subclinical hyperthyroidism

[Pussycatlou]

is it normal to have as many symptoms when not in a treatable range. Last TSH 0.3 and t4 19. Still in the limbo intermediate wait and see stage yet many symptoms. Fluctuating daily in severity. 13 year old girl so we have the added pressure of puberty hormones x

[SlowDragon Administrator]

previous post with suggestions

healthunlocked.com/thyroidu...

[Pussycatlou in reply to SlowDragon]

hi I’m going to ask for these tests when we see paeds next make sure they are all done. She on a 72 hour cardiac monitor just now and a few more tests before back at clinic. I was just wondering if it was thyroid can u still have symptoms when not at a treatable level x

[tattybogle]

just adding this in case it comes in handy .. thyroidpatients.ca/2022/07/... Pediatric and teenage TSH, FT4, and FT3 levels

[birkie]

Hi pussycatlou❤️

Although I'm not a teenager, in 2014 an endo I saw for what were definitely hyper symptoms put in the report to my gp... This lady as a short suppressed TSH, with a few episodes of thyroiditis this appears to be subclinical hyperthyroidism, I recommend she as regular blood tests because of the episodes of thyroiditis (a swelling of the thyroid gland).

For reasons behond my control I never saw this report and my gp never did any thyroid blood functions, I know this because I requested my medical records in 2020 and found this report buried in there with no record of any thyroid blood done.

So from 2014 I just become more unwell with my gp insisting my symptoms were my menupausal hormones (going threw the change) symptoms were.. Sweating, tremors, palpitations, slight weight loss at that time, headache, insomnia.

I carry on with intermittent trips to my gp, in 2016 look up my symptoms on the NHS web site it keept coming up as an overactive thyroid i ask my gp if my problem could be my thyroid... NO... "Its your menupausal state" I struggle on until the end of 2017 where now I have lost a great deal of weight have heart problems (fast heartbeat) sweating constantly tremors all over my body.. (my son thought I had parkinsons) I was a wreck, still gp would not do anything, I did insist if this was menupausal he should give me something, he gave me some gel to rub on my arm.. It did nothing and in july 2018 I collapsed at home my son got me to the gp he again said its your menupausal state you will just have to get on with it.

In sep 2018 i again collapse my son again takes me to my surgery, but a new gp as just started I managed to see her after just 10 seconds of looking at me she promptly says"you have an overactive thyroid " hallelujah finally a Dr who recognises my condition 🙌 not good tho I go into thyroid storm, turns out I had graves disease 🤦‍♀️in hospital for 15 days, 3 weeks on oral iodine then full thyroidectomy in May 2019 my thyroid was thyrotoxic in effect it had been poisoning me over time 😠

My experience with subclinical HYPERthyroidism was I definitely had hyper symptoms but my gp failed to see the connection 🤦‍♀️

As many members on here say.. Be your own advocate for your health, in this case your daughters health, ask questions do as much research as you can on subclinical hyperthyroidism and don't let the endos get you down question everything 👍

[Pussycatlou in reply to birkie]

I’m so worried about it. A lot of the time it can look like and be mistaken for anxiety but she was never an anxious child. Quite the opposite, very confident and the blood work can’t lie. Although not had all the tests being advised useful from this group there is definitely something happening that TSH is dropping and t4 rising. It’s frustrating that the wait and see approach can mean a

Long wait for diagnosis as she is a child and illness should not be impacting her life at a time she should be having great fun x

[birkie in reply to Pussycatlou]

Its not all about the levels, a great theory from a friend(bloods) ❤️i just wish my gp had looked further in to my symptoms, I ticked just about every box for hyper obviously my gp wasn't doing the correct blood tests😠I'm sick of these so called guidelines.. It umbrellas us all with the ranges for TSH, T4, T3 🤷‍♀️ when in actual fact we are all very different, some people can feel OK with a low level some not, I had this out with my gp explaining if a T3, T4 is just in range, example T4.. Range is 11.00..22.00 and yours is 21.00

T3.. Range is 3.10..6.80..and yours is 6.79

TSH.. Range.. 0.30..4.50..and your is 0.29..

HYPER it would be the other way for HYPO

Your gp will no doubt say your levels are in normal range saying you can't be having hyper symptoms with ranges like this, when in fact that's no true, the problem is when a gp sees in range levels he rubs his hands and that's it, your OK! And probably wouldn't do further testing, this as happened to me regarding primary hyperparathyroidism.

If one of the tests were either under or over range then a gp may request further bloods in 3 months, this in my opinion is where they can miss the levels going over or under especially if the thyroid condition is auto immune, in effect you attack your thyroid making it go over or under active I was attacking mine intermittently in the early stages and the longer my gp left me like that my t4 went to 100, my T3 went to 39.6 and my TSH was suppressed (in thyroid storm)

The guidelines need to change and gps need to look more into symptoms.. Keep an eye on her levels and insist she has at least 3 tests in succession to see what her levels are doing over a period of time👍👍

[arTistapple]

This is terrible Pussycatlou. I would not wish this for anyone but most especially a child. I hope you get something sorted soon.