aHep T3 : Hi need help please .. I have a... - Thyroid UK

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aHep T3

lynnwin profile image
23 Replies

Hi need help please .. I have a prescription ( private) for T 3 my problem is I can’t have Acica powder filler .. I looked at the list and saw Accord has it without the filler and phoned them and it’s in stock albeit 20mcg and I need 10mcg another story trying to get the prescription filled and cut them in half .. Anyway my dear friend spoke to Accord and found out morningside manufacture for Accord and can’t confirm if that filler acacia powder is in it ? Rang Morning side and had to leave a message .. is there anyone on here that takes Accord T3 that can check the ingredients leaflet ? This is stressing me out as I need to start taking it

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lynnwin
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Lalatoot profile image
Lalatoot

Helvella has a document which lists the available T3 in the UK and their fillers. Page 36

drive.google.com/file/d/1oT...

Please be aware that TEVA T3 is not like Teva levothyroxine - it does not have the same fillers so is not a problem.

SlowDragon profile image
SlowDragonAdministrator

There’s no Accord T3

Options are

Mercury Pharma ( Advanz) 20mcg only

Contains acacia powder

Teva 20mcg only

Does NOT contain acacia

Morningside 20mcg, 10mcg and 5mcg

Contains Acacia

List of T3 brands including ingredients here

thyroiduk.org/if-you-are-hy...

Private prescription enables access to non U.K. Thybon Henning 20mcg

Does NOT contain acacia

Prices are vastly different depending on brand and dose

Cheapest by far at 50-60p per tablet (in boxes of 100 tablets) is Thybon Henning

Most people on private prescription get this and cut into 1/4’s to get 5mcg doses

Teva 20mcg

£50 per 28 tablets = £1.80 per tablet approximately

To get 5mcg dose T3

Use sharp craft scalpel or pill cutter

Personally I vastly prefer to use scalpel

lynnwin profile image
lynnwin in reply toSlowDragon

Hi slow dragon there seems to be a Accord in T3 made by morning star I’ve now established that there is but not being able to tolerate the acacia powder it’s a no no .. My GP surgery said they could get Accord in 20mcg but wouldn’t do it as my script stated 10mcg I said I could cut them still wouldn’t dispense but makes no difference nor as it has acacia powder in it .. so we can get Accord T3 even though it’s made by morning side .. I now have to get a letter from my doctor to say why I need Tybon Henning as unlicensed xxx

helvella profile image
helvellaAdministrator in reply tolynnwin

I think there is a lot of confusion going on here.

If you visit Accord's own website and search for liothyronine - there is no liothyronine product:

accord-healthcare-products....

If you visit various other sites, including the British National Formulary, they appear to list liothyronine under Accord:

bnf.nice.org.uk/drugs/lioth...

If you visit the MHRA's documentation site, Accord liothyronine documentation is available:

mhraproducts4853.blob.core....

Accord must have applied for approval of a liothyronine product and submitted documentation. And this is what is shown on the MHRA site.

Accord do not supply this product. I have absolutely no idea whether they intend to in the future, or changed their minds.

The BNF lists products by supplier (not manufacturer). It looks like Accord, in their role as a distributor, handle Morningside Liothyronine.

The MHRA site lists Morningside liothyronine documentation. It has many differences to Accord's own documentation including ingredients and name of manufacturer.

mhraproducts4853.blob.core....

If anyone thinks I have got anything wrong, any detail, please let me know. It is confusing enough without me including mistakes!

RedApple profile image
RedAppleAdministrator in reply tohelvella

Lynnwin says this further down this thread 'Morning side has got back to me and the T3 they make for Accord has acacia powder in it'

helvella profile image
helvellaAdministrator in reply toRedApple

Yes - it will be Morningside's standard liothyronine product.

RedApple profile image
RedAppleAdministrator in reply tohelvella

Does it come in Accord branded packaging?

helvella profile image
helvellaAdministrator in reply toRedApple

I doubt it - but it is possible.

I would very much appreciate it if anyone has EVER had Accord branded liothyronine would let us know!

And I so wish the MHRA products site would include such things as packaging (for everything) and be easy to use!

lynnwin profile image
lynnwin in reply toRedApple

I believe it does come in Accord packaging it’s confusing enough without all this 😞 xxx

RedApple profile image
RedAppleAdministrator in reply tohelvella

Just trying to clarify this for others reading here too. Who would believe thyroid meds could be so complicated!

helvella profile image
helvellaAdministrator in reply toRedApple

At one time, neither would I!

SlowDragon profile image
SlowDragonAdministrator

So you need endocrinologist to change prescription to Liothyronine 20mcg tablets

If wanting Thybon Henning

20mcg x 100 tablets

If Teva

20mcg x 28 tablets

lynnwin profile image
lynnwin in reply toSlowDragon

Hi update Morning side has got back to me and the T3 they make for Accord has acacia powder in it .. I can get Thybon Henning but now need a letter from my GP to state why medically I need this as unlicensed in the Uk .. this is all so stressful 😞 xxxx

SlowDragon profile image
SlowDragonAdministrator in reply tolynnwin

You can get Teva on NHS

you can’t get Thybon Henning on NHS

You said you have private prescription

You can get Thybon Henning on private prescription

Ring/email Roseway Labs

Prescription needs to read

Thybon Henning Liothyronine 20mcg x 100 tablets

Digger031145 profile image
Digger031145 in reply tolynnwin

I did message you at 10.58 and said I’d been in touch with Morning’s de for you and they confirmed it does have acacia in it

How stressful for you xx

lynnwin profile image
lynnwin in reply toDigger031145

saw that rose but didn’t see the bit about the acacia powder .. just that morning side make it for Accord .. is this Thybon Henning private only ? As the endo writing to my GP to put on nhs repeat cxxx

SlowDragon profile image
SlowDragonAdministrator in reply tolynnwin

endo writing to my GP to put on nhs repeat

Did you see endocrinologist privately?

A) you can only get T3 on NHS if see NHS endocrinologist

B) initial 3-6 month trial via NHS endocrinologist has to be prescribed via NHS hospital pharmacy

lynnwin profile image
lynnwin in reply toSlowDragon

yes saw endocrinologist privately..

first prescription private but writing to my GP to add on my repeat prescription.. 3 month trial x

SlowDragon profile image
SlowDragonAdministrator in reply tolynnwin

Guidelines are quite clear

You can only get T3 on NHS if seen on NHS

Is this endo NHS and private

lynnwin profile image
lynnwin in reply toSlowDragon

yes he is NHS and private told me he was writing to my GP to add it to my NHS repeat prescription x

lynnwin profile image
lynnwin in reply toSlowDragon

Seems no pharmacy will dispense for me as they only have 20mcg and my script is for 10mcg so I need to get that changed before I can even get the T3 honestly it’s been a nightmare .. I might just try Teva but again that’s 20mcg so have to wait for the endo to change the prescription xxx

SlowDragon profile image
SlowDragonAdministrator in reply tolynnwin

Yes obviously a prescription for 10mcg is useless

is this a private prescription

If it is ask for prescription to read

Thybon Henning 20mcg liothyronine x 100 tablets

Taking as 10mcg per day (as 5mcg waking and 5mcg late afternoon)

If it’s an NHS prescription

Lactose Free Teva Liothyronine 20mcg x 28 tablets

Cut tablets into 1/4’s as required

Get weekly pill dispenser for spare 1/4’s

Initially only start on 5mcg dose

Waiting a week before increasing to 2 x 5mcg

SlowDragon profile image
SlowDragonAdministrator

Current price NHS paying for T3

Varies hugely across brand and dose

healthunlocked.com/thyroidu...

In extremely rare occasions that some NHS patients are getting Thybon Henning on NHS …..as a “special “ unlicensed medication pharmacy can charge NHS whatever it chooses as there’s no price regulation on specials

So Thybon Henning on NHS prescription can be vastly more expensive than a private prescription costs you

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