Moving and liothyrinine

[katherine107]

Live in Dorset and been prescribed liothyrinine since 2012 through endocrinologist. I am moving to Brighton at end of month and petrified it won't be prescribed. I moved there before and wouldn't prescribe and then returned to Dorset. I have seen endocrinologists once a year here. Does anyone know anything about Brighton prescribing it. If they refuse what do I do. I will be ill without it. I am taking 60 MCG a day. No levothyroxine. I felt ill taking it as I took for a few years. Had terrible fatigue and did not agree with me

[SlowDragon Administrator]

Brighton still difficult

99 prescriptions in last year

openprescribing.net/analyse...

Dorset 635 prescriptions in last year

openprescribing.net/analyse...

Is private prescription an option

Thybon Henning 20mcg tablets at £60-£80 per 100 tablets

Which brand of T3 are you currently taking

List of thyroid specialists and endocrinologists who will prescribe T3 …..some are private and NHS

healthunlocked.com/thyroidu...

Improve Thyroid Treatment campaign on Facebook have had a lot of dealings with Sussex and might have recommendations of specific endo in Sussex

[katherine107 in reply to SlowDragon]

I can only take mercury pharma. It's written on prescription. What should I do when I get there ? I can't afford private prescription. I am recieving pension credit as low income

[SlowDragon Administrator in reply to katherine107]

You presumably currently have an NHS endocrinologist who you see annually?

Request letter from endocrinologist to give your new GP outlining your current treatment and the necessity to remain on 60mcg Mercury Pharma T3

It’s not a guarantee that the GP would honour it……but it’s a start

You could possibly continue to see your current NHS endocrinologist once a year?

If not …..look for another nearer Brighton

List of thyroid specialists and endocrinologists

healthunlocked.com/thyroidu...

Highly likely you will need to get FULL thyroid and vitamin testing done yourself at least annually

What vitamin supplements are you currently taking

Many (most?) thyroid patients need to supplement at least vitamin D, magnesium and Vitamin B complex continuously to maintain optimal vitamin levels

Do you have Hashimoto’s

Are you on strictly gluten free diet and/or dairy free diet

[katherine107 in reply to SlowDragon]

I take vit d . Vitamin b complex but not magnesium. Could I keep seeing endo in Dorset once a year. The surgery I am with here has nothing to do with prescribing my T3 only endo. Would I be entitled to see NHS endo in Brighton?

[SlowDragon Administrator in reply to katherine107]

Suggest you get in contact with ITT on Facebook

They have key member who has battle with Brighton

They might have some advice

facebook.com/ITTCampaign/

[katherine107 in reply to SlowDragon]

I will thankyou

[TaraJR in reply to katherine107]

I am co-lead on ITT. Have you joined us yet? I can put you in touch with a member from Brighton.

[katherine107 in reply to TaraJR]

No haven't joined. How do I do this?

[katherine107 in reply to TaraJR]

I have joined Facebook group. Is this what you mean?

[TaraJR in reply to katherine107]

Yes that's what I meant. If you ask a question on the ITT group page, we can hopefully help you.

[katherine107 in reply to TaraJR]

Thankyou

[katherine107 in reply to TaraJR]

Hi is it Mary s you can put me in touch with? I have already spoken to her. She said can't help other than saying I have to prove I have clinical need unless there is someone else you are thinking of. I am desperate to stay on it as felt so ill and couldn't function at all on thyroxine. I am well on liothyrinine and have been on it since 2012.

[TaraJR in reply to katherine107]

Ah yes, it was her I was thinking of. But we may have more members in your area - I'm not aware of where everyone lives. So please post your question

[katherine107 in reply to TaraJR]

Ok I will

[SlowDragon Administrator in reply to katherine107]

you need to test vitamin D, folate, B12 and ferritin at least annually

Ideally test vitamin D twice year…..September and January/February

all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

On T3 - day before test split T3 as 2 or 3 smaller doses spread through the day with last dose 8-12 hours before test

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/wp-content/up...

Tips on how to do DIY finger prick test

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

NHS easy postal kit vitamin D test £31 via

vitamindtest.org.uk

[katherine107 in reply to SlowDragon]

Thanks

[thyr01d]

Can you keep your Dorset endo team? I have moved to Hampshire from Gloucestershire and have kept my endo team rather than changing. I believe this is a patient right but worth checking on that.

[katherine107 in reply to thyr01d]

I have checked and no unfortunately