Anyone with neuro symptoms

[Riana87]

Hello,

I was diagnosed with Hashimoto's in 2022 and then thyroid cancer at the same time. I had to remove thyroid with surgery. No other treatments were considered necessary.

I do blood tests every 2 months. I am now taking 100mcg Levo and 5mcg T3. My endo says to test 4 hours after T3, so I normally take both T4 and T3 at 4-5am and then do the test before 9am.

For those taking synthetic T4 and T3 - what would be your advice on best time/approach on the day of testing?

Thank you for the continuous sharing of knowledge. This forum has been so helpful.

[Jaydee1507 Administrator]

Our usual recommendation is to allow 24 hours for Levo and 8-12 hours for T3 before the blood test. This will then show stable blood levels of each hormone as opposed to the peak when you have recently taken it. See graph for how T3 behaves after you have taken it.

Do you have a recent copy of your blood results? If your Endo is advising you to test as he has then you may well be under replaced.

What supplements are you taking?

What are your most recent results for ferritin, folate, B12 & D3? We need all of these levels at OPTIMAL for our thyroid hormone to work well.

FT3 graph

[SlowDragon Administrator]

Looking at vitamin results a year ago ferritin was very low

Have you managed to improve this ?

As you have Hashimoto’s have you had coeliac blood test

Are you gluten free/dairy free

[Hookie01]

I no longer have a thyroid due to graves. I've just been through nerve tests as get numb and tingly arms and hands at night. Nothing wrong with my nerves. Vitamins are fine. I think it's my levo tbh, but who knows. Just something else I will have to put up with! Oh, and taking B6 and folate seem to make it worse!

[Regenallotment in reply to Hookie01]

I have this nerve thing too, also had all the tests…. It took a long time to figure it out but I think I am on to something. I’m certain it is related to b12. Reading over on the Pernicious Anaemia Forum I’ve learned you can have a satisfactory B12 blood test result yet still remain deficient. I’m still learning about it and how best to treat and am trying B12 injections and reduced my B complex as a result and can now feel it’s worn off as my tingling is back. More experiments needed to find my perfect balance. I agree though some supplements make it worse. Do you know if you have the MTHFR gene mutation? Apparently with this we tolerate methylated supplements better. Might be something there 🤷🏽‍♀️

[Regenallotment]

Hey your title mentions neuro symptoms, how are yours presenting?

I’m on a similar combo to you, 75/2.5 though I still have my uncooperative thyroid.

Contrary to general advice here I test 6.30am 24 hours after last dose of both. This fits in with work/life patterns and gives me a consistent result. I understand the logic of splitting last T3 dose and the graph but have found this process works for me and my private prescriber at Roseway says it makes so little difference in her experience she doesn’t know why we all obsess about it 🤣

I’ve replied to Hookie01 below about neuro symptoms. See if that rings any bells 🌱