I was back on levothyroxine for eight months too long.

[Me1157]

I haven't been active much lately. My elderly parents were both in different hospitals and working as well; it left me no time to find a new thyroid Dr.. My dad passed away at 90 years young, and Mum is sad but doing better. I ended up back on levothyroxine for eight months as I was as busy as a one-legged man in a butt-kicking contest. All my good eating habits and exercises went out of the window as my parent's health and well-being became my top priority.

I can tell you that within 2 months, I had chronic fatigue symptoms again. I felt so bad, stressed, and sick with joint pains, sleeplessness, brain fog, and inability to focus or do much of anything 4 months into the NHS meds.

I am normally very easygoing, and nothing much bothers me. My TSH was still zero in july, superdrug cancelled my June testing because they were short -staffed with nurses. My free T3 & 4 balance was way off. I felt like Wondering Woman instead of Wonder Woman. My son found me a new good thyroid Dr as I couldn't focus enough to look for one.

She switched back gradually three weeks ago to my amour thyroid, and I am starting to feel human again. I'm sleeping better, my brain is working enough to write an update on my progress. My knee is still bad, and energy bursts and dissipates. I am functioning well enough to prepare healthier meals again and remember to take my supplements.

It was a hard lesson to learn - but I'm a poor converter and no T4 medicine-only treatment will not work for me. No matter how much the DR told me it's improved over the years.

If you're on any form of synthetic T4 thyroid meds and this sounds familiar, get your full thyroid panel with antibodies tested along with folate, B12 at the least, and find a good thyroid Dr. Your GP, family Dr, or endocrinologist - that may specialize in Diabetes with a side interest in thyroid may not know enough to help you. If you're in the UK, I think I found a good one that listens and knows what she's talking about. I waited 4 years to see an NHS endo and she was crap. It's expensive, to go private but good health is worth it.

[SlowDragon Administrator]

but good health is worth it.

Absolutely

Beautifully written post

Sorry for the loss of your Dad

(90 years young….made me smile)

Glad to hear you’re now recovering well back on NDT

[SlowDragon Administrator]

Please consider signing this Government petition for much needed funding for helping to get better testing, treatment and understanding of thyroid disease

Petition started by forward looking U.K. endocrinologist

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

We are trying to get 100,000 signatures

[Me1157 in reply to SlowDragon]

Thank you for you kind response. I already signed the petition. Thanks for adding this to my post as some members who see my post might not know about it.

[Anthea55 in reply to SlowDragon]

Do these 3 links all lead to the same petition? I signed one and hope I'm not missing another one. Thanks.

[helvella Administrator Thyroid UK in reply to Anthea55]

Yes - but trying very hard to make sure that if one link doesn't grab you, another might!

[Me1157 in reply to helvella]

Sounds like a plan

[Peaceluvva]

I’m the same as you but I am not being helped with thai NDT anymore as it appears to be weaker now. I’m desperate to order some NDT from somewhere but the prices have become ridiculous.

[Me1157]

So sorry to hear this, I have to get mine on prescription from a UK private Dr. It's expensive to go private, but when the NHS won't help, I have to do something to help myself