Skin Crawly Sensation on Head

[THoa2022]

I'm assuming this has to do with Hashimotos, but wanted to see if any of you had similar experience.

Randomly I'll get this creepy crawly sensation on the side of my head (typically one side, but can be both) above the ears near the temple. It feels almost like a slow wave or fingers going across and it feels like hairs are standing up when it happens (but you can't see anything like that).

I can't find any triggers, time of day, food, etc., to explain it. Regular labs look normal. My TSH is elevated now (above 4), but don't know if that's related.

Thank you for any insight if you've had this as well! It doesn't hurt but is distracting.

[Hidden]

hey, I used to get this and when I researched it I found it is a symptom of low cortisol. It used to feel like a little spider crawling across my face?

[Hidden in reply to Hidden]

drlamcoaching.com/blog/stra...

[THoa2022 in reply to Hidden]

Thank you! Adding this to get checked

[SlowDragon Administrator]

on levothyroxine TSH should always be below 2

Request 25mcg dose increase in levothyroxine

Plus get vitamin D, folate, ferritin and B12 levels tested

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

 

For full Thyroid evaluation you need TSH, FT4 and FT3 tested 

Also both TPO and TG thyroid antibodies tested at least once 

have you had thyroid antibodies tested?

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test 

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning. 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

Tips on how to do DIY finger prick test 

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

[SlowDragon Administrator]

crawling skin sensation can be low B12 …..very likely if your TSH is 4

[THoa2022 in reply to SlowDragon]

Thank you!!

[SlowDragon Administrator]

Comprehensive list of references for needing LOW TSH on levothyroxine 

healthunlocked.com/thyroidu....

TSH should be under 2 as an absolute maximum when on levothyroxine 

gponline.com/endocrinology-...

NHS England Liothyronine guidelines July 2019

 

sps.nhs.uk/wp-content/uploa...

Page 9 

Test for Deficiency of any of the following: Vitamin B12, Folate,  Vitamin D, Iron

See page 13 

1. Where symptoms of hypothyroidism persist despite optimal dosage with levothyroxine. (TSH 0.4-1.5mU/L)

Graph showing median TSH in healthy population is 1-1.5

web.archive.org/web/2004060...

[THoa2022 in reply to SlowDragon]

This is perfect, SlowDragon ! I was just thinking about giving something to my GP regarding why TSH needs to be lower. Thank you!

[SlowDragon Administrator in reply to THoa2022]

How much levothyroxine are you currently taking

Which brand

[Myalikki]

This is absolutely fascinating and a perfectly timed post! I had a terrible night's sleep last night, partly due to the creepy crawly on my face and skin feeling (legs were involved as well as the temples last night). Will be piggyback-liking people's responses to you!

[THoa2022 in reply to Myalikki]

Glad I'm not alone! lol