Billy Kenber has signed. Have you?

[helvella]

Billy Kenber is the Times journalist who put so much into getting the liothyronine pricing issues into the news, and the CMA investigation set up.

Link to Petition: petition.parliament.uk/peti...

Petition Wording:

Give more funding for thyroid research and patients after price hike

A fine of £84 million has been levied for the price hike in liothyronine (T3), which had a significant impact on patients. We request that an amount equivalent to a proportion of the fine (1-5%) is made available for thyroid research and support for patients with hypothyroidism.

Hypothyroidism is one of the commonest conditions in the UK. However 10-15% of patients despite levothyroxine treatment have persistent ill health, although some find their symptoms improve dramatically with liothyronine (another thyroid hormone). Despite being a common problem hypothyroidism has not attracted research funding and there have been no new treatments in decades. More funding for research and patient support might revolutionise the treatment and lives of many patients.

Link to Petition: petition.parliament.uk/peti...

[HowCome]

Signed! Thankyou for sharing.

[helvella]

In case you want to know more, there are numerous posts here which refer to Billy Kenber.

The search tool isn't very good, but even it manages to find quite a few posts!

healthunlocked.com/thyroidu...

[RedApple]

Billy Kenber's most recent article in The Times about the 'thyroid drug' price hike was just last month (August '23).

If you have an account, or feel like signing up for a trial subscription, you can read it here thetimes.co.uk/article/drug...

Billy played a huge part in exposing this scandalous behaviour by Big Pharma.

Please sign and share this petition so that thyroid patients can stand a chance of benefitting from the huge fine.

Petition is here petition.parliament.uk/peti...

Billy Kenber article Aug '23

[Fruitandnutcase]

I have and I’ve forwarded it to everyone I can think of.

[CoeliacMum1]

Signed…,but was shocked how few have signed!

With over 133,000 members on here but only over 5,000 signed.

Where I appreciate some of these members may no longer be with us, or abroad (not in U.K. to vote) or could duplicated member’s account but only over 5,000 is poor .

Please consider how many need help regardless of individual circumstances.

[RedApple in reply to CoeliacMum1]

CoeliacMum1, the problem isn't that people aren't bothering to sign. It's the difficulty in getting the word out to everyone.

For example, how do we reach all the people who are not n online support groups, probably because they are doing just fine on their treatment? How do we find and then convince these people to make the effort to go online and sign the petition?

[diamondial]

Signed

[Hylda2]

Signed

[SlowDragon Administrator]

here’s the original article by Billy Kenber that exposed the scandal

mjauk.org/wp-content/upload...

[RedApple in reply to SlowDragon]

June 2016! Can't believe how long this has been going on for!

[Hidden]

Sick Money by Billy Kenber. A very good read. Available in paperback and ebook

Sick Money: The Truth About the Global Pharmaceutical Industry amzn.eu/d/bZWx7FO

[Stourie]

signed. Jo xx