Gp consultant : I posted my blood test results a... - Thyroid UK

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Gp consultant

Dawney63 profile image
10 Replies

I posted my blood test results a few days ago and the advice was a increase by either 12.5 or 25 mcg ( two diffrent replies) I was going to try the 12.5 to start with.I have just spike to a GP who was refused the increase as she says my TSH levels are in the normal range, I explained on the last 2 increases I was told it was normal range but those GPs agreed to ncrease she told me to talk to another GP, what do I need to say to back my case for a increase?

Many thanks

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Dawney63 profile image
Dawney63
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SlowDragon profile image
SlowDragonAdministrator

You may need to see an endocrinologist if different GP won’t agree to dose increase

healthunlocked.com/thyroidu...

Request “trial” increase

Dawney63 profile image
Dawney63 in reply to SlowDragon

Would that have to be a private endocrinologist? I dud ask this GP that ? And she said as long as my TSH is in range I don't need to see one.I have a few extra levo I'm thinking start the increase now and speak to a different GP tomorrow.

Thank you

HealthStarDust profile image
HealthStarDust in reply to Dawney63

See this healthunlocked.com/thyroidu...

To be honest, one the the GPs I used insisted 3 months before even testing, then agree to 8 weeks for testing, then later 3 months again on different doses! Madness! If they had good reason to and agreed this with me, I’d have no issue but it seems like to thinking goes on behind their decisions.

serenfach profile image
serenfach

One way to get a few extra - your medicine cabinet is above the sink. You went to get the pills out and they fell in to the sink full of water. Explain this to the surgery and ask for a repeat prescription. This only works once... :)

Dawney63 profile image
Dawney63 in reply to serenfach

Thank you, I'm waiting for a diffrent GP to call me today, I took a extra 25mg this morning taking me to 125 mg today, Im thinking of taking the extra 25 mg every alternative day to see how that works, I feel like we have to work this out ourselves or pay money to see consultants ect.

serenfach profile image
serenfach

I think many of us have come to the same conclusion. Do what is best for you, it is your body and your life. You know how you feel, they dont and what is more, they dont care. Take it gently, so frustrating that it takes so long to know if you have made the right decision, but it is your decision and your health.

Dawney63 profile image
Dawney63

The GP rang tonight and hes said I might be taking to much levo and asked me if I wanted to reduce it, he said if I take to much , i will be at risk of having heart issues ( I had a overactive thyroid in 1983 , I was given beta blockers and eventually came of them in 1987, we already have heart problems running in the family , my mum and sister had underactive thyroid)I thought once my TSH was under 1 I would be ok, sorry for being so dumb but im finding it difficult to understand everything.

I did say to my GP I woukd stay on the 100.mg dose until my next blood test in 6 weeks to see what the results were then, I don't know if I'm doing right or wrong.

Gingernut44 profile image
Gingernut44

I think it’s a real shame they’ve talked you out of your decision to raise your dose by 25mcg (which I believe you need) by scaring you. You should have stood your ground and said you’d try an increase and see what your levels are in 6 weeks. If you’ve got enough Levo to last I would still do what you were doing, 12.5 mcg increase but don’t tell them until you have your next blood test. It’s what I had to do.

Your high cholesterol is a clear sign that you’re not on a high enough dose.

Dawney63 profile image
Dawney63 in reply to Gingernut44

Thank you I think I have enough, would it be wiser to take 25 mg every other day (the levo im on comes in 50mg or 100mg so I'd need to cut a tablet in half to get 25 mg ) or to try and cut the tablet in quarters and take 100 mg + 12.5 mg ?

Gingernut44 profile image
Gingernut44

I would definitely try the 12.5 mcg increase. How you manage that is up to you. I personally can’t cope with different doses, when trying 87.5 mcg, I could always tell the day I took 75mcg instead of 100mcg but, for me, it was easy to adjust because I only take Wockhardt brand and they only come in 25 mcg tabs so cutting one in half was easy. You may be ok with taking 100 one day and 125 the next. Some people don’t seem to notice the difference, if not you’ll have to try splitting the pills ☹️ Give it a try and see. Good luck, don’t let ignorant GPs keep you ill, it’s your body not theirs.

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