I don’t think I can make a poll but was wondering how many people here are hypermobile? I’m interested as reading into it.
All the people bar 1 that I know who have hashi’s/thyroid dysfunction are hypermobile.
FYI: You can work out if you’re hypermobile by things like locking knees back when standing, double jointed, very “bendy” joints (wrists, arms, back etc.) stretchy skin, adrenal symptoms like fatigue, pots etc. It is something to do with collagen formation.
Raises hand, I got diagnosed some years ago now with Ehlers Danlos Syndrome. Also have POTS. Have to say things are improving somewhat with T3 added to Levo!
Someone else suggested a while back that I'm likely hyper bendy.... nope, tight as a well strung instrument! But my sister is and she is just joining the club though non Hashi it seems just failing thyroid...
Not everyone in the family has hypermobile joints or thyroid issues, or both. At the moment, only one cousin and I (that I know of) have thyroid issues, and she doesn't have hypermobile joints. Another cousin has the joints, but not the thyroid issues. So although they can go hand in hand, its not always the case.
Hypermobile and hypothyroid. Not sure if Hashi's but not bendy enough to be EDS. I just wish I had known then what I know now. I was tested on and off for my thyroid for 14 years before my thyroid finally gave up. TSH 150 and total T4 of only 20 (60-160), 6 months after my daughter was born. She's now 20 yrs old and I'm currently trying to get her diagnosed with EDS, as she keeps subluxating her knees, shoulders and fingers and it's causing her a lot of pain. Also asking they check her thyroid function as given all her other symptoms, she very much reminds me of me at that age. I was going to the doctor complaining of being tired all the time with achy joints since I was 18. I don't want her to go through what I did!
My chiropractor just mentioned that I was hypermobile, but I see very little signs of it other than the knees locking - if that is a symptom. I was never able to do the splits or hang on to the parallel bars, but I have never dislocated anything. I may have a problem with the pituitary gland but nothing has been diagnosed yet. My GP tried to say I was hypothyroid but she based it mostly on TSH being below 1. So it's all still in the air and I am not currently getting treatment. Hope this helps your research.
I too have hypermobile joints & a thyroid condition diagnosed 10+ years ago. There is a family history of thyroid conditions & my adult son has been diagnosed with underactive thyroid condition & later Graves disease.
Yup, EDS here and I have passed it on to my children. I got it from my Mum, I like sitting cross legged and with my head on the floor between my legs- I find it relaxing. Getting up again can take a while as I am old.
I have never thought of myself as hypermobile but I know I can lock my knees backwards. Funnily enough when I was recently over medicated with thyroxine I experienced hypermobility (depending on your viewpoint) so badly my whole body was unsupported, felt like it was in danger of joints coming out. I also describe it as if I was a marionette with its strings cut. Awful.
Rather a late reply - yes I have Hashi's and also diagnosed as hypermobile. I also have scoliosis (diagnosed aged 11) and there is a link between this and hypermobility.
I was recently diagnosed with hypothyroidism, and also Hashimotos. Even more recently I was diagnosed with hypermobility. The hypermobility completely makes sense to me, and answers so many things. I always knew I was "double jointed" and extremely flexible, but did not know the other issues were due to hypermobility. I was in a car accident at the beginning of the year and it was my physical therapist who identified the hypermobility. With the hypothyroid diagnosis, that also answered questions to things that started happening a couple of years ago. Lately I have been doing a lot of looking to see if there is a connection between the two, and that is how I came across your question! Thank you for posting. It seems that there is not a lot of information as of yet about the connection, and hypermobility, or joint hypermobility that is not EDS is not very well understood, from what I have gathered so far.
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