I am a 63 year old lady. I was diagnosed with over active thyroid at 18. Ended up having radioactive treatment at 24 then at 28 a complete thyroidectomy. Have been on thyroxine since then - at one point was prescribed the expensive one ( can’t remember the name ) my gp stopped that as too expensive and since last summer has been reducing my levothyroxine from 195 mcg to now 125 mcg.
now all I do is sleep. I feel my life is passing me by.
my bloods please see pictures. Seems I cam only add one picture.
I feel he isn’t understanding I need the levothyroxine to be more. Am I right ?
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Poppyred300
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Sounds like you need to find a new Endo who can prescribe T3. If you email info@thyroiduk.org they will send you a list of Endo's that you could see either privately or on the NHS.
Your GP should reinstate your T3 as only an Endocrinologist can stop that treatment.
You do also need more levo. Insist GP puts your dose back up. You can take responsibilty for having a lower level of TSH.
The first paragraph in the NICE (NHS) Thyroid Disease, Assessment and Management guidelines says :
nice.org.uk/guidance/ng145
"Your responsibility”
The recommendations in this guideline represent the view of NICE, arrived at after careful consideration of the evidence available. When exercising their judgement, professionals and practitioners are expected to take this guideline fully into account, alongside the individual needs, preferences and values of their patients or the people using their service. It is not mandatory to apply the recommendations, and the guideline does not override the responsibility to make decisions appropriate to the circumstances of the individual, in consultation with them and their families and carers or guardian. "
When hypo we get low stomach acid which means we cannot absorb vitamins well from our food, regardless of a great diet. For thyroid hormone to work well we need OPTIMAL levels of vitamins. Have you recently or could you ask your GP to test levels of ferritin, folate, B12 & D3? Private tests are available, see link for companies offering private blood tests & discount codes, some offer a blood draw service at an extra cost. thyroiduk.org/help-and-supp...
There is also a new company offering walk in & mail order blood tests in Crawley, Hove and Reigate areas. onedaytests.com/products/ul...
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