Edit - I posted the rest of my results in the replies because I didn't know how to post multiple images.
Hello all
I have posted here before although not for a while. So a bit of a back story I have suffered a range of symptoms for around 2 years now. And actually don't feel as though I've felt well since I was first diagnosed with hypothyroidism which I'm currently on 50mg levothyroxine for....symptoms include extreme fatigue. Out of breath easily. Constipation generally sluggish digestion. Brain fog. The list goes on....
Lately I have been suffering with anxiety palpitations and a constant off balance feeling and dizziness which has caused me to have a fall and another close call...I have presented myself to my local GP surgery countless times over the past 2 or so years always complaining of the same bunch of symptoms that I just cannot make better no matter what I do regarding lifestyle/diet changes more rest etc etc I have given up caffeine entirely. Rarely drink alcohol now and improved my general diet massively. All to no avail.
I tend to go around in circles at my local surgery as I have now seen 3 different doctors who are all insistent that my symptoms and general feelings of poor health are not related to my thyroid. As bloods always show within range (including the times I do not take levothyroxine 24 hours before a blood test) I must have had my blood taken atleast 6 times and I am usually told that all my results are normal and basically that's that.
There was one occasion where I was showing as being slightly anemic and I was given a course of iron pills which bought my bloods back within range but did not make any difference what so ever to how unwell I feel.
I am at my wit's end so am now posting the results on here from bloods I had a couple of weeks ago to see if anyone can see anything I should mention when I return to the Drs next Tuesday.
I should also mention when the Dr rang to give me my results he said B12 is high and asked if I supplement - which I do. Also he has ordered further tests which are to do with parathyroid I do believe.
Thank you for reading.
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Shails
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I was first diagnosed with hypothyroidism which I'm currently on 50mg levothyroxine for..
How long have you been left on just 50mcg
This is only the standard STARTER dose
Was this test done early morning, ideally just before 9am, only drinking water between waking and test and last dose levothyroxine 24 hours before test
FT4: 15.4 pmol/l (Range 11.3 - 21.6)
Ft4 is only 39.81% through range
Most people when adequately treated will have Ft4 at least 70-80% through range and TSH around or below 1
So results show you need next 25mcg dose increase in levothyroxine up to 75mcg
Bloods should be retested again in 6-8 weeks
Unless extremely petite likely to need several further increases in dose levothyroxine over coming months
Have you had BOTH TPO and TG thyroid antibodies tested at any point?
Low total white cell count - can be linked to autoimmune disease
Levothyroxine doesn’t top up your failing thyroid, it replaces it. Essential to be on high enough dose……typically dose is increased slowly upwards in 25mcg steps until on approximately 1.6mcg Levo per kilo of your weight per day
In the majority of patients 50-100 μg thyroxine can be used as the starting dose. Alterations in dose are achieved by using 25-50 μg increments and adequacy of the new dose can be confirmed by repeat measurement of TSH after 2-3 months.
The majority of patients will be clinically euthyroid with a ‘normal’ TSH and having thyroxine replacement in the range 75-150 μg/day (1.6ug/Kg on average).
The recommended approach is to titrate thyroxine therapy against the TSH concentration whilst assessing clinical well-being. The target is a serum TSH within the reference range.
……The primary target of thyroxine replacement therapy is to make the patient feel well and to achieve a serum TSH that is within the reference range. The corresponding FT4 will be within or slightly above its reference range.
The minimum period to achieve stable concentrations after a change in dose of thyroxine is two months and thyroid function tests should not normally be requested before this period has elapsed.
Comprehensive list of references for needing LOW TSH on levothyroxine
It is good that they are going to check your parathyroid as this is flagged up as a possible reason for your low serum inorganic phosphorus, but in the meantime an increase in Levo is needed 🤗
It seems I must go back to my GP and battle with them again to adjust my levothyroxine dose which so far they have point blank refused to do saying that an increase could send me over active. And whilst my bloods are in range there is no need to mess with them.
I'm a little confused with the parathyroid thing as my understanding was parathyroid condition effects people with over active thyroid rather than under active. So I'm assuming I'm incorrect on that.
What I do know is there is something very wrong with me and the battle to find out exactly what and have it corrected is exhausting. As an aside does anyone have any experience of paying privately to see a specialist? I do have some savings although not a great deal but at this point am prepared to spend the money if it's likely to get me some answers
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