What the heck is wrong with me??? 😭😭

[OudMood]

Honestly I’m so fed up.

My results just keep going up and down unreasonably??

What do you advise me to do next? Please help.

Since my last post (where I thought I made progress) my tiredness and some headaches have been back as well as my high BP!

Ive been so tired that I’ve taken a pregnancy test, which is obviously negative.. but the thought did cross my mind!

So I have been on 75mg (ish) daily taken religiously for about 11 weeks.

MMH from Wednesday are:

TSH 7.38 (0.27-4.2) 181%

FT4 13.3 (12-22) 13%

FT3 4.4 (3.1-6.8) 35%

In December, at 100mcg daily the results were:

TSH <0.01 (0.27-4.2) - 6.6%

FT4 29.9 (12-22). 179%

FT3 9 (3.1-6.8) 160%

Previous results in October (also 100mcg, but tested at 7-8wks mark and wasn’t taking regularly ) were:

TSH 2 (0.27-4.2) 44%

FT4 17.9 (12-22) 59%

FT3 5 (3.1-6.8). 51%

footnotes:

- All results are MMH

- All samples taken between 6.30 and 7.30am

- All usual Blood test recommendations followed

- last dose of T4 24hs before and no biotin

All vitamins are ok

[radd]

OudMood,

Your latest labs show you to be under-medicated.

The most common cause of hypothyroidism is Hashimotos and you previously had raised TGAb’s. Thyroid antibodies can fluctuate massively and it may be if you were to retest now both TGAb and TPOAb are raised. It is possible to also have a few TRAb’s in the mix too! The resulting inner turmoil and immune chaos can make us feel very ill and with each attack the gland may become a bit more destroyed meaning as the attack subsides a Levo increase is required. I think this is the stage you are at now. 

It is thought that by keeping thyroid hormones optimised it reduces more thyroid gland activity (reducing attacks) but this is difficult if hormones are waxing and waning. If this were me I would be looking to reduce inflammation which is a large part of the driving force behind Hashi. The inflammation is caused primarily by the up regulated immune system gone askew but also if you are over weight, perhaps not gluten free should you have intolerances, perhaps have gut issues due to infection, etc. 

Keeping iron and nutrients optimal will go a long way in helping thyroid hormones do their job better, especially the natural anti inflammatories such as Vit D, selenium and fish oils. Have you kept up the Berberine? I’m sorry you are going through this. Have you read The Root Cause by Isabella Wentz for better Hashimotos understanding? 

[SlowDragon Administrator]

Obviously you need to go back to 100mcg daily

Retest again in another 8 weeks

Were 100mcg tablets same brand as current for 75mcg

As you have Type 1 diabetes presumably your hypothyroidism is autoimmune too

Are you on strictly gluten free diet or dairy free diet

[Josephineinamachine]

how did you feel on the 100mcg daily?

[tattybogle]

since 100mcg was previously too much and 75mcg is currently to little ....personally i'd try 87.5mcg for a couple of months see if levels settle down .... if it's not enough, then go back to 100cmcg .

Because you only had one test done when taking 100mcg regularly , it's impossible to say whether the previous high T4 /FT3 results on 100mcg were really due to that dose being too high for you, or whether it was your thyroid dumping some extra in there temporarily as a result of a hashimoto's attack.

To get 87.5mcg dose, 75mcg / 100mcg on alternate days is commonly prescribed ...or if you prefer to take the same dose each day cut a 25mcg in half and take the other half the next day .