I’m new here as a pernicious anemia sufferer with new neck symptoms which also involve my thyroid and-or parathyroid. I wanted to ask about the London based ultrasound clinic recommendation by the Thyroid charity where I had a scan. The private ultrasound clinic scan revealed issues and a recommendation for a FNA and to see an endocrinologist was made. Strangely at the NHS funded scan more recently I discussed the findings and they basically dismissed everything because of the fact they thought the person was unqualified and then proceeded with the ultrasound but barely spent 3 minutes. Even though I am in physical pain (parotid nodules as well as thyroid) I now can’t get help through the NHS. I was wondering if others have had their private scans dismissed and if so what approach did you take with NHS?
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RoseFlowerDew
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Thank you Jaydee1507. I am not sure what the NHS scan showed as I never received the report just a text message from GP that nodules are common a week after. However when my GP was away I mentioned the pain etc and sometimes problems swallowing again so a repeat scan was done and I think that result is still to come.
Coincidentally I have just had a neck mri for spine but I don’t think it will show anything related to my thyroid or parathyroid at the moment.
I’m just stuck with NHS not taking a serious view on things and I continue to have to self manage seizures with calcium. I need a way to get clarity if it’s a parathyroid and thyroid issue (involves calcium which when low causes seizures) or kidney related (acid base disorder causing seizures) or something else. Problem is NHS will look at their tests individually but not my overall health situation so I’m struggling along with no help other than comments of this isn’t an issue . Frequent minor errors in all the reporting of my results by NHS so was hoping private tests would move things along and help the doctors, but seems not.
Phone your GP reception and ask for a printed copy of the results which you are legally entitled to. In England you can get the NHS app and see your results there if you ask for permission at reception.
Do you have any thyroid results? If you could post those alnong with each test range (numbers in brackets after your result) That would be interesting to see.
Private tests can trigger things moving along with the NHS but it would really depend on what it says.
all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
Wow SlowDragon….gosh thank you for all the information! I will have to read it all very carefully and then follow up. I was wondering if nodules can make thyroid produce less hormones because certainly I have put on huge amount of weight in just a few months and going from size 14 to 20 and maybe even 22.
Why testing on Monday and Tuesday only? Also is there anything I should watch for when the test is taken…for instance apparently calcium tests shouldn’t use a tornaque(?).
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