More research /labelling needed for Vit D suppl... - Thyroid UK

Thyroid UK

137,831 members161,654 posts

More research /labelling needed for Vit D supplements

Danielj1 profile image
16 Replies

I have had a host of new and totally unexplained incredibly negative symptoms over the past 3 months that have all totally gone since stopping D supplements over the past week - I now realise they started pretty much at the time I started taking the extra pill each day.

Never ever crossed my mind that any of us might find these unhelpful or damaging - so thank you to a person who pointed out on this board that they were not able to tolerate this supplement at all - first time I had even had a hint of this sort of outcome

Question - do suppliers explains the risks well enough (and how many have zero tolerance etc)

Written by
Danielj1 profile image
Danielj1
To view profiles and participate in discussions please or .
Read more about...
16 Replies
Charlie-Farley profile image
Charlie-Farley

Hi Danielj1

Could you share some more info - there are a lot of different brands out there but yes some people do have problems tolerating supplements and medication and it can be the excipients (the bulk that makes the pill) that can cause problems.

The official definition is; excipients - an inactive substance that serves as the vehicle or medium for a drug or other active substance.

"excipients are things like colouring agents, preservatives, and fillers"

But in reality we see people reporting adverse affects from some medication and it turns out to be an intolerance to these very substances.

I'm guessing you were trying to supplement a deficiency in Vitamin D? What was your starting point? Do you have any recent blood tests to tell you what your levels are now?

I do know many with sensitivities to pill fillers use sublingual sprays to good effect.

Buddy195 profile image
Buddy195Administrator

As  Charlie-Farley has said, quite a few people can’t tolerate fillers/ bulking agents in either thyroid medication or vitamin supplements. Which supplement did you have an adverse reaction to?

Many members (myself included) prefer to take Vit D sublingually, if blood results indicate that we would benefit from supplementing, eg

BetterYou Vitamin D3000+K2 Daily Oral Spray | Natural Daily Multivitamin Spray and Immune System Support | Natural Peppermint Flavour | 12ml (30 Daily Doses) amzn.eu/d/7xsPAGb

jimh111 profile image
jimh111

When I had IBS (caused by undiagnosed hypothyroidism) I found magnesium supplements helped. Also, taking RDA of vitamin D helped but when I took 2x RDA it started to get worse. (It's a long time ago so I'm going by memory, hence refs. to RDA).

Low levels of vitamin D and high levels lead to low magnesium status. So, it's important to maintain normal vitamin D levels, not too low and not too high.

Lalatoot profile image
Lalatoot

Daniel it is the same for all supplements. People can try things but there is no guarantee that the supplement will suit them I have had side effects from selenium when I was prescribed that and from amino acid supplement when I tried that

RedApple profile image
RedAppleAdministrator

Danielj1, I don't know if I am the person that you are referring to, but I do quite often mention on this forum that I cannot take vitamin D supplements. (I mentioned it on your previous post just yesterday healthunlocked.com/thyroidu... )

I discovered my own intolerance to vit D supplements many years ago. I have tried every variant of tablet, capsule and spray, both with and without K2. I've also tried transdermal, thinking that avoiding the digestive system might be the answer. It wasn't.

I am not intolerant to sunshine though, and when I spend enough time in the sun, my vit D level rises naturally, as it should.

'Question - do suppliers explains the risks well enough'

In my experience, no-one wants to even acknowledge the possibility of vitamin D supplement intolerance! We are constantly being brainwashed into believing that literally everyone is deficient and needs to take high doses of vitamin D.

Danielj1 profile image
Danielj1 in reply to RedApple

brilliantly explained - D is being pushed in this country like no other - the fact that possible copper disregulation and cancer risks seem to be swept under the carpet in the media hype makes me very distrustful - is it intolerance or actually does harm though ?

I will stick to the sunshine for my D too Redapple - there are remarkedly few dissenting voices to this “bandwagon “

Danielj1 profile image
Danielj1 in reply to Danielj1

bonappetit.com/trends/artic...

Other food options to supplements that can work well …

RedApple profile image
RedAppleAdministrator in reply to Danielj1

Yes Danielj1, there is vit D in some foods (mushrooms are a good source apparently), but you can't reach the recommended optimum vit D level just with food.

radd profile image
radd

Danielj1,

Jim is right in that a magnesium deficiency can make Vit D difficult to tolerate. Also if you have up-regulated PTH, eg not enough to cause hyperparathyroidism issues but enough to convert excess amounts amounts of the active form 1,25 D3. 

Years ago VDR genetic impairments were as fashionable as MTHFR but not really mentioned now but it’s still possible. 

vitamindwiki.com/Overview+R...

RedApple profile image
RedAppleAdministrator in reply to radd

radd, When I was first trying to find the cause of my vit D intolerance, I suspected up-regulated PTH and suggested this to my GP, who very reluctantly agreed to test for hyperparathyroidism. But the hospital phlebotomist didn't get the blood to the lab in time so the test failed. GP didn't at the time believe vit D to be of any great importance anyway, so wouldn't sanction another blood draw.

I see that Medichecks offer this test now, but it has to be done at the lab they use. medichecks.com/products/par...

Hedgeree profile image
Hedgeree in reply to RedApple

Hi RedApple,

By upregulated PTH does that mean above range?

Just edited! 🥴

RedApple profile image
RedAppleAdministrator in reply to Hedgeree

I take it to mean very high, but not high enough for medics to diagnose hyperparathyroidism. i.e. borderline high 😊

Hedgeree profile image
Hedgeree in reply to RedApple

Ok thank you.

I'm struggling with getting my PTH to get back into range as it is out of range currently (no idea how long it's been that way as only got tested last August 2022.

I'm tolerating vit D supplements and cofactors but 5000 daily isn't making much difference to my levels.

Interesting area.

RedApple profile image
RedAppleAdministrator in reply to Hedgeree

What are you doing to get PTH back into range?

Hedgeree profile image
Hedgeree in reply to RedApple

I'm under the care of an ENT clinic and was given high dose vit D last year but now supplementing daily.

Batty1 profile image
Batty1

What issues were you having?

You may also like...

Vit D supplementation

considering the summer we have had I obviously need to take more. I have been supplementing 1000iu...

How much Vit D supplement to take?

Ferritin 141.0. (20-150) TSH. 1.36. (0.27-4.20) T4 total. 81.2. (64.5-142.0) Free T4. 13.10...

Any advice or experience of vit d supplements?

that I am vit d deficient and wondered if anyone had some advice on how to tackle this problem. My...

Vitamin supplements Vit D Vit B12, magnesium citrate and calcium citrate

sclerosis.... can you enlighten me how these vitamin supplements work?.

Supplementing vit d, b12, folate and ferritin