Hi wanted to check with the wonderful fountain of knowledge and experience on this:
I have no thyroid and currently take 75 mg of levothyroxine. I am treating some of my hypothyroid symptoms with sublingual B12 and homemade liver pate for folate - the combination has made a significant improvement.
I was recently changed to TEVA for the 25 dose and felt I had an alergic reaction to it (inside of mouth and lips slightly swollen, looser stomach and slower than normal (normal is rather slow at mo). So I stopped it and next prescription asked for another manufacturer which doesn't contain manitol.
To test this (and prove to Dr) I took my 75mg dose as all TEVA on Wed night at 3am (I take then to preserve integrity of levo and prevent problems of taking with other drugs etc - this works well for me as due to age I inevitably have to use the loo in the night and am incredibly fortunate in that I have a CPAP machine which aids fast and good sleep. CPAP machine given post Thyroidectomy due to impact of very large goitre).
I currently have more swelling in mouth and lips, feel very tired, dizzy and drunk. Thus indicating to me an allergic response to ingestion (as opposed to hay fever etc). Has anyone else experienced this? I then wondered if there is a block to effective use of/uptake of levo within the body if histamines are present and causing inflamation. And then wondered about something else I'd noticed that when hayfever is bad, life seems much more of a stuggle energywise until I take Acrivastine (Benadryl). Benadryl improves things but today has not brought me back to my current usual level of energy.
I wondered what people's throughts and experiences are? I'd love to back up my experience with other info as I'm seeing the Dr next week (after another useless TSH test).
Thanks everyone.
Written by
CernCrystal
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Very common to have note added to all presentations “No Teva”
Or to specify one brand of levothyroxine
How long have you been on just 75mcg dose
See you were previously on 150mcg
ALWAYS test thyroid levels early morning and last dose levothyroxine 24 hours before test
Only drink water between waking and test
If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
ESSENTIAL all four vitamins are regularly retested and maintain at optimal levels
Retest at least annually
Low vitamin levels results in low TSH
Being on too low a dose levothyroxine results in low vitamin levels
Liver pate will improve ferritin (not folate)
If you’re taking B12 it’s recommended to also take daily vitamin B complex to keep all B vitamins in balance
With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement and add a separate vitamin B Complex after a week
Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.
If Vegetarian or vegan likely to need ongoing separate B12 few times a week
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12
Sorry I can’t really help but I hope others will. I don’t get how you can be expected to convert T4 to the active T3 if you don’t have a thyroid any more? Surely you should be prescribed T3?
Hi l take 75levo one day and 50 the next. I finally have got my TSH to 0.99 and feel better. I only have Almus brand 50s l cut mine for the 75 dose its fairly easy. I have heard Teva isnt good try cutting for correct dose.
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