Lost and confused: Hello everyoneMy 2nd post My... - Thyroid UK

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Lost and confused

Sully66 profile image
8 Replies

Hello everyoneMy 2nd post

My son still struggling..he has Hashimoto and is type 1 diabetic.

For several years he stopped taking lexothyroxine 150mcg.He was on a keep clean regime but obviously symptoms kept getting worse..fatigue hairless cold hands resting heart showing 103 ..his a mess

We are both frustrated and depressed more so My boy.for the last 7months we see yet another Endo..his on 4 grains of Armour and recent consultation Endo introduced T3..he felt like death after 3 days n stopped T3.

Any thoughts would be appreciated

Thankyou

Recent Bloods attached

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Sully66 profile image
Sully66
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8 Replies
userotc profile image
userotc

It sounds to me like medics such as endos not helping and you may be better with a qualified Nutritional Therapist instead.

If that's of interest, I can sendinks.

SlowDragon profile image
SlowDragonAdministrator

Was test done as recommended

Early morning, ideally just before 9am

Does he normally split the Armour as 2 or 3 doses

Day before test always split and last dose Approx 12 hours before test

Sully66 profile image
Sully66 in reply to SlowDragon

Yes test done as recommended Was splitting 2 doses and now his not!

His frustrated and depressed..why split there's no difference is his response

No meds 24hrs before test

Thankyou

SlowDragon profile image
SlowDragonAdministrator in reply to Sully66

So Ft3 result is false low if 24 hours before test

Suggest he add 25mcg levothyroxine and retest in 6-8 weeks

Sully66 profile image
Sully66 in reply to SlowDragon

Doesn't take lexothyroxine

His on armour thyroid

Thankyou

SlowDragon profile image
SlowDragonAdministrator in reply to Sully66

I know that currently only taking Armour

Many people add levothyroxine ALONGSIDE Armour because Ft4 is frequently too low …..yet can’t tolerate higher dose Armour

Beau55 profile image
Beau55

hi sully,

Sorry to hear he is struggling, it’s so very hard when it all goes to pot. Firstly, has he had his saliva cortisol tested? Without cortisol his bloods might appear to be ok, or even optimal but he won’t feel well. The high HR indicates he’s either over replaced or his cortisol could be low. He could be on the best thyroid dose possible but it can’t work without adequate cortisol.

When on NDT it can be difficult using the standards ft4/ft3 results as they were designed for levothyroxibe users. People tend to dose until they feel well. I found it much easier to monitor vitals so HR, BP, temp and see if you can detect what’s going on there.

Were those results on the t3 + NDT or just the NDT?

Sully66 profile image
Sully66 in reply to Beau55

HelloThankyou for your reply

Sorry was is high HR?

Results are on 4 grains of NDT only

Regards

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