hi 5 weeks ago i went to the doctors as iv felt ackey legs feet tierd easy no energy couldent sleep .went doctors had blood test my vitiman d3 was leavel 22 dotor precribed 40,000 iu once a week for 7 weeks iv took my 5th week wensday. so i have next week to take 40,000 iu and the week after . but since taking the does each week iv started feeling realy unwell 1st week felt a little light headed 2nd week felt like i could just drop off in to a deep sleep and a weird sation in my head will come and i go. and my left arm will go achey and musseles hurting and my breast feel achy and pains come and go in them . and im going cold in the face and alittlesickly feelying unweel feeling with it . im woundering if anyone as had these vitiman d3 brand in this dose and as anyone else expirienced anything like this ? please reply im getting worried thanks
hi any one had side effects from 40,000 iu viti... - Thyroid UK
hi any one had side effects from 40,000 iu vitiman d3 the brand huxd3 ?
hi
Iv been feeling the same recently and Vit D level 15.Was prescribed 20,000 twice a week but was really dizzy and unwell after taking them for about an hrs and half but the worst thing was that during night I got really bad palpitations so I was only able to take 3 pills.I’m seeing GP tomorrow for plan B,(I have ehlers danlos syndrome and am hypersensitive to lots of things)
Speak to your GP I am sure they will advise you and reassure you xx
thankyou for your reply iv been having palatations too i think this dose is too much for me im going to ask the doctor if i can take better for you 3,000 iu per week now as iv took 5 weeks of the 40,000 iu i only have 2 more weeks of that dose but i dont like this palatations and head and pains .the night i had the palpations not nice feeling at all is it ? damed if you take it damed if you dont take it .so im going to take the better for you spray 3,000 per day for amonth than go down to 1,000 iu a day
yes best to ask advice,you have done very well taking quite a few of them so far🌻Hopefully the GP will be helpful and you will be able to get your levels up without feeling poorly xx
im going to ask the doctor if i can take better for you 3,000 iu per week now
You will be needing that dose on a daily basis most likely.
Problems with vitamin D can stem from other vitamin deficiencies, particularly magnesium. Did you have any other vitamin tetss run at the same time - ferritin, folate, B12?
thanks for replying , i dont know but i had a phone call yesterday from a doctor and told her how i was feeling she told me every meditation as some kind of side effect and to keep taking them and it was like a stern voice as if i was just not that important . i cant take any more of them as when i walk around i feel like a passing out feeling and cold in the face . and sickly with it.
i dont think so i just got told i needed a blood test but i have a bad ache in my shoulder arm and palataions
if you’re not already taking magnesium, then suggest you start doing so
Web links about taking important cofactors - magnesium and Vit K2-MK7
Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine
betterbones.com/bone-nutrit...
medicalnewstoday.com/articl...
livescience.com/61866-magne...
sciencedaily.com/releases/2...
Interesting article by Dr Malcolm Kendrick on magnesium
drmalcolmkendrick.org/categ...
Vitamin K2 mk7
betterbones.com/bone-nutrit...
healthline.com/nutrition/vi...
as Jaydee1507 says ….you’re probably going to need to take 3000iu per day (or higher)
Test twice yearly via NHS private testing service when supplementing
Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.
There’s a version made that also contains vitamin K2 Mk7.
One spray = 1000iu
HiCan I ask what vitamin D tablets your gp prescribed? Are they gel capsules that contain brilliant blue? Or the yellow gold ones?.
Im asking because my vitamin D was 29 in 2020 and my gp put me on same dose as yourself, I had really bad side effects to them same as you but I also had diarrhea and bad cramps so absorption was an issue, I never managed to get my vitamin D higher than 53,on both the vitamins gp prescribed (blue ones/gold yellow ones) I found out these vitamin D are banned in certain country's.
I've also tried better you with k2 but that gave me bowle/stomach problems and it says on the back.. May cause a laxative affect but I didn't have any other side effects other that the laxative effects 😣
My vit D is now 39 and gp isn't interested in the problems I'm having trying to stomach it🤦♀️ no help what so ever, so I'm at a loss as how to increase my level 🤷♀️ it's annoying my gp wants my level up but I can't do it by taking it orally 😢
morning it was 40,000 iu of the hux d3 gold gel capsules feel so poorly my doctor just said when she phoned me last night she saide well every medication as some kind of side effect . and to carry on taking then .
Hi❤️
Yes my gp said the same thing he prescribed colecalciferol containing brilliant blue this is a colourent, many people report bad side effects when taking this product including me, my gp changed it to the yellow one fultium they are also cholecalciferol.
Some people have no problem taking it but some have bad side effects the only way I could find out if it was the vitamin D (I knew it was) was to come off it, I did and all the awful symptoms went, did the same after taking the yellow /gold ones.
I did read somewhere these vit D the gps give you are cheep, standerd rubbish, again my vitamin D is insufficient at 39 and again my gp wants to prescribe this vitamin D loaded with colourants that definitely effect my bowles ect, I refused them but unfortunately every vit D I've tried as given me bad side effects 🤦♀️ also my calcium is on the high side so you have to be careful giving vitamin d to a patient who's calcium is high /top end because that can also give bad side effects to pushing the calcium even further up🤦♀️
hi thankyou for replying could i ask how long did it take for all these nasty side effects to go once you stoped taking it ? thankyou
The side affects went in around 2 days, this happen everytime I tried a new form of vitamin d, get the side effects within 2/3 days persisted, just became worse especially stomach /bowles then discontinued it until the effects went.As I said my gp says I'm insufficient at 39 so I need to take vit D but I know what will happen when I take it, my gp won't even give me vit D injections 😠 just wants me to keep trying the vit D tablets.. I've tried the spray with k2 (says on the back of the bottle.. Can cause a laxative effect 🤦♀️) tried every tablet/gel /capsules can't stomach them😢
My vit D is now 39 and gp isn't interested in the problems I'm having trying to stomach it🤦♀️ no help what so ever, so I'm at a loss as how to increase my level 🤷♀️
You do need to realise that the GP is not the best place to go for vitamins help. They have virtually no training in this subject and you can get the advice you need in this group.
Definitely add some magnesium in, even in the form of topical magnesium spray if your tummy is an issue. Add Epsom Salts or magnesium flakes to your baths and you can absorb it through your skin.
Vitamin D side effects can often be caused by low magnesium.
Mrshappyme
I use the magnesium spray, 👍 but I though because I can't take the vitamin D orally and he knows this, they would give me vit D injections to boost my vit d🤷♀️ my son said if I need to pay for it he would foot the bill❤️
I think there are clinics offering vit D injections but its not something I have heard of the NHS offering. Its really not their sort of priority sadly.
harpalclinic.co.uk/iv-drips...
Once you get your levels up though you will need to be taking a daily supplement anyway to maintain that.
Only problem is I got a diagnosis of primary hyperparathyroidism this illness depleats your vit D, it keeps the vid d low because of the top end/high calcium, and taking vit d with high calcium is not recommended.I persisted with the vit D but only managed to get it to 53 from 29 then had to come off it due to the side affects now it's 39 and I know it will drop futher🤦♀️ anyway I'm seeing a parathyroid specialist on June 22nd because the parathyroid surgeon found a nodule in my neck (possible overactive parathyroid gland) in Nov last year, so I think when this parathyroid specialist sees me she will see my vit d level linking it to the parathyroid problem 👍
My parathyroid consultant said because I couldn’t tolerate oral vitd then I would definitely not tolerate injections ! and once you’ve had one it’s in and no going back if the same reaction happens.
I'm seeing a parathyroid specialist in 2wks as a parathyroid surgeon as found a nodule in my neck, I got 2 diagnosis of primary hyperparathyroidism by nhs, but they just wanted to do the watch n wait 😠So my son paid privately for me to see a parathyroid surgeon who found the nodule, hence me seeing the specialist for a pet chloride scan.
I was told the body likes to keep the vit D low because of high calcium 🤷♀️
Vitd, calcium and parathyroid work in sync and low vitd in hpth is a protective process.
If the surgeon is sure of what he’s found why doesn’t he just get on and do the op ? this is what my surgeon did, the scans I had weren’t conclusive and couldn’t definitely locate the tumour but he was very experienced so was happy to schedule an op to go in and find it.
Unfortunately I've not got the 7 grand to have the operation done.. I saw a private parathyroid surgeon, he could have done the scan and op but I couldn't afford it🤷♀️ so unfortunately his had to put me back in to the NHS system, which as certain paramiters you must meet, my calcium as been jumping in and out, along with my pth, but both are at the top end.. Not a good relationship between pth and calcium.The waiting list on the NHS is between 12/18 months in some cases longer depending on your area😠 so I'm hoping this nhs specialist I'm seeing can push me forward 👍
i had a operation last year and after i came op from surrgry i was given a injection for blood clotting half hour after halfing it i started feling real hot and feelt light headed the they took a canler out of my hand as i started bleeding from it . the nurse pulled it out and as she did the blood went every were . covered the bed sheets iv got to go in for my gallbladder surgery soon so im not looking for ward to it .
hi im hpersensitve to a lot of things too and have had breast cancer 9 years ago thankyou so much for replying
you are very welcome and I’m glad that you have the breast cancer behind you now🌻xx
You know what angers me the most about being hypersensitive to certain medications ect is specialist don't believe you 😠When I was hyperthyroid I was put on anti thyroid medication I had the same reaction with my stomach /bowles after around 3/4days I was in agony🤦♀️ then after 5 days I was vomiting, gp insisted I keep talking it, but vomiting it back it wasn't working putting me into thyroid storm, I saw an endo in hospital he didn't believe me that the problem was the anti thyroid drug, but the ward gp and the person who did the colonoscopys one on admission to hospital then 5 days later when I completely refused to take the anti thyroid drug the specialist attributed the bowle inflammation to the thyroid drug as I'd not taken it for 5 days and my bowels were now normal.
The same as happen going on vit d and B12 and thyroid medication 🤦♀️ their is something in them that cause my colitis and lactose intolerance to flare up🤦♀️😢
morning i agree iv have reactions to alot of medications too and my doctor dont beleive me . same when i had the 4th covid vaccine 2 days after i had shingles . i get a urine infection and antibioctic set my palations off and i end up with them day and night for a good month if not longer sometimes till the side effects wear off on some of these medications scarey its a rollacoaster .im waitin on my gallbladder surery i have a hiatus hernia too so im not looking forward to it iv got to see the cconsultant next tusday . 7pm in the evening what a time wont get back till around 9.30pm .wish i never took them vitiman d3 ill take the better for you spray 3,000 iu and sit out on the patio
how much Levothyroxine are you currently taking
What are most recent TSH, Ft4 and FT3
ALWAYS test thyroid early morning and last dose Levothyroxine 24 hours before test
Do you always get same brand Levothyroxine at each prescription
Low vitamin levels suggests thyroid possibly not adequately treated
are you taking any magnesium supplement (at least 4 hours away from Levothyroxine)
When were folate, B12 and ferritin last tested
There are quite a few people who don't tolerate vitamin D very well, particularly in such huge doses.
Instead of taking 40,000 iU in one dose each week, you could take a smaller dose e.g. 5000 iU every day. It might take a little longer to reach your goal, but probably not a lot longer.
Vitamin D3 (Do not take D2) is easily sourced on sites selling supplements e.g. Amazon.
For more info on Vitamin D3 see this excellent thread from Seaside Susie.
healthunlocked.com/thyroidu...
thank you x
Mine was low like yours and with mouth spray D3 4,000 unit dose has gone to a good level,in about 5 months, through the winter.
Took spray at lunchtime with my B12 complex.
Does anyone understand the logic for such a mega dose once per week? It is summer should sunlight not be factored in?
I was also 22 (50 to 250) on blood test
Doctor prescribed me a small dose of 800!! units once per day I ignored.
So 5,600 a week versus your 40,000?
Nearly 8 times less.
Anyway, I ignored the doctor and used a 4,000 unit D3 once per day spray instead based on this site and Seaside susie link above.
( I think anyway, pretty brain fogged and early days hypo/taking levo)
5 months later at 94 nmol/L.
Monitor my health.
Much improved.
MMH Range not stated. Seems to be 35 to 105 not stated. 105 to 180 is stated as excess?
Wise people on here advise top end for vit D and B12.
Does anyone understand the logic for such a mega dose once per week?
It almost certainly saves money. Mega doses are unlikely to be about good health.
It is summer should sunlight not be factored in?
I don't know about healthy people, but for people with thyroid disease, many of us have to take vitamin D all year round. And a lower dose may be needed in summer than winter to maintain the vitamin D level we feel best with.
Also available from other retailers just as cheap and at least your know the provenance, I get mine from Boots or tesco's.
That's true. But the range of choice is far superior online.
Was your calcium checked before starting the vitD ? The huge dose you are trying to take could be pushing your calcium level to high and hypercalcemia will make you feel very unwell.
You may also be intolerant to VitD especially at that dose, many of us cannot take any VitD even in tiny amounts.
Hi bantam12❤️
This is interesting as my vit D was 29 in sep 2020 in the June and Aug my pth was over range and both calciums were top end one at 2.51 one at 2.54 and the endo just said it was vit D deficiency and placed me on a very high dose, I think that's why I have a very bad time on vit D.. My other calcium levels were.. 2.54, 2.68, 2.59,2.54, one at 2.89 in 2017 and high from 2015 until 2021🤦♀️ obviously I got a diagnosis of primary hyperparathiyroidism but nhs don't seem to be bothered I've had to take this into my own hands and a parathyroid surgeon as identified a nodule in my neck, seeing a parathyroid specialist endo on June 22nd 🙏 but it shows you how little these specialists know about vitamin D dosing 🤦♀️
Yes my calcium was over range in around March 2020 at 2.67 then 2.63 in around may 2020, I found these calcium test among my thyroid blood tests but I'd not noticed the calcium, I was more interested in the thyroid results, but I turned the page down and found the out of range calciums, got in touch with my gp who was awear they were over range but just said there only mildly out of range 🙄 I ask him to send the findings to an endo, the endo requested.. PTH, CAL, VIT D..first test.. Done on 26/6/2020... PTH.. 8.1...RANGE.. (1.60..6.90)
CAL.. 2.51..RANGE.. (2.10..2.60)
No vit D done, used one from 2019 at 71
Second test.. Done on 6/8/2020.. PTH.. 9.5
CAL.. 2.54
again used vit D from 2019 at 71
Both above results are normocalcemic hyperparathyroidism
Third test.. Done on 19/9/2020.. Cal.. 2.68..adj to 2.44
Vit D 29..
No PTH done, seeing as my PTH was over range on the june/Aug I would have thought another PTH would have been useful, but the endo jumped on the vit D and prescribed a large dose, I became even more ill within a few days, as I said my calcium has bounced in and out since 2020, and since 2015 I've had readings of.. 2.61, 2.67, 2.89, 2.75,2.67, 2.61, 2.68, 2.59.. I must state my first diagnosis of primary hyperparathyroidism was in 2004 when again my calcium went over range, and PTH, I had the 24h calcium urine test which showed I was passing large amounts of calcium through the kidneys, endo discharged me in 2005 after one normal blood test, I've since gone on to develop kidney stones (hospitalised for several times) ostiopeania, calcification in joints, calcified tendinitis.. Calcified LAD in the heart.. Absolutely no help from my gp or endocrinologist 😠.
As I say I've now taken this into my own hands, and a parathyroid surgeon as identified a nodule in my neck through ultrasound scan, seeing a parathyroid endocrinologist this month.
Ive never be able to stomach any vit D and I've spent a small fortune trying😢
i dont know my doctor said i needed a blood test as i was complaining of achey feet and legs so i wouldent know
Get a copy of the results then you know what’s been tested and what the results are, always best to have these so you can keep track. If you haven’t had calcium checked then in your shoes I would be asking for a test before continuing this very high dose.
I cannot tolerate VitD or in fact any supplements in any form or at any dose, my levels have always been low and that’s where they stay !
morning ill ask for acopy of my results . i go see doctor tomorrow so i dont know what shell do but im not right i go all cold in the face and feels like palpatations and feel passing out feeling after i get up and do a small job in the kitchen and this is not me as i get up every morning and get my jobs done but the feeling in my face and palapations and left arm only come on after id taken the 5th week of this vitiman d3 at 40,000 iu . i did phone the doctor on the 4th week of taking it and sisd i dont feell right dizzynes and arm hurts she said carry on taking it . i took the 5th dose then and thats when my palapations even worse and left arm real hurt from shoulder to just pass albow . my head feel s weierd i feel sick .i was fine untill i took this week after each week of taking it i felt worse and worse so i know its this vitimand3 40,000 that doesent suit me . why do we get spoken to as if we are stupit and dont know what effects us. crazy .
Hi Mrshappyme, my level was 44 so only insufficient, was advised by GP to take 25mcg daily (1000iu) I am no expert but maybe your dose is too much in one go, maybe a smaller dose daily would suffice but less than 40,000iu a week. I would advise discussing with your GP as never personally heard of taking a weeks worth in one go but as I said am no expert.
I remember the first time I took vitamin D. I thought my level wasn't bad, although it was not optimal. So I started taking 1000 iU per day, only to discover a few months later (it was summer) that my vitamin D level had dropped.
Nowadays I take 4000 iU four days a week. I also have to keep tabs on my calcium which has been threatening to go over range for several years, but hasn't actually done it yet.
Regarding taking a big dose once a week, this is commonly suggested by doctors. And I've even seen some evidence that elderly people in homes have been given 600,000 iU (!!!!) doses once a year.
Hi
Please check out the Understanding vitamin d deficiency and treatment group on FB. My d3 was down to 9nmol but they helped me raise it properly after no improvement on100,000iu a week from the endocrinologist. D3 needs K2, magnesium glycinate and sometimes Boron to help it metabolise in the body
why such a high dose and, 5000 to 10,000 is usually more than enough to get level up near max or over
Stopping t3 advice needed
Help confused! Is it all in my mind?
Not feeling to good. 
T3 named person / and surgery query 
