyroid.org/t3-or-not-t...
I should point out that the link is for a webinar that took place two years ago, but the year isn't mentioned. I only found out about the age by going to Youtube and looking at the video entry there.
I found many more webinar videos on this link, but again, no year is given.
btf-thyroid.org/Pages/Categ...
I just thought someone might be interested.
humanbean thanks for that. I saw it a while back and particularly enjoyed Prof Kristina Boelaert saying that those of us who didn’t recover after a couple of months T3 fell into the category of always miserable and no point further treatment with T3. I was surprised how uniformed she was about how tricky it is to get to an effective T3 dose . Worrying that this attitude is probably what she passes on to doctors training with her. suppose it was a debate and that was her role. Thanks for sharing it again it’s a good reminder of how lots of endos see us, how they have no idea just how debilitating hypothyroidism can be and why it’s such a battle to get help.
I think that’s why she is the new head of the The British Thyroid Association. More similar and in line with Pearce, Perros and Weetman’s thinking. I hoped for better, her being a woman and the huge number of women with the condition but I think in this field, clearly sexual ‘discrimination’ does not play a part, even when it should definitely play a part. Like we are not ready for a change yet in finding a way forward. Seems to me Taylor is thoroughly ready and not so much Boelart. Still it’s good to see and hear Taylor because of his enthusiasm. Both toeing the line but Taylor bolder and more up front - I thought.
arTistapple hi there, a few years back I worked in a specialist eating disorders clinic run by two amazing female consultants. They were absolute champions for their mostly female patients, they argued for patients not to be stigmatised, they argued for greater research funding to understand and treat this complex disorder and argued for better services and they worked for better understanding of eating disorders in their colleagues and the public and better respect for patients and families. I mistakenly thought that was just normal. Hypothyroidism is such a huge issue for women’s health but I’m struggling to see who the medical champions are. Maybe thyroid UK should set up some kind of award to encourage and recognise medical champions in hypothyroidism s as part of recognising and encouraging champions in women’s health. I say that as a male with hypothyroidism.
I know you are male Hashiboy and I hope you and all the males did not think I was taking a swipe. Very much not so. Like you, during part of my working life I did work in an environment very much like you have described. It’s such a shock with this illness and feeling vulnerable that you find many medics not openly agin you but not exactly for you either. It’s not just doctors it’s a society wide thing but in this field it’s extra shocking.
Hi arTistapple no, I didn’t see any sleight in your message. There’s no question that sexism is alive and well in all parts of society and medicine is no exception.
It is always worth trying different makes of T3. I tried a couple before I noticed a very quick (within 3 days) change in mood and feeling of wellbeing once I tried WP Thyroid (no longer on the market). I am now on one that is almost as good. I really think as far as T3 goes, it is 'Horses for Courses'.
Thanks for posting this humanbean . Good to know who is for and who against T3!
Yes, BTF has done quite a few webinars. You can find them all on their Youtube channel.
Nots - the T3 or not T3 webinar was deliberately made in 'debate format'. In fact, both speakers were in agreement with a lot of things, though Pete Taylor is a greater advocate of T3 I believe.
youtube.com/results?search_...
TaraJR hi, yes I can see the debate format might make them look them more polarised than they are.
Yes it does. But it seems lots of people don't understand that.Although as we know, there are certain drs who are vociferously against T3.
Yes, I’m lucky with my GP and endo but I have had experience of an endo who was really friendly but clearly really didn’t want to be dealing with a patient with persistent symptoms of hypothyroidism. He was the first to admit he didn’t know anything about T3 or want to get involved in managing patients on t3. He was the exception and even he was very friendly and up front about his lack of interest. I just wonder if some of them think we just have trivial quality of life problems (which I’m sure sexism makes worse for female patients).
Apart from the glorification of TSH and it’s blooming assays which was no surprise let’s be honest. I was more than a little perturbed by the percentage of people who had responded (in their own opinion) positively to a combination of T3/T4 were so easily caste aside by Boelart. A good example of how we are truly treated. The stats for such poor research seemed significant enough for me and Dr. Peter Taylor. For someone as enthusiastic as he is for patients he, like Bianco still toeing the TSH line is difficult to swallow but at least he wants to open up proper research into it all and made excellent points repeatedly about how poor the present research is and most importantly showed/questioned/proved the very poor research supporting Levo.
Agree entirely with Hashiboy about the trickiness of arriving at the correct dosage. This is a definite stumbling block to good research. However she did agree her preference for a six month trial in her clinic. Off course dosage would most certainly need to be considered, which there was no sign of in either doctor’s debating points.
I am going back to it now to listen to the Q&A.
British Thyroid Foundation - Patient information event - Thyroid Guidelines Update
Research into T3, using Gordon Skinner’s data
British Thyroid Foundation London Support Group Meeting 26th November
