Erfa swap update: my ferritin has just come back... - Thyroid UK

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Erfa swap update

Starseed56 profile image
17 Replies

my ferritin has just come back as 28 (5-204)

I think this is my iron store so it’s clearly deficient. I’ve struggled with anaemia since I was about 18 (maybe before but no cause before then for a blood test it was discovered when I became a donor) No one has ever given me a reason for this! And I didn’t become a vegetarian til my late 20s.

I used to take floradix but recently someone told me that was rubbish. Prescribed iron was always useless for me. I couldn’t absorb it and it messed with my gut/bowel.

what do others take to help this level go up please? 💜

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Starseed56
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helvella profile image
helvellaAdministratorThyroid UK

You might find my iron blog worth a look.

helvella - Iron Document

This is a summary of what I have read up and found out about iron supplements over the past few years. I am not in any way medically trained. You are strongly encouraged to check every detail before making any decisions for yourself.

helvella.blogspot.com/p/hel...

Starseed56 profile image
Starseed56 in reply to helvella

Thank you 🙏💜

SlowDragon profile image
SlowDragonAdministrator

cks.nice.org.uk/topics/anae...

Serum ferritin level is the biochemical test, which most reliably correlates with relative total body iron stores. In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency.

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing. It’s possible to have low ferritin but high iron …..though unlikely if vegetarian

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

Medichecks iron panel test

medichecks.com/products/iro...

Look at increasing iron rich foods in diet

Eating iron rich foods like pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

An article that explains why Low ferritin and low thyroid levels are often linked

preventmiscarriage.com/iron...

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

healthunlocked.com/thyroidu...

Posts discussing Three Arrows as very effective supplement

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Iron patches

healthunlocked.com/thyroidu...

Thyroid disease is as much about optimising vitamins as thyroid hormones

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin

healthunlocked.com/thyroidu...

Iron and thyroid link

healthunlocked.com/thyroidu...

Posts discussing why important to do full iron panel test

healthunlocked.com/thyroidu...

Good iron but low ferritin

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Chicken livers if iron is good, but ferritin low

healthunlocked.com/thyroidu...

Shellfish and Mussels are excellent source of iron

healthline.com/nutrition/he...

Heme iron v non heme

hsph.harvard.edu/nutritions...

Ferritin over 100 to alleviate symptoms

healthunlocked.com/thyroidu...

Great research article discussing similar…..ferritin over 100 often necessary

ncbi.nlm.nih.gov/pmc/articl...

Low Iron implicated in hypothyroidism

healthunlocked.com/thyroidu...

Ferritin range on Medichecks

healthunlocked.com/thyroidu...

Inflammation affecting ferritin

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

We have received further information the lab about ferritin reference ranges. They confirm that they are sex dependent up to the age of 60, then beyond the age of 60 the reference range is the same for both sexes: 

Males 16-60: 30-400 ug/L

Female's: 16-60: 30-150

Both >60: 30-650 

The lower limit of 30 ug/L is in accordance with the updated NICE guidance and the upper limits are in accordance with guidance from the Association of Clinical Biochemists. ‘

Starseed56 profile image
Starseed56 in reply to SlowDragon

Thanks I’ll work my way thru that helpful info 💜

Mixteca profile image
Mixteca in reply to SlowDragon

Yet our bodies are all different with varying needs throughout time and some have absorption issues, not anaemia but iron deficiency without anaemia (IDWA) as mentioned in one of those articles, which makes things more complicated, especially with other deficiencies like B12 and folate in the mix.

I had a significant iron deficiency with ferritin of 41, which dropped to 30 within a month, and a transferrin saturation of 18%. As mentioned, supplementation didn't get my levels up very far nor did they reverse that decline. An iron infusion was my only option, despite not being deemed deficient by guidelines focused on anaemia.

Mixteca profile image
Mixteca

I too had been deficient for years and taking iron tablets didn't get my levels high enough. If absorption is the yet unidentified culprit, then an infusion might be your best way forward. Did you have a full iron panel done? This will give a clearer picture and you could take your results to an iron expert for advice, which is what I did in the end.

Starseed56 profile image
Starseed56 in reply to Mixteca

Yes I think it was quite comprehensive. All ok except for ferritin very low and serum iron level which was higher than parameter! Where do we stop paying for “experts”? Am just starting Quinton’s hypertonic for adrenal fatigue which undoubtedly I have. Private gp has now asked I do a cortisol test tho I’ve read they’re unreliable. Some doctors still so hooked on tests rather than how patient feels!

I think IDWA may be me as my haemoglobin was ok. Back to more reading. 😳💜

Mixteca profile image
Mixteca in reply to Starseed56

My haemoglobin was just above the guideline (1 digit!) threshold for an iron infusion on the NHS, despite my other results saying otherwise, but that was all they considered, so I had to go privately. IDWA was deffo my case.

Imaaan profile image
Imaaan

I've found lamb liver and heme iron combined with iron bisglycinate to be the most helpful. I've struggled with gastritis and other digestive issues for a few yrs and have found Optifera, 3 Arrows and Thorne to be gentle on my stomach

Starseed56 profile image
Starseed56 in reply to Imaaan

Thanks liver would be a step too far right now having been veggie nearly 40 years I’ve been eating beef since the start of 2023! Three arrows seems to be from US only? 💜

Imaaan profile image
Imaaan in reply to Starseed56

Yes but a few UK members have purchased it from online. I'm glad to hear you're back on beef for health reasons. May you reap the benefits

Starseed56 profile image
Starseed56 in reply to Imaaan

Thank you I’ll try a different search engine might bring forth a Uk supplier.

Imaaan profile image
Imaaan in reply to Starseed56

If still having struggling to find a link you can always ask Regenallotment or Eeyore because they're in the UK and order from online

Starseed56 profile image
Starseed56 in reply to Imaaan

just sending you a private message re goat kefir! 🐐💜

Imaaan profile image
Imaaan in reply to Starseed56

Thanks

helvella profile image
helvellaAdministratorThyroid UK in reply to Starseed56

Three Arrows is from USA only.

Regenallotment profile image
Regenallotment

just replied on a similar post healthunlocked.com/thyroidu...

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