I was diagnosed with over active Thyroid last January, originally started on 20mg of Carbimazole,then diagnosed with Gravesā disease in May.My carbizamole was reduced to 10mg and then to 5mg, I have my bloods taken every four weeks, two weeks ago I went to see the consultant, she said I was difficult to treat because although my ranges were in the now normal range my symptoms maybe showing signs that Iām going into underactive thyroid . I may have thyroiditis! Was told to stop medication and see which way my body goes and then they will know if I need to stay on carbizamole or Thyroxin, she said she would arrange for me to have a Cortisol test.
The letter that she sent to my GP differs to what she told me to do( copied from her letter )
āĀ Please can you monitor her TFT is on a monthly basis and stop the carbimazole completely if you find that the TSH continues to rise above 3.Ā I am going to get a synacthen test done on her and will review her progress in three months.ā
I had my bloods done yesterday and am now concerned the results will be significantly different to what they would be if I had stayed on medication
I did inform my GP and he just said let me know what the outcome is when I hear from the consultant. I also thought you had a chance of getting Grqves because of the āoverā active thyroid, If I go under active do I still have Grqves ?
I am sure you will see that I am not very good at explaining myself very well lol lol I was just hoping someone could explain to me in simple terms whatās what.
Thanks for reading a very confusing post š
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I donāt take any supplements, the tests were done back in April/ May, then diagnosed with Grqves. Thankyou for your reply, I will look into the supplements today
With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement and a week or so later add a separate vitamin B ComplexĀ
Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.
If Vegetarian or vegan likely to need ongoing separate B12 few times a week
Igennus B complex popular option too. Nice small tablets. Most people only find they need one per day. But a few people find itās not high enough dose
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12 until over 500 ( or Active B12 over 70)
Post discussing how biotin can affect test results
Yes - Graves is an auto immune disease and as such - for life.
Generally diagnosed when your immune system attacks your thyroid because the thyroid is a major gland and responsible for one's body full synchronisation and metabolism and the and you can't live without a thyroid - or replacement thyroid hormone medication.
Do you know how to find your previous post/question as I think I thought I'd explained this before - just press the Profile icon top right and that should take you to all you have ever written and all your replies.
It can be bit like being on a seesaw - stuck up too high and unable to touch the ground - or stuck down in the ground and unable to maintain momentum.
The Anti Thyroid drug simply blocks too high a level of T3 and/or T4 and once your T3 and T4 levels fall back down into range the AT drug should be titrated down so your T3 and T4 stay in the ranges at around mid way.
The most recent research is suggesting that the longer the patient stays on the AT drug and better the longer term outlook for the patient :-
Do you have any current readings and ranges of your T3 and T4 blood test results ?
If you have online access to your medical records - can you share what you can see there ?
A TSH over 3 generally suggests the patient has become hypothyroid and the T3 and T4 now too low in the ranges - and the AT drug needs to be titrated down again :
There is another treatment option referred to as Block and Replace which may solve this problem - as you stay on the AT medication at a higher dose to relieve symptoms
BUT ADD IN a measured dose of T4 - Levothyroxine so your T3 and T4 do not fall too far through the ranges causing the equally disabling symptoms of hypothyroidism.
In this way you stay on the AT drug as the research above suggests - but that you keep your T3 and T4 midway by taking a measured dose of T4.
Did you get in touch with the The Eye Disease Charitable Trust and get sign posted to a specialist eye/endo team who jointly manage your symptoms ?
Trust you are now taking Preservative Free eye drops and ointments - how are your eyes ?
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